I really feel for you and wish there was something I could do. I am glad that Zach got a pass to go to
the zoo. Those kinds of things really help. I remember Shawn asking the doctor for permission to go to
the hospital cafeteria for a change of scenery.
I'm glad that they are doing all the testing while he continues to be an inpatient. Once you get home,
maybe you can settle down there without a million doctors appointments and tests.
Great going Sammy. I'm glad he and the girls are doing well. How are you holding up?
I will continue to keep you folks in my thoughts.
> Zachary is still not home yet. We are hoping it will be in about a week
> but we've had so many discharge dates that I won't count my chickens yet.
> he has been getting acidotic again even with the acetate in his IV daily.
> Also having some new stomach pain which has stopped the advancement of his
> J tube feeds. We are about 1/4 of the way to getting him off TPN.
> originally our goal was to keep him in until he tolerated 50% of his feeds
> by J tube and the rest through IV but our surgeon is not sure that will
> happen soon enough. Insurance is really up tight about this and almost
> decertified him today. Have I told you guys lately what I think of Humana