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7267Re: [Myotubular_Myopathy] Information Point Newsletter

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  • toni.abram1@btopenworld.com
    Oct 25 6:21 AM
      Absolutely, the newsletter is for and about anyone with CNM / MTM and all stories, no matter how large or small are great.

      The ideas I gave were just examples. Other examples might be a child reaching a particular milestone or if anyone wants to include a birthday or special celebration.

      Photos are always good because they help to illustrate a piece but are not essential.

      Thank you for asking.

      Toni xx

      Sent using BlackBerry® from Orange

      From: talkpod@...
      Date: Sun, 25 Oct 2009 09:15:31 -0400
      To: <Myotubular_Myopathy@yahoogroups.com>
      Subject: Re: [Myotubular_Myopathy] Information Point Newsletter


      can we share academic achievements?

      -----Original Message-----
      From: TONI ABRAM <toni.abram1@ btopenworld. com>
      To: Myotubular_Myopathy @yahoogroups. com
      Sent: Sun, Oct 25, 2009 6:27 am
      Subject: [Myotubular_ Myopathy] Information Point Newsletter

      Work is underway on the next Information Point newsletter, which will be issued in December and I am now looking for articles.  
      Maybe you have achieved something that you would like to share with the world, been involved in a fundraising event or are planning an event you would like to publicise, met other families, discovered a new piece of equipment that you think would benefit others or undergone a medical treatment that you would like to tell people about. 
      If you have a story you would like to share, please send this to me by the end of November for inclusion.
      The Information Point for Centronuclear and Myotubular Myopathy Information ~ Support ~ Awareness
      Visit our Website at www.centronuclear. org.uk 

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