5476Re: Introducing Myself
- Jan 2, 2008--- In Myotubular_Myopathy@yahoogroups.com, "Shannon" <smashintwo@...>
>I would love to talk to you!!!
> Hello Virginia,
> Welcome to this group. It is a fantastic support. Connie (from Texas)
> called me last night to tell me of your post. My son Javad is 6yrs old.
> We live in the Portland, OR area, not far from you. I will be happy to
> send you my number.
> It sounds like your son is doing well...
Yes Christopher is doing well, we had a care conference today so we're
working out a tentative plan for his homecoming. Tomorrow he will
have his first trach change. We are hopeful he will be moving out of
the ICU next week.
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