Turning white as a ghost and getting a headache/doesn't last long??
- Yesterday at school Joey's kindergarten teacher send Joey to the
nurse because he looked VERY pale. In the nurses office they sat him
down and had him take about 8 long breaths, which brought the color
back to him. Then he seemed to do just fine.
Yet then last night just before bedtime he did it again. This time
he held his head(said his brain hurt). I sat him down and had him
take deep breaths. I could literally see the color return to his
face. And he said his headache went away.
He is not sick at all. No colds, no congestion!!
Should I be concerned? I hate running him to the doctor so often,
since it is cold and flu season. They did dx. him with asthma about
three years ago. Which I do not think he has TRUE asthma, I think
it is all his Laryngiamalasia(sp). And three years ago the
discovered mold in out therapy room at school. So after we moved
him out of there, his weasing went away!
Any help would be GREAT!!!
Tamara(Mommy of Joey almost 6 years old, on the 22nd)
Kinda sounds like a migrane to me. Migranes often make you very nausious (sp?) wich could explain his paleness. When Grace gets them she is often very pale and still, she often holds her head. We actually thought the first time she had on that it was a ear infection, since she looked so sick.
She is now on Periactin to prevent them. (It is also used for appetite stimulant and is an antihistamine wich helps with allergies.)
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- Tamara, i couldnt believe when i saw your post, my Matt last Friday
was rushed to the ER, he was at school, gym class turned white as a
ghost is the way the teachers put it, he had dark circles around his
eyes and was lethargic, when asked he said his head hurt they took
him to the nurse, his pulse rate was 150, and his blood pressure was
high too, when he layed down the headache would start going away if
he sat back up it would start in again, they called me and we went
to the ER, they spoke with his pediatrician who gave the ER doc a
crash course in mito, they had a cardiac specialist come to the er
and he did a ekg, (Matt was just to cardiologist at ST Christophers
hosp. 2 weeks ago for ekg and echo which were just fine)cardiologist
and ER doc after speaking with pediatrician about mito conclude that
the migrain headache, pulse and pressure so high, Matt was possibly
heading for a stroke, they said his lactic acids were high, and this
was a full blown mito crash!! To top this all off yesterday,
Tuesday, we got a call from Matts neuro/metobolic specialist who
just got Matts new MRI results and there are 2 new white matter
lesions in his front lobe (he already has 4 lesions in left lobe-
white matter which also spread into his gray matter) they have been
the same no change since age 18 months of age. We've know since
last May that Matt has been going through some progression of mito,
but this has all been a ton of bricks this past week. Tamara call
the doctor everyday if you have too, thats what they are there
for!!! Better to hear that its nothing to worry about, than to
ignore it and find out later its been something all along. I say
dont ignore this because back in May, when this progression started
it was small, it was little things,things i felt the docs would tell
me was nothing, Matt was more tired, (but it was spring and there
were more activities), then summer hit (it was the heat, it was he
has more therapies in the summer and its tiring him out), then he
couldnt peddle his bike anymore, and the small headaches were
getting worse, so i had to call the docs cause i knew those little
signs that were spread out over a 4 month period, and they were
sporatic this was not everyday, became a big something, and now i
look back and wonder if i would have just called right at the
beginning would Matt be going through so much now. God only knows
that answer, but if i had it all to do over, i would and i do now
bug the docs for every little thing, and sometimes its nothing but
ive learned with mito most of the time it is something. Barb
- --- In Mito@yahoogroups.com, "fairgrovejoe" <fairgrovejoe@y...> wrote:
Collin had the same thing happening to him, and it progressed
with disorientation and dizziness. At night he was having extreme
sleeping issues also. He would turn WHITE or grayish white with or
without activity, and often had headaches. For him it turned out to
be related to high CO2 retention and O2 desaturations, possibly
related with the dysautonomia. We're not quite sure if it is
autonomic related or not. It could also be migraines happening with
Joey. Perhaps just call his mito specialist or neurologist to let
them know, they may want to see you sooner, especially if this
continues. Maybe it will just turn out to be an isolated occurance
with an oncoming virus or something. Blessings, Joni
> Yesterday at school Joey's kindergarten teacher send Joey to thehim
> nurse because he looked VERY pale. In the nurses office they sat
> down and had him take about 8 long breaths, which brought the colorabout
> back to him. Then he seemed to do just fine.
> Yet then last night just before bedtime he did it again. This time
> he held his head(said his brain hurt). I sat him down and had him
> take deep breaths. I could literally see the color return to his
> face. And he said his headache went away.
> He is not sick at all. No colds, no congestion!!
> Should I be concerned? I hate running him to the doctor so often,
> since it is cold and flu season. They did dx. him with asthma
> three years ago. Which I do not think he has TRUE asthma, I think
> it is all his Laryngiamalasia(sp). And three years ago the
> discovered mold in out therapy room at school. So after we moved
> him out of there, his weasing went away!
> Any help would be GREAT!!!
> Tamara(Mommy of Joey almost 6 years old, on the 22nd)