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Re: [Mito] Mito cocktail

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  • Tommie & Lisa Horsley
    Deb, I get Jenny Co Q-10 150 Mg at walmart. $19.00 for 30 Soft gels. Easter Seals pays for Jenny s. Hope your weekend is great! Lisa Horsley
    Message 1 of 18 , Jun 1, 2002
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      Deb,
      I get Jenny Co Q-10 150 Mg at walmart. $19.00 for 30 Soft gels. Easter Seals pays for Jenny's.
      Hope your weekend is great!
      Lisa Horsley
       
      ----- Original Message -----
      Sent: Saturday, June 01, 2002 12:24 PM
      Subject: Re: [Mito] Mito cocktail

      In a message dated 5/31/02 10:26:33 PM Central Daylight Time, sbube@... writes:


      Has anyone found a cheep website to order the CO-Q10?


      The best deal I have found and someone here told me about it...you can get it at Sams...I get the 50mg ones...there are 120 in a jar for  $17...before I had got the cheapest at walmart and walgreens and I was getting 50mg with 30 pills for $15...so quite a savings...

      deb

      Please contact mito-owner@yahoogroups.com with any problems or questions.

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    • VisibleWorship@aol.com
      In a message dated 5/31/02 10:26:33 PM Central Daylight Time, ... The best deal I have found and someone here told me about it...you can get it at Sams...I get
      Message 2 of 18 , Jun 1, 2002
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        In a message dated 5/31/02 10:26:33 PM Central Daylight Time, sbube@... writes:


        Has anyone found a cheep website to order the CO-Q10?


        The best deal I have found and someone here told me about it...you can get it at Sams...I get the 50mg ones...there are 120 in a jar for  $17...before I had got the cheapest at walmart and walgreens and I was getting 50mg with 30 pills for $15...so quite a savings...

        deb
      • Melody
        Can someone please list what may be part of a mito cocktail? I ve searched back a few hundred messages and couldn t find it. Thank you! :) Melody (Stephen 10
        Message 3 of 18 , Aug 2, 2007
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          Can someone please list what may be part of a mito cocktail?
          I've searched back a few hundred messages and couldn't find it. Thank
          you! :) Melody (Stephen 10 and Natalie 6)
        • Mom2JettandJude
          http://umdf.org/mito_info/treatment.aspx#Supplements ... From: Melody To: Mito@yahoogroups.com Sent: Thursday, August 02, 2007 3:54 PM Subject: [Mito] Mito
          Message 4 of 18 , Aug 2, 2007
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            ----- Original Message -----
            From: Melody
            Sent: Thursday, August 02, 2007 3:54 PM
            Subject: [Mito] Mito cocktail

            Can someone please list what may be part of a mito cocktail?
            I've searched back a few hundred messages and couldn't find it. Thank
            you! :) Melody (Stephen 10 and Natalie 6)


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          • smartgsh@aol.com
            Angelee s has Levocaritine 100mg. 3x s a day LQ-10 2x s a day and a Riboflavin pill which is a b vitamin I ve heard there are other things that make up a Mito
            Message 5 of 18 , Aug 2, 2007
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              Angelee's has Levocaritine 100mg. 3x's a day LQ-10 2x's a day and a Riboflavin pill which is a b vitamin I've heard there are other things that make up a Mito Cocktail let me know what you find out. Sorry I did not call you back this morning I've had a really rough day I have got to find some help to much on one person.  
              Tiffany




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            • ilikemonstertrucks
              its very individual, doses and meds/suppliments are decided based on a patients specific disorder, symptoms, tolerance, and any other factors that could affect
              Message 6 of 18 , Aug 2, 2007
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                its very individual, doses and meds/suppliments are decided based on a
                patients specific disorder, symptoms, tolerance, and any other factors
                that could affect it...

                The usual coctail includes Carnitor, CoQ10, Vitamins B1 and B2, Alpha
                Lipoic Acid and Creatine.

                other thigns that can be included are Vitamins C and E and K (less
                often), Biotin, and other suppliments depending on teh patient.

                Its definatley not something to put together yourself though, you
                should have the meds and doses reccomended by a specialist who is
                experienced with mito...

                Keely

                www.caringbridge.org/visit/brandonandtyler


                --- In Mito@yahoogroups.com, "Melody" <sharnholmes@...> wrote:
                >
                > Can someone please list what may be part of a mito cocktail?
                > I've searched back a few hundred messages and couldn't find it. Thank
                > you! :) Melody (Stephen 10 and Natalie 6)
                >
              • Laura
                ... They re listed on the UMDF site. But ours varies a bit depending on the person. Our basic components are pretty common. We use a multivitamin with iron,
                Message 7 of 18 , Aug 2, 2007
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                  --- In Mito@yahoogroups.com, "Melody" <sharnholmes@...> wrote:
                  >
                  > Can someone please list what may be part of a mito cocktail?
                  >

                  They're listed on the UMDF site. But ours varies a bit depending on the person. Our basic
                  components are pretty common. We use a multivitamin with iron, Carnitor, CoQ10, Vitamin
                  C, Vitamin E, alpha-lipoic acid, selenium, niacinamide, and then various B vitamins. The Bs
                  vary depending on the person in our family. I take a B-150 complex. My son takes B2
                  (riboflavin) and B12.

                  Laura
                • Lisa Higgins
                  Would you please share what supplements your child is on in their mito cocktail? Just trying to get a good idea if there is anything else I should ask about.
                  Message 8 of 18 , May 26 12:38 PM
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                    Would you please share what supplements your child is on in their mito
                    cocktail? Just trying to get a good idea if there is anything else I
                    should ask about. Ainsley is on CoQ10, carnitine, lipoic acid and
                    riboflavin. We are planning on adding vitamin E shortly.

                    Thanks!

                    Lisa
                    Mom to Ainsley
                    Www.carepages.com/carepages/AinsleyPaige

                    Sent from my iPhone
                  • Meagan
                    Sophie takes Carnitine, B6, Co-Q-10.  Docs also want her taking riboflavin and thiamine but she doesn t tolerate them.  Meagan (mom) Alison, 11, Asperger s
                    Message 9 of 18 , May 26 5:15 PM
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                      Sophie takes Carnitine, B6, Co-Q-10.  Docs also want her taking riboflavin and thiamine but she doesn't tolerate them. 

                      Meagan (mom)
                      Alison, 11, Asperger's
                      Sophia, 5, Mito


                      --- On Tue, 5/26/09, Lisa Higgins <lnhiggins@...> wrote:

                      From: Lisa Higgins <lnhiggins@...>
                      Subject: [Mito] Mito cocktail
                      To: "<Mito@yahoogroups.com> <mito@yahoogroups.com> <mito@yahoogroups.com>" <Mito@yahoogroups.com>
                      Date: Tuesday, May 26, 2009, 3:38 PM

                      Would you please share what supplements your child is on in their mito 
                      cocktail?  Just trying to get a good idea if there is anything else I 
                      should ask about.  Ainsley is on CoQ10, carnitine, lipoic acid and 
                      riboflavin.  We are planning on adding vitamin E shortly.

                      Thanks!

                      Lisa
                      Mom to Ainsley
                      Www.carepages.com/carepages/AinsleyPaige

                      Sent from my iPhone


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                    • swgowland
                      Jacob takes in his Mito Cocktail: CoQ10 Creatine (creatinine monohydrate powder) Riboflavin Thiamine Alpha Lipoic Acid Vitamin C It is compounded with a
                      Message 10 of 18 , May 26 9:18 PM
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                        Jacob takes in his Mito Cocktail:
                        CoQ10
                        Creatine (creatinine monohydrate powder)
                        Riboflavin
                        Thiamine
                        Alpha Lipoic Acid
                        Vitamin C

                        It is compounded with a chocolate flavour which allows him to take the whole thing in a 1 tsp dose twice a day with an oral syringe.

                        Our Canadian Mito doc, Dr. Mark Tarnopolsky, says some of his research has pointed to evidence that the CoQ10 works better in the presence of Creatine than when it is taken just on its own. (Creatine is a substance often used in muscle building, as well).

                        Hope this helps you out.

                        Suzanne (mom to Jacob mito complex 1 & 3)

                        --- In Mito@yahoogroups.com, Lisa Higgins <lnhiggins@...> wrote:
                        >
                        > Would you please share what supplements your child is on in their mito
                        > cocktail? Just trying to get a good idea if there is anything else I
                        > should ask about. Ainsley is on CoQ10, carnitine, lipoic acid and
                        > riboflavin. We are planning on adding vitamin E shortly.
                        >
                        > Thanks!
                        >
                        > Lisa
                        > Mom to Ainsley
                        > Www.carepages.com/carepages/AinsleyPaige
                        >
                        > Sent from my iPhone
                        >
                      • dawn pische
                        My son Josh is on a B-1 B-2 CoQ10 coctail.  He also take 2 carnitine tablets 3 times a day ... From: Lisa Higgins Subject: [Mito] Mito
                        Message 11 of 18 , May 27 12:28 AM
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                          My son Josh is on a B-1 B-2 CoQ10 coctail.  He also take 2 carnitine tablets 3 times a day

                          --- On Tue, 5/26/09, Lisa Higgins <lnhiggins@...> wrote:

                          From: Lisa Higgins <lnhiggins@...>
                          Subject: [Mito] Mito cocktail
                          To: "<Mito@yahoogroups.com> <mito@yahoogroups.com> <mito@yahoogroups.com>" <Mito@yahoogroups.com>
                          Date: Tuesday, May 26, 2009, 3:38 PM

                          Would you please share what supplements your child is on in their mito
                          cocktail? Just trying to get a good idea if there is anything else I
                          should ask about. Ainsley is on CoQ10, carnitine, lipoic acid and
                          riboflavin. We are planning on adding vitamin E shortly.

                          Thanks!

                          Lisa
                          Mom to Ainsley
                          Www.carepages. com/carepages/ AinsleyPaige

                          Sent from my iPhone

                        • bkhawlah
                          I live overseas permently and am planning to travel back this summer. I have already been told that there is no compounding pharmacist or way to prepare a mito
                          Message 12 of 18 , Jun 23, 2009
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                            I live overseas permently and am planning to travel back this summer. I have already been told that there is no compounding pharmacist or way to prepare a mito cocktail back home in the middle east. My doctor wanted me to have the liquid form ahipped to me monthly but liquids can't be shipped overseas. I suggested that I could get capsules that I would dissolve myself but my doctor does not feel that the capsule/tablet forms work as well---does anybody have any ideas for me?
                          • Wendy D
                            www.epic4health.com has gelcaps by Tishcon I believe and any form made by Tishcon is recommended by docs. I believe there are a number of people on list that
                            Message 13 of 18 , Jun 23, 2009
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                              www.epic4health.com has gelcaps by Tishcon I believe and any form made by Tishcon is recommended by docs. I believe there are a number of people on list that take gelcaps or tablets. 
                               
                                       Wendy
                              Mito411 Volunteer Coordinator 
                               
                               - Hali - 8
                               - Zoe - 7
                               - Colby - 5 (unspecified mito myopathy)
                               - Lily - 3
                               
                              -------Original Message-------
                               
                              From: bkhawlah
                              Date: 6/23/2009 6:02:51 PM
                              Subject: [Mito] Mito cocktail
                               
                              I live overseas permently and am planning to travel back this summer. I have already been told that there is no compounding pharmacist or way to prepare a mito cocktail back home in the middle east. My doctor wanted me to have the liquid form ahipped to me monthly but liquids can't be shipped overseas. I suggested that I could get capsules that I would dissolve myself but my doctor does not feel that the capsule/tablet forms work as well---does anybody have any ideas for me?
                               
                               
                               
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                            • thugthug81@yahoo.com
                              This is a serious question, do not want to get in this lengthy convo about health care, why can t you deduct your kids supplements on taxes? I know many
                              Message 14 of 18 , Mar 21, 2010
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                                This is a serious question, do not want to get in this lengthy convo about health care, why can't you deduct your kids supplements on taxes? I know many families who do...... Just curious

                                Sent via BlackBerry by AT&T


                                From: Pattie Curran <catholicmomof3@...>
                                Date: Sun, 21 Mar 2010 10:21:36 -0400
                                To: <Mito@yahoogroups.com>
                                Subject: [Mito] Mito cocktail

                                 

                                Just a note for those of you saying the gov't won't tell you what care
                                you can and can't have. What tests and treatments you can and can't
                                have. They already are telling us that we can't use our pretax money
                                to buy mito supplements prescribed by our doctors. The gov't already
                                tells us we can't deduct them from our taxes! It will only get worse
                                with gov't control growing! And you can bet these supplements won't be
                                covered under any gov't healthcare plan.

                                The gov't already tells Medicare patients what tests and meds they can
                                get. Ever seen the formulary lists?

                                Don't fool yourselves into thinking that bigger gov't means more
                                coverage and better care. It isn't free and they will soon have to
                                make cuts from one program to pay for the next just as they are
                                cutting Medicare by 500 billion to help pay for this bill along with
                                increased taxes.

                                Donyou think the Medicare cuts are going to give our seniors better
                                choices and more options? The same thing that is happening to them
                                will happen to us eventually.

                                What this bill does to the elderly in Medicare cuts will be done to
                                our children, too.

                                Pax Christi,
                                Pattie
                                "Charity for each other is the surest way to great holiness." ~Mother
                                Teresa

                              • Pattie Curran
                                You can deduct them but it is not legal to do so. If you get audited, then you will have to pay and it may include fines. Not all OTC meds are tax deductible
                                Message 15 of 18 , Mar 21, 2010
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                                  You can deduct them but it is not legal to do so. If you get audited, then you will have to pay and it may include fines. Not all OTC meds are tax deductible and to make it even more confusing, there are meds that you can purchase with a flex spending account that you can't deduct on your taxes! Go figure that one! We have lists that we print each year from our flex account managers. 

                                  In the end, you can deduct what you want to deduct. If you get caught deducting things that are not tax deductible you pay the price. 

                                  Pax Christi,
                                  Pattie
                                  "Charity for each other is the surest way to great holiness." ~Mother Teresa

                                  On Mar 21, 2010, at 10:29 AM, thugthug81@... wrote:

                                   

                                  This is a serious question, do not want to get in this lengthy convo about health care, why can't you deduct your kids supplements on taxes? I know many families who do...... Just curious

                                  Sent via BlackBerry by AT&T


                                  From: Pattie Curran <catholicmomof3@gmail.com>
                                  Date: Sun, 21 Mar 2010 10:21:36 -0400
                                  To: <Mito@yahoogroups. com>
                                  Subject: [Mito] Mito cocktail

                                   

                                  Just a note for those of you saying the gov't won't tell you what care
                                  you can and can't have. What tests and treatments you can and can't
                                  have. They already are telling us that we can't use our pretax money
                                  to buy mito supplements prescribed by our doctors. The gov't already
                                  tells us we can't deduct them from our taxes! It will only get worse
                                  with gov't control growing! And you can bet these supplements won't be
                                  covered under any gov't healthcare plan.

                                  The gov't already tells Medicare patients what tests and meds they can
                                  get. Ever seen the formulary lists?

                                  Don't fool yourselves into thinking that bigger gov't means more
                                  coverage and better care. It isn't free and they will soon have to
                                  make cuts from one program to pay for the next just as they are
                                  cutting Medicare by 500 billion to help pay for this bill along with
                                  increased taxes.

                                  Donyou think the Medicare cuts are going to give our seniors better
                                  choices and more options? The same thing that is happening to them
                                  will happen to us eventually.

                                  What this bill does to the elderly in Medicare cuts will be done to
                                  our children, too.

                                  Pax Christi,
                                  Pattie
                                  "Charity for each other is the surest way to great holiness." ~Mother
                                  Teresa

                                • thugthug81@yahoo.com
                                  We have our taxes prepared and are backed 100% and we are able to deduct 90% of my sons meds but let me be clear these are prescription grade supplements that
                                  Message 16 of 18 , Mar 21, 2010
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                                    We have our taxes prepared and are backed 100% and we are able to deduct 90% of my sons meds but let me be clear these are prescription grade supplements that are NOT OTC they are just not covered.
                                    Just my experience

                                    Sent via BlackBerry by AT&T


                                    From: Pattie Curran <catholicmomof3@...>
                                    Date: Sun, 21 Mar 2010 10:42:42 -0400
                                    To: Mito@yahoogroups.com<Mito@yahoogroups.com>
                                    Subject: Re: [Mito] Mito cocktail

                                     

                                    You can deduct them but it is not legal to do so. If you get audited, then you will have to pay and it may include fines. Not all OTC meds are tax deductible and to make it even more confusing, there are meds that you can purchase with a flex spending account that you can't deduct on your taxes! Go figure that one! We have lists that we print each year from our flex account managers. 

                                    In the end, you can deduct what you want to deduct. If you get caught deducting things that are not tax deductible you pay the price. 

                                    Pax Christi,
                                    Pattie
                                    "Charity for each other is the surest way to great holiness." ~Mother Teresa

                                    On Mar 21, 2010, at 10:29 AM, thugthug81@yahoo. com wrote:

                                     

                                    This is a serious question, do not want to get in this lengthy convo about health care, why can't you deduct your kids supplements on taxes? I know many families who do...... Just curious

                                    Sent via BlackBerry by AT&T


                                    From: Pattie Curran <catholicmomof3@gmail.com>
                                    Date: Sun, 21 Mar 2010 10:21:36 -0400
                                    To: <Mito@yahoogroups. com>
                                    Subject: [Mito] Mito cocktail

                                     

                                    Just a note for those of you saying the gov't won't tell you what care
                                    you can and can't have. What tests and treatments you can and can't
                                    have. They already are telling us that we can't use our pretax money
                                    to buy mito supplements prescribed by our doctors. The gov't already
                                    tells us we can't deduct them from our taxes! It will only get worse
                                    with gov't control growing! And you can bet these supplements won't be
                                    covered under any gov't healthcare plan.

                                    The gov't already tells Medicare patients what tests and meds they can
                                    get. Ever seen the formulary lists?

                                    Don't fool yourselves into thinking that bigger gov't means more
                                    coverage and better care. It isn't free and they will soon have to
                                    make cuts from one program to pay for the next just as they are
                                    cutting Medicare by 500 billion to help pay for this bill along with
                                    increased taxes.

                                    Donyou think the Medicare cuts are going to give our seniors better
                                    choices and more options? The same thing that is happening to them
                                    will happen to us eventually.

                                    What this bill does to the elderly in Medicare cuts will be done to
                                    our children, too.

                                    Pax Christi,
                                    Pattie
                                    "Charity for each other is the surest way to great holiness." ~Mother
                                    Teresa

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