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5452Re: [Myotubular_Myopathy] hello

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  • Toni Abram
    Dec 24, 2007
      Hello Kami and Kaleb
      Welcome to the group.
      Lovely to hear the news about your lil guy.
      Merry Christmas.
      Toni xx
      ----- Original Message -----
      Sent: Thursday, December 20, 2007 5:27 AM
      Subject: [Myotubular_Myopathy] hello

      today my lil guy started to move head by himself! we were told with
      the severity of this muscel disease he would no be venalator dependant
      and he is doing great breathing on his own without anyhing and that is
      a plus! we live day by day with kaleb and to the fullest!

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