I know I should have thought of this earlier.
- Hello, I am Jennifer Gawalek mother to Megan (almost three). Megan was
recently diagnosed by Dr. Cohen with mitochondrial encephalomyopathy. He
said he feels it is complexes 1 and 4, but we haven't biopsied yet. Anyway,
he made the recommendation for IVIG. (Megan is TPN dependent due to chronic
intestinal pseudo obstruction). I feel we have topped out on all other
treatments, and at this point I am desperate to try this. If anyone has used
IVIG in reference to mito and dysmotility would you please respond with a
short synopsis that I can use to try to convince her "somewhat stubborn" GI
doctor to consider this as a treatment. I, of course will black out all
names. Thank you so much for your help. I really appreciate it.