Wow it's nice to know that I am not alone in this. my
doctor knows nothing about MTM other than what she
reads in the medical books. I am not sure you are
aware of the Joshua Frase foundation, you can find it
on the Internet, as a matter of fact I have a phone
number for this Foundation.
124 Crossroad Lake Dr.
Ponte Vedra Beach, FL
I called her once and she gave me some useful
information about supplements. Unfortunately I am
overweight. I have two kids and work full time. Yes ,
losing weight is extremely difficult. my mother has it
as well and she too is overweight. She has lost some
weight. If you could tell me what your symptoms are
and generally how are you feeling. Are you working?
Well take care and hope to hear from you soon
> In a message dated 2/16/2003 10:53:24 AM Eastern
> Standard Time,
> renee_b_88@... writes:
> > was diagnosed a lil less than a yr. ago. I am
> absolutly frustrated
> > with my doctor's because they have no idea what
> they are dealing
> > with.
> I am so sorry about your son.
> You are the first adult I've seen in this email
> group with MTM. I, too, was
> diagnosed with this disease. Because both of my
> parents are already
> deceased, it is difficult to know where I got it
> I have an excellent doctor in Northern Virginia, but
> even he admits that he's
> only seen 5 cases of MTM in 15 years of practice.
> I don't have any real suggestions for you other than
> if you are not currently
> overweight, stay that way!! I am seriously
> overweight and that makes the
> disease harder to cope with. It also makes losing
> weight extremely difficult
> because I can't really exercise.
> I would be happy to try to communicate with you and
> share notes as much as
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