- I did not mention Captain Feathersword for fear that I would summon
the wrath of the sleeping giant. You just don't mess with
Very cute (in a menacing pirate sort of way, of course) :0)
--- In Myotubular_Myopathy@yahoogroups.com, "Richard and Connie
Guinn" <kookla_g@...> wrote:
> Thanks for the link- this is especially helpful for those of us who
> do not get the magazine.
> With all of your Quest articles/letters to editor mentionings, you
> forgot to mention the very cute picture of another x-linked boy who
> is wearing a Captain Feathersword costume!! (p.49)
> I am glad to know that you are a rhymer. (Is that an OCD thing?)
> BTW... You did mention Dr. Bach. (But, I didn't! :)
> As for hating you and Adam.... this simply is not true!! I love
> I went to your site, and I saw no pictures of you. (Thanks for
> teasing us).
> Seriously, thanks for mentioning the site. You have a lot of stuff
> on there that is very helpful to me and my family- it is great to
> find it.
> --- In Myotubular_Myopathy@yahoogroups.com, "Ray" <ray@> wrote:
> > http://www.mdaquest-digital.com/mdaquest/20070910/?u1=texterity
> > If yahoo lets that link I just pasted to show up, it will take
> tolike 'MDA
> > Quest online. Otherwise you just Google search something
> > Quest magazine' and you'll find itbeautiful.
> > There is also an article written by a non-invasive vent user- Dr.
> > the guy is literally a rocket scientist, which is pretty cool.
> > There's also a letter to the editor from Dr. Bach regarding the
> > and lies about tracheostom-eyes -it rhymes if you spell it that
> > way...Have I mentioned Dr. Bach before??- I think so- :0)
> > Regarding Adam and I- please don't hate us because we're
> > Thanks for your post Connie. If you just can't enough of my
> > you can also find it at www.drrayonline.com
> > --- In Myotubular_Myopathy@yahoogroups.com, "patsarah2006"
> > <patsarah@> wrote:
> > >
> > > Yeah!!!! Thanks, Connie! We are out of town with almost no
> > > internet/phone access so it was great to see the news. I
> > > to get home and see the article!!!!! I am so excited. Sarah
> > >