Re: Swallowing/feeding update
- -Hi Darla
I'd be careful with ANY oral feeding. In fact, I'd actually
encourage you to focus on self-feeding rather than spoon feeding at
this point. In our case, Heather opened her mouth to eat even if she
was too tired to swallow, and we'd find baby food drooling out for a
long time, plus in her nose. That didn't usually happen if we let
her play with the food and control it herself. Plus, aspirating food
could make her more defensive and could cause bigger problems.
Heather does a better job taking tastes from a toothbrush than from a
spoon. (I know, big "ick" factor seeing food on a toothbrush, but it
How frustrating for you. Does Zipporrah enjoy eating and drinking?
We tried thick-it in juice and it was never a big hit. Are you
feeding for nutrition or oral motor stim? Heather used to be
on "tastes" and when I asked how much a taste was the OT told me 1/8
to 1/4 of a teaspoon!
Heidi, Heather's Mom
-- In Mito@yahoogroups.com, "Darla Klein" <honeybear50317@m...> wrote:
> Zipporrah had a video swallow with an OT at Mayo yesterday andit
> showed issues with liquids in particular. When swallowing liquidsshe would
> hold it temporarily in her throat for approximately 3-5 secondsbefore
> thoroughly swallowing it. The OT said that this could be a bigpotential
> for aspiration problems. They also fed her applesauce which sheseemed to
> handle, but only did about tiny 4-5 bites and the OT wonders withfatigue,
> illness, or etc. if the food could also be problematic. They feltshe was
> protecting her airway enough though with the applesauce that Icould begin
> to try feeding her some daily. The told me to stop if she began tocough or
> gag much and also not to force her but only give her what sheaccepts
> readily so she has some control over it since it is a scary issuefor her.
> WELL... last evening and this morning I tried to feed herGerber first
> stage Oatmeal with applesauce baby food and found that within 2-3bites both
> times she started to cough and have difficulty dealing with it inher mouth.
> This was a thicker consistency than she had during the swallowstudy and
> now I am wishing they tried different textures and thicknesses tosee how
> she did with them. Also, last night she was coughing and moregaggy during
> her sleep than usual and I am wondering how safe it really is forher!
> I plan to discuss this with her GI and physiatrist as well atthe OT
> that did the study to let them know what she is doing to see howsafe it is
> or to find out what types of baby foods to try other thanapplesauce. (I
> know it is thinner than what we used for sure!) But then liquidsare hard
> for her too, so it seems like there may be a fine line of safetyversus
> dangerous for her!Tirzah,
> Darla: mommy to Asenath, Zipporrah, Luke, Leah, Rachael, Isaac,
> Kezia, and Marquismigraines,
> Darla: mommy to: Asenath (4) Mito, CNS Vasculitis, strokes,
> seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays,asthma
> Zipporrah (7 mon.) Mito, strokes, SID, G-tube, asthma, trachissues,
> disautonomy, hypo & hypertonicity, migraines