RE: [Myotubular_Myopathy] Tx for Support
Mathew looks great! He is all smiles in the photo where he is sitting up! J
Thanks for the photos, his bedroom is all colourful! I bet he loves it!
Hey did he goes with the buggy fitting? Did he mind too much?
You know what? Only the classiest, select few can come to Holland.. because we can only truly appreciate what a beautiful place it is, and we know better not take it for granted.
We are very blessed!
From: Wright, Janice (J) [mailto:janice.wright@...]
Sent: Thursday, 4 December 2003 7:59 PM
Subject: [Myotubular_Myopathy] Tx for Support
Thanks for the responses I received from everyone. It is such a relief to be able to offload to people who have gone through the same experiences and who care and support. It was really touching reading your messages, and realising I was not alone in how I was feeling and that what I was feeling was not strange. Thanks for reminding me that I am really blessed to have "Holland", I am so lucky to have Matthew to love and hold. I am lucky that his smile lights up my life.
I am also lucky to have you all to share my/our experiences with.
Amanda - congrats on Jacobs 22 month birthday
Thanks again for all your support.
Attached please find pictures taken on Monday for his new Shona Buggy
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- Janice, Tx for sharing the pictures of Matthew and his new buggy! What a
handsome young man he is! His smile lights up his face. How old is he?
take care pat