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17If I can help.........

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  • joynkathy <joynkathy@yahoo.com>
    Jan 2, 2003
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      To anyone interested.....
      I was the parent of a child with Myotubular Myopathy. My son Bill,
      was born in 1977 and lived until 1997.
      If I can be of any assistance to anyone seeking information,
      suggestions or support, please feel free to email me.

      Kathy M.
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