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RE: [Myotubular_Myopathy] Update on Kyle

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  • Anne McAuliffe
    I LOVE IT! May have to relay this story to EVERY one of my friends. Well done Kyle, there s nothing like a bit of chat! Anne and Tom ... From:
    Message 1 of 34 , May 19 2:57 AM
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      I LOVE IT! May have to relay this story to EVERY one of my friends. Well
      done Kyle, there's nothing like a bit of chat!
      Anne and Tom

      -----Original Message-----
      From: Myotubular_Myopathy@yahoogroups.com
      [mailto:Myotubular_Myopathy@yahoogroups.com] On Behalf Of Darlene
      Sent: 04 August 2006 21:42
      To: Myotubular_Myopathy@yahoogroups.com
      Subject: [Myotubular_Myopathy] Update on Kyle

      Hi all,

      Kyle had tubes put in his ears for the second time today. He also had
      his voicebox and vocal cords checked. The doctor said everything went
      well with his ears and his voicebox and vocal cords are fine. He
      wanted to make sure they were growing properly. He also wants to
      downsize his trach once we have his ears cleared up. By down sizing
      the trach, Kyle will be able to get more air around his vocal cords so
      he should be able to talk more.

      When he woke up he was ready to go home. The doctor said, Kyle would
      not talk or make any sounds the rest of toady and most of tomorrow
      because of what they did to his vocal cords. Boy, was he wrong. He
      kept telling the nurse he was leaving. They kept him for an hour in
      recovery just to make sure everything was ok. All the way home (it's
      a 2 hour drive) he was humming, talking and wanting to eat at every
      food place we passed ( for someone who does'nt eat by mouth he knows
      evevery place to eat). I finally got him to go to sleep after we were
      home for almost 2 hours.

      Hope all is well with everyone.

      Take care,
      Darlene








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    • Dana
      Hi Darlene!! Congrats on everything going well with Kyle s surgery. It sounds like he is in a whole new world. Best of luck to Kyle. Dana
      Message 34 of 34 , Nov 18, 2007
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        Hi Darlene!! Congrats on everything going well with Kyle's surgery.
        It sounds like he is in a whole new world. Best of luck to Kyle. Dana




        In Myotubular_Myopathy@yahoogroups.com, "Darlene" <dm4462@...> wrote:
        >
        > Kyle had is surgery yesterday. Everything went great.
        > He was in and out in less than an hour. When he came
        > two he wanted to go home. The first thing he asked for
        > was the tv then some french fries. He had the nurses
        > laughing the whole time we were there. Today he has
        > complained that things are too loud and hasn't stopped
        > talking since he woke up this morning.
        >
        > Hope all is well with everyone.
        >
        > Take care,
        > Darlene
        >
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