2Re: [Myotubular_Myopathy] Newly Diagnosed
- Feb 13, 2001Hello. I am an occupational therapist working with children with various
disabilities. I have worked very closely with a boy, who is now 3, since he
was 17 months old. If you have any questions, feel free to email me. I will
answer to the best of my ability. I had never heard of myotubular myopathy
before working with this sweet little boy. Let me know if you need anything.
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