6116Re: [Myotubular_Myopathy] Re: hello
- Jun 17, 2008
my son have x-linked also,
i have been a year loosing the contact and adress to this group, but i found it again now.. :)
so im strongly back,
markus is doing well.a few problems with a new tracheostomy tube, but with some advice i get here im sure he will have the best tube for him.
its really great to see a active forum like this :)
all the best mai-lis hagen
--- On Wed, 12/5/07, Sheallyn <sheallyn73@...> wrote:
From: Sheallyn <sheallyn73@...>
Subject: [Myotubular_Myopathy] Re: hello
Date: Wednesday, December 5, 2007, 8:44 PM
Welcome to the group! What form of MTM does your son have, our little
one Kaden is X Linked.
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