1533Re: More info for Austin!
- Dec 6, 2004Hi Carolyn,
I read what Darlene said and totally agree. I also take Javad to
physical therapy at the hospital (rehab program) every other
week and speech and water therapy every other week (right now
Javad is training for a wheelchair, sp we haven't done water
therapy for awhile, but he LOVES it!)
We also do the breathing treatment three times a day, but when
he is sick they can be more often (and usually are!) The bi-pap is
awesome (as I've said before) and has really ehlped Javad get
stronger! W didn't think he needed it, but now we are glad that we
It is frustrating that the doctors don't seem to knwo more, but as
Darlene said this is very rare and the doctors have VERY old
information and often don't think theres much hope. These boys
are proof that is wrong!!!
I think Darlene's Infantand Toddler program is similar to the
program we get through the county . We have also gone through
the local MDA office.
I hope that this has helped....As I said before, you are welcome
to contact me personally. I am also sure that our pulmo would
talk to Ausitn's dr. if they had questions.
Talk to you soon!
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