- Dec 3, 2007Hi Mai-lis!!
My name is Dana and I have 2 sons. Corey is 18 yrs old and unaffected
and Cason is 4 1/2 yrs old with MTM and doing great. I am still
debating on sending Cason to school next year. I am sure you can relate
to me being nervous since your son will be starting school next year
also. Cason is also ventilated only at night. I look forward to hearing
more about you and Markus and am glad you found us!!
--- In Myotubular_Myopathy@yahoogroups.com, "mailis.hagen"
> my name is mai-lis hagen.
> i live in norway and have a son name markus, he is 5 yrs old living
> with myotubular myopathy.. school boy next year.. he is ventilated
> night and all day without. he is doing great :)
> it was great to find a site like this :)
> wishing you all the best.. please email me if there is somebody out
> there : kr.sandjenta@...
> see also pictures under markus in pictures
- << Previous post in topic Next post in topic >>