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Turning white as a ghost and getting a headache/doesn't last long??

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  • fairgrovejoe
    Yesterday at school Joey s kindergarten teacher send Joey to the nurse because he looked VERY pale. In the nurses office they sat him down and had him take
    Message 1 of 6 , Mar 1, 2005
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      Yesterday at school Joey's kindergarten teacher send Joey to the
      nurse because he looked VERY pale. In the nurses office they sat him
      down and had him take about 8 long breaths, which brought the color
      back to him. Then he seemed to do just fine.
      Yet then last night just before bedtime he did it again. This time
      he held his head(said his brain hurt). I sat him down and had him
      take deep breaths. I could literally see the color return to his
      face. And he said his headache went away.
      He is not sick at all. No colds, no congestion!!
      Should I be concerned? I hate running him to the doctor so often,
      since it is cold and flu season. They did dx. him with asthma about
      three years ago. Which I do not think he has TRUE asthma, I think
      it is all his Laryngiamalasia(sp). And three years ago the
      discovered mold in out therapy room at school. So after we moved
      him out of there, his weasing went away!
      Any help would be GREAT!!!
      Thanks!
      Tamara(Mommy of Joey almost 6 years old, on the 22nd)
    • Carrie Jones
      Kinda sounds like a migrane to me. Migranes often make you very nausious (sp?) wich could explain his paleness. When Grace gets them she is often very pale and
      Message 2 of 6 , Mar 1, 2005
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        Kinda sounds like a migrane to me.   Migranes often make you very nausious (sp?) wich could explain his paleness.  When Grace gets them she is often very pale and still, she often holds her head.  We actually thought the first time she had on that it was a ear infection, since she looked so sick. 

        She is now on Periactin to prevent them.  (It is also used for appetite stimulant and is an antihistamine wich helps with allergies.)

        Best wishes

        Carrie



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      • VisibleWorship@aol.com
        Just a thought off the cuff here... but I would maybe check his sugar and/or blood pressure too... deb...mom to four great kids and wife to one amazing guy!
        Message 3 of 6 , Mar 1, 2005
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          Just a thought off the cuff here...
           
          but I would maybe check his sugar and/or blood pressure too...
           
          deb...mom to four great kids and wife to one amazing guy!
          www.LifeofLoveProject.org
          www.debwells.com
        • Laura
          Does he have autonomic issues? Laura
          Message 4 of 6 , Mar 1, 2005
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            Does he have autonomic issues?

            Laura
          • matts_mom96
            Tamara, i couldnt believe when i saw your post, my Matt last Friday was rushed to the ER, he was at school, gym class turned white as a ghost is the way the
            Message 5 of 6 , Mar 2, 2005
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              Tamara, i couldnt believe when i saw your post, my Matt last Friday
              was rushed to the ER, he was at school, gym class turned white as a
              ghost is the way the teachers put it, he had dark circles around his
              eyes and was lethargic, when asked he said his head hurt they took
              him to the nurse, his pulse rate was 150, and his blood pressure was
              high too, when he layed down the headache would start going away if
              he sat back up it would start in again, they called me and we went
              to the ER, they spoke with his pediatrician who gave the ER doc a
              crash course in mito, they had a cardiac specialist come to the er
              and he did a ekg, (Matt was just to cardiologist at ST Christophers
              hosp. 2 weeks ago for ekg and echo which were just fine)cardiologist
              and ER doc after speaking with pediatrician about mito conclude that
              the migrain headache, pulse and pressure so high, Matt was possibly
              heading for a stroke, they said his lactic acids were high, and this
              was a full blown mito crash!! To top this all off yesterday,
              Tuesday, we got a call from Matts neuro/metobolic specialist who
              just got Matts new MRI results and there are 2 new white matter
              lesions in his front lobe (he already has 4 lesions in left lobe-
              white matter which also spread into his gray matter) they have been
              the same no change since age 18 months of age. We've know since
              last May that Matt has been going through some progression of mito,
              but this has all been a ton of bricks this past week. Tamara call
              the doctor everyday if you have too, thats what they are there
              for!!! Better to hear that its nothing to worry about, than to
              ignore it and find out later its been something all along. I say
              dont ignore this because back in May, when this progression started
              it was small, it was little things,things i felt the docs would tell
              me was nothing, Matt was more tired, (but it was spring and there
              were more activities), then summer hit (it was the heat, it was he
              has more therapies in the summer and its tiring him out), then he
              couldnt peddle his bike anymore, and the small headaches were
              getting worse, so i had to call the docs cause i knew those little
              signs that were spread out over a 4 month period, and they were
              sporatic this was not everyday, became a big something, and now i
              look back and wonder if i would have just called right at the
              beginning would Matt be going through so much now. God only knows
              that answer, but if i had it all to do over, i would and i do now
              bug the docs for every little thing, and sometimes its nothing but
              ive learned with mito most of the time it is something. Barb
            • loerco333
              ... Hi Tamara, Collin had the same thing happening to him, and it progressed with disorientation and dizziness. At night he was having extreme sleeping issues
              Message 6 of 6 , Mar 2, 2005
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                --- In Mito@yahoogroups.com, "fairgrovejoe" <fairgrovejoe@y...> wrote:
                >

                Hi Tamara,
                Collin had the same thing happening to him, and it progressed
                with disorientation and dizziness. At night he was having extreme
                sleeping issues also. He would turn WHITE or grayish white with or
                without activity, and often had headaches. For him it turned out to
                be related to high CO2 retention and O2 desaturations, possibly
                related with the dysautonomia. We're not quite sure if it is
                autonomic related or not. It could also be migraines happening with
                Joey. Perhaps just call his mito specialist or neurologist to let
                them know, they may want to see you sooner, especially if this
                continues. Maybe it will just turn out to be an isolated occurance
                with an oncoming virus or something. Blessings, Joni






                > Yesterday at school Joey's kindergarten teacher send Joey to the
                > nurse because he looked VERY pale. In the nurses office they sat
                him
                > down and had him take about 8 long breaths, which brought the color
                > back to him. Then he seemed to do just fine.
                > Yet then last night just before bedtime he did it again. This time
                > he held his head(said his brain hurt). I sat him down and had him
                > take deep breaths. I could literally see the color return to his
                > face. And he said his headache went away.
                > He is not sick at all. No colds, no congestion!!
                > Should I be concerned? I hate running him to the doctor so often,
                > since it is cold and flu season. They did dx. him with asthma
                about
                > three years ago. Which I do not think he has TRUE asthma, I think
                > it is all his Laryngiamalasia(sp). And three years ago the
                > discovered mold in out therapy room at school. So after we moved
                > him out of there, his weasing went away!
                > Any help would be GREAT!!!
                > Thanks!
                > Tamara(Mommy of Joey almost 6 years old, on the 22nd)
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