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6116Re: [Myotubular_Myopathy] Re: hello

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  • mai-lis Hagen
    Jun 17, 2008
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      my son have x-linked also,

      i have been a year loosing the contact and adress to this group, but i found it again now.. :)

      so im strongly back,

      markus is doing well.a few problems with a new tracheostomy tube, but with some advice i get here im sure he will have the best tube for him.

      its really great to see a active forum like this :)


      all the best mai-lis hagen

      --- On Wed, 12/5/07, Sheallyn <sheallyn73@...> wrote:

      From: Sheallyn <sheallyn73@...>
      Subject: [Myotubular_Myopathy] Re: hello
      To: Myotubular_Myopathy@yahoogroups.com
      Date: Wednesday, December 5, 2007, 8:44 PM

      Welcome to the group! What form of MTM does your son have, our little
      one Kaden is X Linked.

      take care,

      Sheallyn :<)

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