This is a group that cares about challenging the myths about 'CFS' and ME and isn't prepared to accept how things are now; where people with ME are abused/neglected etc. You wont hear the same old 'I have a miracle cure for 'ME/CFS'' and 'oh I am just so tired!' and 'FM/Lyme/Candida is pretty much the same illness' and 'ME/CFS' is helped by exercise isn't it?' and 'aren't the CDC doing a great job to help us now?' stuff here! We know that knowledge is power and that debunking these myths is really important. You'll be sent the group's new M.E. Manifesto when you apply for membership, please read and evaluate it carefully!
Join up and tell us a little bit about yourself when you are able, or just jump right in and start replying to posts if you'd prefer. Anyone with an interest in improving M.E. advocacy or who has M.E. is welcome.
BUT: Anyone thinking of joining just to talk about an 'amazing miracle treatment' - please don't! Basically, if you've come up with an easy answer, you have NO IDEA what the actual question is. M.E. is NOT 'CFS' or 'ME/CFS'! Genuine members only please.
PLEASE also ignore ALL the silly ads for 'fatigue' treatments on this site they are NOT vetted or recommended by this group in any way.
Note: It is important to be aware that M.E. and CFS are not synonymous terms. See What is M.E.? for more information on all aspects of Myalgic Encephalomyelitis.
- Neurological Disorders
- Dec 19, 2004
- This is a restricted group.
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