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3401RE: [Myotubular_Myopathy] update on regan and marconi

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  • Wendy
    Sep 11, 2006
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      Hi Rachel, Moz and boys

      So pleased to hear that the little ones are doing so very well.  Hope the results of the videofluroscopy are encouraging – Zak’s definitely improved with time.  Do you thicken his fluids with Vitaquick – as this helps too.  Also freezing cold fluids have higher viscosity than room temperature

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