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IN MEMORY OF JAMIE LINDARS 12/23/99-10/24/03
AND ALL THE OTHER CHILDREN WHO HAVE LOST THERE LIVES TO MEDULLOBLASTOMA..


This group is set up for the benifit of parents, careers, and families and freinds of those with medulloblastoma .
We are here to help and support you through the time your loved one gets diagnosed to the time they are in remission or death...
We have members that go through different stages and different prognosis , some good some bad .
My name is Anna and i set this group up when i tried to research into medulloblastoma as my son was then recently diagnosed ....
Unfortunitly my son had a very poor prognosis he died late october 2003 at the very tender age of 3 ..
There is hardly any research in to medulloblastoma they treat the person as if they was another patient with a brain tumour .
unfortunitly medulloblastoma is not like any other brain tumour .
It has a high risk of growing back and treatment is more a hit and miss .
But there is good news, children are more often than not surviving this .
If you are yourself affected in any way please join us here and express your views and join us and become a member of this group. We want more than answers we want more research more education and to do that we need to start doing something about it .
Please help us by helping our families by helping our children ...



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Group Information

  • 255
  • Brain Tumors
  • Feb 21, 2003
  • English

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