MDA services in the US
- Hi guys. I just wanted to let people know that with a diagnosis of
MTM/CNM that you are eligible for services from the Muscular
Dystrophy Association in the United States. The MDA can be quite a
You can get medical care from a MDA clinic from a doctor that
specializes in treating patients with neuromuscular disease. It's
easy to sign up - just go to the MDA website (www.mda.org) and type
in your zip code to find the clinic nearest to your home. There are
some other benefits as well (including financial help for some
equipment). See below:
Services to enhance mobility and independent living are available in
each community through MDA's local network of field offices.
Wheelchairs/Leg Braces/Communication Devices
MDA assists with the purchase of wheelchairs, leg braces, and
communication devices. All those for whom wheelchairs, leg braces, or
communication devices have been recommended, regardless of age,
education or employment status, are eligible for MDA assistance when
the equipment is prescribed by an MDA clinic physician in relation to
an individual's neuromuscular disease.
In addition to utilizing whatever medical insurance may be
applicable, the person for whom the equipment has been prescribed or
that person's family may be asked to assist with its purchase through
The maximum allowable assistance toward the purchase of a wheelchair,
leg braces or a communication device is established by MDA annually.
Equipment Loan Program
MDA provides, to the extent feasible and when available, good-
condition recycled wheelchairs and other durable medical equipment
when medically prescribed in relation to an individual's
neuromuscular disease. When the individual for whom it was prescribed
no longer needs the equipment, families are encouraged to return it
to MDA for use by others. Through its local chapters and field
offices, MDA accepts durable medical equipment for distribution
through the Association's loan program.
The Association assists with payment toward the cost of
repairs/modifications to all wheelchairs and leg braces routinely
authorized for MDA payment. The amount allowable toward
repairs/modifications is established by the Association annually.
MDA-sponsored summer camps offer a wide range of programs for young
people ages 6 to 21. Activities are geared to the abilities of
campers and may include outdoor sports such as fishing, swimming and
horseback riding. Less physically demanding activities include arts
and crafts, talent shows, cook-outs and entertainment.
Accessibility and Awareness
MDA actively monitors and supports programs and legislation relevant
to people with disabilities such as medical care, insurance,
accessibility, transportation, education, independent living and
personal assistance services.|
Services not provided by MDA are often available from other organized
community agencies. MDA assists in securing help from these community