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105336

from: joel westbrook

Salutations http://iccasirate.it/faster.php?aqcakwz2796wyw joel westbrook
joel westbrook
Jul 27, 2014
#105336
 
105335

Re: Help!

I am sorry you have all had cancer and mito! I was just going to suggest that there is a lady on facebook who has both cancer and mito on facebook as well if
Erin mckenzie-christensen
Jul 20, 2014
#105335
 
105334

Re: Help!

Sorry to hear about your health problems. We have some things in common. My youngest daughter has severe dysautonomia associated with mitochondrial
Lee Collins
Jul 15, 2014
#105334
 
105333

Re: Help!

Hi, I would be diagnosed by pedigree also, my 2 babies had a severe form of complex 1-4 inactivity. I would say I'm moderate to mild. I have benefitted
Tracy Lengyel
Jul 14, 2014
#105333
 
105332

Re: Help!

Roger and Marcey This is very new and the local oncologist was aware of this but didn't really know about it. I'm not sure if it is for all cancers, but if
David Staup
Jul 14, 2014
#105332
 
105331

Re: Help!

I didn't know it was good for cancer too.I stopped the LDB a few months ago.It may be one reason I have been so sick in the last few months.Maybe I ought to
Roger Kulp
Jul 14, 2014
#105331
 
105330

Re: Help!

Marcy you have my prayers. Hang in there... On Monday, July 14, 2014, David Staup dstaup@... [Mito] < ... -- Thank you! Juliet Nimmo
Nimmo Family
Jul 14, 2014
#105330
 
105329

Re: Help!

I would suggest low dose benadryl every three hours. dose at 1 mg per 40 lbs (+ or - 10 lbs) body weight. There are several options for getting the low dose.
David Staup
Jul 14, 2014
#105329
 
105328

Help!

My name is Marcy and am 51 with Mitochondrial Dysautonomia, diagnosed by Dr. Richard Boles by pedigree from my 22 year old son with severe disease (I'd say
mkirschotr
Jul 14, 2014
#105328
 
105327

Mito teen

Now back with parents. Sick Teen Heading Home After Medical Custody Battle
cindy_martian
Jun 18, 2014
#105327
 
105326

Re: Is this group still active?

Roger Carbon monoxide retards complex 4. I have the same imbalance for a different reason. I have smoked since I was 13 and I definitely get benefit because
David Staup
May 24, 2014
#105326
 
105325

Re: Is this group still active?

By compiling five years of tests.Metabolic,genetic,folate receptor autoantibodies,and buccal study,I finally had enough data to put it all together.I saw
Roger Kulp
May 24, 2014
#105325
 
105324

Re: Is this group still active?

Roger,  Very interesting. How did you get that diagnosis? Biopsy or genetics? Has this changed your treatment plan? What does hyperfunction mean?  Good luck.
Rob Weiner
May 24, 2014
#105324
 
105323

Is this group still active?

Haven't gotten any messages in ages.I just got a new mito diagnosis,of Complex IV Hyperfunction. http://iospress.metapress.com/content/x0388m17436484v8/ Roger
Roger Kulp
May 24, 2014
#105323
 
105322

Re: Ins just denied mito cocktail for the first time

I had a similar experience. I called the insurance Co (BC/BS) and asked why. It turned out that the compounding pharmacy used to submit the Rx as "Co-Q10, and
Rob Weiner
May 6, 2014
#105322
 
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