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120Re: [Myotubular_Myopathy] Number of People with Centronuclear Myopathy

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  • Toni Abram
    Oct 20, 2003
      Thanks Gary
      If I get a definite answer, I will let you know.
      ----- Original Message -----
      From: Gary Beck
      Sent: Sunday, October 19, 2003 3:07 PM
      Subject: Re: [Myotubular_Myopathy] Number of People with Centronuclear Myopathy

      Hi Toni,

      I don't know exactly but I read somewhere that there were only 200 cases in
      the whole of the USA, Canada and  Europe, as for the UK, I don't know.  We
      are always asked this question too.  Hope you find out - it will be
      interesting to hear.

      Take Care

      Gary Beck

      >From: "Toni Louise Abram" <toni.abram1@...>
      >Reply-To: Myotubular_Myopathy@yahoogroups.com
      >To: Myotubular_Myopathy@yahoogroups.com
      >Subject: [Myotubular_Myopathy] Number of People with Centronuclear Myopathy
      >Date: Thu, 16 Oct 2003 19:56:02 -0000
      >I have been asked a question that I do not know the answer to.
      >Can anyone help?
      >How many people are there in the UK and worldwide with this condition.
      >The Centronuclear and Myotubular Myopathy Information Point

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