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2Re: [Myotubular_Myopathy] Newly Diagnosed

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  • tifny1972@aol.com
    Feb 13 5:36 PM
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      Hello. I am an occupational therapist working with children with various
      disabilities. I have worked very closely with a boy, who is now 3, since he
      was 17 months old. If you have any questions, feel free to email me. I will
      answer to the best of my ability. I had never heard of myotubular myopathy
      before working with this sweet little boy. Let me know if you need anything.
      Tiffany
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