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Group Description

PHOTOSENSITIVITY ~~~~~~~~~~~~ LIGHT SENSITIVITY

ACTINIC PRURIGO, EPP, PORPHYRIA, XP, PMLE, AUTOIMMUNE DISORDERS, SKIN DISORDERS.

Hi I'm Sarah, I am a stay at home, homeschool mom to Megan 4 yrs old, who has Photosensitivity due to Actinic Prurigo, and because of the AP she has eye problems, mainly Photophobia which caused her to aquire Lazy Eye (Ambloypia), Astigmatism, left eye is half blind. She also has Sensory Integration Dysfunction, Dyslexia, Gifted.

I have created this group for her and for people and parents of kids like my Megan. We all need support, to talk, to share our stories, to vent, advice, to have someone to talk too, so please join our group.
Family members and care givers of people with these types of health issues are also very welcome to join. I believe that a well informed family is a better family.

AP is an Autoimmune disorder and a skin disease, that requires meds and sun advoidance. Skin cancer is prevlant with AP along with other conditions.

We look forward to you joining our group and hearing your story.

Thank you
Sarah

I also have another group for Parents who have special needs kids and/or who homeschool. Please feel free to join it to if you want.
http://groups.yahoo.com/group/ParentsHome/

Key Words:
This is a group for people with Skin Diseases, Disorders, Including:
Porphyria, XP, Photosensitivity, PMLE, Actinic Prurigo, Photoallergic Eruption, Solar Urticaria, Lupus,
Lexington, Kentucky

Group Information

  • 19
  • Skin Conditions
  • Jan 27, 2006
  • English

Group Settings

  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages are not moderated.
  • All members can post messages.

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