51Re: [Myotubular_Myopathy] Carnitine
- Jun 3 1:32 PMHi,
Yes We have been using Carnitor (prescription brand) with Jay Jay for 3
years. He also gets CO-Q 10. I believe they help him (they are protein
absorbers) but there is no way to verify this. Again, it certainly
doesn't harm him. If any of your children have a Carnitine deficiency then
this will help them dramatically. Otherwise it probably does nothing.
Bob Sherry and Jay Jay
<dhahjh@yahoo. To: Myotubular_Myopathy@yahoogroups.com
Subject: [Myotubular_Myopathy] Carnitine
Hello all. I have been doing some research on the use of carnitine
supplements. I am curious if any of you have tried this with your
sons and what the results were. Thank you.
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