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MitoAction Call- Anesthesia and Mito: Risks, Protocols and Precautions

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  • Alyssa Davi
    Please join us for MitoAction s monthly teleconference on the topic of Anesthesia & Mito: Risks, Protocols, and Precautions with Dr. Andre Mattman from
    Message 1 of 3 , Dec 1, 2011
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      Please join us for MitoAction's monthly teleconference on the topic of "Anesthesia & Mito: Risks, Protocols, and Precautions" with Dr. Andre Mattman from Vancouver, British Columbia, on Friday, Dec. 2, at 12 pm EST.
       
      Our follow-up discussion will be Tuesday, Dec. 13 at 12:30 pm EST with the Mito-Autism group, and allow a chance for parents of children with Mito-Autism to ask questions and share perspectives. Call into the toll-free teleconference at 1-866-414-2828, code 017921#
       
      If you would like to submit your question(s) for the call in advance, they can be e-mailed to Autism@....
       
      Calls on the link between ASD and mitochondrial disease take place every second Tuesday of the month at 12:30 pm EST. To participate in this resource-share by telephone, please call 1-866-414-2828 and enter code 017921# at the prompt.
       
      For the most up-to-date topics and to read about past calls, please see the CALLS link on the left.
      This meeting will be recorded and posted on MitoAction along with a summary following the meeting. To find summaries from other presentations, visit www.mitoaction.org
      All are welcome. Please feel free to forward this announcement to other interested families.

      For more information on mitochondrial disease and autism, please visit www.mitoaction.org/autism
      Email your questions to:
       
      Please visit this link to read the summary from October's teleconference:
    • Alyssa Davi
      MitoAction is pleased to offer the following support services for families seeking information regarding the link between ASD and mitochondrial disease.
      Message 2 of 3 , Apr 9, 2012
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        MitoAction is pleased to offer the following support services for families seeking information regarding the link between ASD and mitochondrial disease. Starting this month, we will have quarterly call topics relevant to ASD and mito. This call will be an hour and half long and there will be an opportunity to ask questions at the end. We will also offer quarterly support calls where parents will have an opportunity to call in with specific questions.
         
        These calls will take place: the second Tuesdays of April, June, August and October at 12:30 p.m. EST. To participate in this resource-share by telephone, please call 1-866-414-2828 and enter code 017921# at the prompt.
        To read a summary of what will be discussd on the Tuesday, April 10th teleconference, visit the link below:
         
        All are welcome. Please feel free to forward this announcement to other interested families.
        For more information on mitochondrial disease and autism, please read about past calls. Please visit www.mitoaction.org/autism and click the CALLS link on the left.
        If you would like to submit your question(s) for the call in advance, they can be e-mailed to Autism@....
         
        Below is the upcoming schedule of events:
         
        Tuesday, April 10, 2012-
         
        Please join us Tuesday, April 10, for an informal discussion about folate disorders, inborn errors of folate metabolism, cerebral folate receptor autoantibodies, autism and mitochondrial dysfunction.
        • What do we know about disorders of folate and inborn errors of folate?
        • What do we know about folate polymorphisms and autism?
        • What new research has recently emerged regarding folate and autism?
        • How has Leucovorin Calcium been used within the mitochondrial community to treat disorders of folate associated with mitochondrial dysfunction?
        • What are folate receptor autoantibodies (FRA) and how are testing and treating FRA’s potentially helpful in kids with autism?
        • What’s the possible connection between FRA’s and mitochondrial dysfunction?
        To read Dr. Richard Frye and Dr. Dan Rossignol’s recent article titled,Cerebral Folate Receptor Antibodies in Autism Spectrum Disorder, please visit this link:
         
        Tuesday, June 12-
        This teleconference will be an opportunity for families to call in and ask their questions regarding autism and mitochondrial disease, meet other families with diagnosed children, and gain valuable accurate information. Cristy Balcells, Kathy Rivers, and Alyssa Davi will be on the call to answer questions.
        If you would like to submit your question(s) for the call in advance, they can be e-mailed to Autism@....
         
        Tuesday, August 14-
        Please join us to discuss how to organize and manage medical, school, medication, and therapy issues when you have kids with complex issues.
         
        Tuesday, October 9-
        This teleconference will be an opportunity for families to call in and ask their questions regarding autism and mitochondrial disease, meet other families with diagnosed children and gain valuable accurate information. Cristy Balcells, Kathy Rivers and Alyssa Davi will be on the call to answer questions.
      • Wendy Bauer
        Wendy S. Bauer Indiana Mom to Tony 9p-deletion Mitochondrial disorder Many other diagnosis Mom to Erica Mastocytosis www.colespages/TonytheTiger
        Message 3 of 3 , Apr 9, 2012
        • 0 Attachment
           
          Wendy S. Bauer Indiana
          Mom to Tony
          9p-deletion
          Mitochondrial disorder
          Many other diagnosis
          Mom to Erica
          Mastocytosis
           

          ----- Forwarded Message -----
          From: Alyssa Davi <johnalyssa43@...>
          To: ""mb12valtrex@yahoogroups.com"" <mb12valtrex@yahoogroups.com>; ""Meta-mito-autism@yahoogroups.com"" <Meta-mito-autism@yahoogroups.com>; ""mito@yahoogroups.com"" <mito@yahoogroups.com>; ""beyondgfcf@yahoogroups.com"" <beyondgfcf@yahoogroups.com>; ""abmd@yahoogroups.com"" <abmd@yahoogroups.com>
          Sent: Monday, April 9, 2012 10:02 PM
          Subject: [Mito] MitoAction teleconference- April 10th at 12:30 pm

           

          MitoAction is pleased to offer the following support services for families seeking information regarding the link between ASD and mitochondrial disease. Starting this month, we will have quarterly call topics relevant to ASD and mito. This call will be an hour and half long and there will be an opportunity to ask questions at the end. We will also offer quarterly support calls where parents will have an opportunity to call in with specific questions.
           
          These calls will take place: the second Tuesdays of April, June, August and October at 12:30 p.m. EST. To participate in this resource-share by telephone, please call 1-866-414-2828 and enter code 017921# at the prompt.
          To read a summary of what will be discussd on the Tuesday, April 10th teleconference, visit the link below:
           
          All are welcome. Please feel free to forward this announcement to other interested families.
          For more information on mitochondrial disease and autism, please read about past calls. Please visit www.mitoaction.org/autism and click the CALLS link on the left.
          If you would like to submit your question(s) for the call in advance, they can be e-mailed to Autism@....
           
          Below is the upcoming schedule of events:
           
          Tuesday, April 10, 2012-
           
          Please join us Tuesday, April 10, for an informal discussion about folate disorders, inborn errors of folate metabolism, cerebral folate receptor autoantibodies, autism and mitochondrial dysfunction.
          • What do we know about disorders of folate and inborn errors of folate?
          • What do we know about folate polymorphisms and autism?
          • What new research has recently emerged regarding folate and autism?
          • How has Leucovorin Calcium been used within the mitochondrial community to treat disorders of folate associated with mitochondrial dysfunction?
          • What are folate receptor autoantibodies (FRA) and how are testing and treating FRA’s potentially helpful in kids with autism?
          • What’s the possible connection between FRA’s and mitochondrial dysfunction?
          To read Dr. Richard Frye and Dr. Dan Rossignol’s recent article titled,Cerebral Folate Receptor Antibodies in Autism Spectrum Disorder, please visit this link:
           
          Tuesday, June 12-
          This teleconference will be an opportunity for families to call in and ask their questions regarding autism and mitochondrial disease, meet other families with diagnosed children, and gain valuable accurate information. Cristy Balcells, Kathy Rivers, and Alyssa Davi will be on the call to answer questions.
          If you would like to submit your question(s) for the call in advance, they can be e-mailed to Autism@....
           
          Tuesday, August 14-
          Please join us to discuss how to organize and manage medical, school, medication, and therapy issues when you have kids with complex issues.
           
          Tuesday, October 9-
          This teleconference will be an opportunity for families to call in and ask their questions regarding autism and mitochondrial disease, meet other families with diagnosed children and gain valuable accurate information. Cristy Balcells, Kathy Rivers and Alyssa Davi will be on the call to answer questions.


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