7267Re: [Myotubular_Myopathy] Information Point Newsletter
- Oct 25 6:21 AMAbsolutely, the newsletter is for and about anyone with CNM / MTM and all stories, no matter how large or small are great.
The ideas I gave were just examples. Other examples might be a child reaching a particular milestone or if anyone wants to include a birthday or special celebration.
Photos are always good because they help to illustrate a piece but are not essential.
Thank you for asking.
Sent using BlackBerry® from OrangeFrom: talkpod@...Date: Sun, 25 Oct 2009 09:15:31 -0400To: <Myotubular_Myopathy@yahoogroups.com>Subject: Re: [Myotubular_Myopathy] Information Point Newslettercan we share academic achievements?
From: TONI ABRAM <toni.abram1@ btopenworld. com>
To: Myotubular_Myopathy @yahoogroups. com
Sent: Sun, Oct 25, 2009 6:27 am
Subject: [Myotubular_ Myopathy] Information Point Newsletter
Work is underway on the next Information Point newsletter, which will be issued in December and I am now looking for articles.
Maybe you have achieved something that you would like to share with the world, been involved in a fundraising event or are planning an event you would like to publicise, met other families, discovered a new piece of equipment that you think would benefit others or undergone a medical treatment that you would like to tell people about.If you have a story you would like to share, please send this to me by the end of November for inclusion.ToniThe Information Point for Centronuclear and Myotubular Myopathy Information ~ Support ~ Awareness
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