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3623RE: [Myotubular_Myopathy] Welcome Omra

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  • Wendy
    Oct 31, 2006

      Dear Omra,

      You have definitely come to the right place! We are a friendly lot who are willing to help answer questions and give support when it’s needed.  Welcome to this fabulous group!  My personal experience is that the rewards that a child with MTM gives us far outweigh any doubts or fears – as you will know, they are usually such happy, undemanding children, despite everything th

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