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  • News at The Body
    If you have trouble reading this e-mail, you can see the online version at: www.thebody.com/updates/ SPONSORED BY GILEAD SCIENCES Jump to: Ask the Experts
    Message 1 of 139 , Nov 1, 2005

      If you have trouble reading this e-mail, you can see the online version at: www.thebody.com/updates/

      The Body: The Complete HIV/AIDS Resource
      Worried About Lipoatrophy (Fat Loss)? Join a Live Chat at The Body on Tuesday, Nov. 1!
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      November 1, 2005
      In This Hot Topics: Living/Working With HIV Controversies in HIV HIV Treatment HIV-Related Health Issues Live Chat on Lipoatrophy Tonight, Nov. 1 HIV Transmission & Disclosure Strange but True

      HIV-Positive Mom Struggling With Depression
      I am a 29-year-old single mom who's had HIV for 18 months. I often have days when I just wish I could go to sleep and not wake up, but my little girl keeps me going. I am scared to ask for help; I lie to my doctors and tell them all is fine when in fact I am dead on the inside. I feel like I would look like a "bad mom" if anyone knew what was going on with me. I want to talk to someone; I just don't know how to bring myself to do it. Can you help?

      Concerns From a Newly Diagnosed Married Couple
      As the great Hank Williams said, "I'm so lonesome I could cry." My wife of two years had an HIV test that came back positive. She's also infected me, but I have decided to stick by her. Can you give us some advice on how to get through this? We are both 29; how long can we be expected to live?

      Didn't Start HIV Treatment Until AIDS Diagnosis; Where to From Here?
      I was recently diagnosed with HIV when I was hospitalized with PCP (pneumonia). My first CD4 count was just 52. My doctor immediately put me on medications, and within three weeks my CD4 count was up to 299. What are the chances I can get my CD4 up even higher? Even though I have full-blown AIDS, do you think I have a chance of seeing my children grow into adults?

      Pre-Employment HIV Testing
      Can an employer require HIV testing as a condition of employment? Are there any laws to protect a person with HIV from being tested in this manner?

      Could You Comment on the Death of Christine Maggiore's Daughter?
      Dear Dr. Bob: I'm sure you are aware of the recent death of AIDS dissident Christine Maggiore's young daughter, most likely from AIDS-related pneumonia. There has been a lot of talk among my friends about the death and many have concluded that it was within Mrs. Maggiore's rights to refuse HIV testing (and, consequently, HIV treatment) for her young daughter, even if this refusal ultimately resulted in the child's death. They also support the physicians who apparently allowed this to happen. What do you think?


      What Can I Do if I'm Resistant to Everything?
      I've been HIV positive since 1992; I have never been undetectable and my CD4 count has never been over 329. My last resistance tests showed that I'm resistant to all available drugs. I'm on atazanavir (Reyataz) + Truvada (tenofovir/FTC), but my CD4 count is now down to 141. My doctor says there isn't anything else he can put me on. Is he doing everything that he should? Are there any other meds I can try?

      T-20 Site Reactions Getting Worse, Despite Biojector
      I have been taking T-20 (enfuvirtide, Fuzeon) with three other meds for about a month now. Instead of using syringes to administer the T-20, I'm using the Biojector 2000 needle-free device. However, I have been noticing that my site reactions are getting worse. What can I do?

      The End of Fortovase: What Should I Do?
      I've been taking saquinavir soft-gel capsules (Fortovase) since 1997 as part of a four-drug HIV treatment regimen. The regimen has worked well, but I know that the manufacturer is discontinuing Fortovase in March 2006. When this happens, what should I do? Should I switch to Invirase, the other version of saquinavir, or should I just stop the Fortovase and keep taking the other three drugs in my regimen?

      Is Fresca as Dangerous as Grapefruit Itself?
      I know that grapefruit can interact with HIV medications, but I have a question about the soft drink Fresca. I've been drinking it for the past month -- sometimes at the same time I take my HIV medications -- and only now realized that it has some grapefruit concentrate. I've read that about 1 percent of the drink is from grapefruit. Could this be a problem?



      Telling a Friend He May Be Having Confusion/Memory Problems
      One of my closest friends was diagnosed with HIV in 1986 and almost died before starting combination drug therapy in 1994. Lately, he has become forgetful, and he mixes his words up -- for instance, if he wants a book on the table, he might say, "Get me the sandwich on the table." If it wasn't happening on a regular basis, I'd brush it off, but it happens all the time. Should I tell him he might want to see a psychiatrist -- and if so, how can I say this tactfully so I don't hurt his feelings?

      Can Anemia Cause a Drop in CD4 Count?
      My husband and I live in a small town; he was recently diagnosed with HIV and hepatitis C. At his latest checkup, he was told that his HIV viral load was now undetectable, but that his CD4 count had dropped from 175 to 50 due to severe anemia from taking AZT (zidovudine, Retrovir). He was given a blood transfusion and switched to a new treatment regimen. Would you agree that the cause of this drop in CD4 count was due to the anemia? Although the doctors treating my husband seem to know what they are doing, they are very bad communicators, and since we live in a small town, we have no support groups to turn to for advice.

      Alcohol and Hepatitis C: A Safe Combination?
      If a person received treatment for hepatitis C infection and now has an undetectable hepatitis C viral load, is it OK for him or her to drink a little beer?

      Could My Hair Loss Be My Meds' Fault?
      I'm in my early 30s. I've been HIV positive for four years, and have been on HIV meds for much of that time. I recently noticed that the hair at my temples seems to be receding. Is this a result of the HIV, my meds or just plain age?



      The Date: Tuesday, Nov. 1, 2005

      The Time: 9 p.m. Eastern Standard Time/6 p.m. Pacific Standard Time (the chat will last approximately one hour)

      The Place: When the chat begins, visit this Web page: http://www.thebody.com/chat/

      The Chat: Losing fat in certain parts of your body, a condition known as lipoatrophy, may be one of the most difficult issues for people with HIV. Though many questions about lipoatrophy have yet to be answered, our knowledge about it is growing, as is our understanding of how it can be managed. Join The Body for a live chat on lipoatrophy with one of the most knowledgeable HIV specialists in the United States! Dr. Joel Gallant will answer questions from HIV-positive people who are dealing with, or worried about, this potentially disfiguring health problem. He’ll talk about ways to avoid or alleviate symptoms, and will discuss the latest research.

      Remember: The chat begins at 9 p.m. Eastern Standard Time. We hope to see you there!

      This live chat is sponsored by Gilead Sciences.



      Why Didn't We Just Talk About Our Status Before Sex?
      I'm a gay man who had unprotected sex (insertive/receptive and oral) with a guy who didn't disclose his HIV status until after we'd had sex twice. I opted not to go on post-exposure prophylaxis (PEP), figuring it had been too long since my first exposure and that if I already was infected, taking PEP could just make me resistant to HIV meds. I just had an HIV test, and will get the results soon, but I feel the need to tell my story. I'm upset, depressed and angry -- and this situation could have been so easily avoided if either of us had brought up the subject before we had sex.

      Disclosing Because a Condom Breaks
      I've known about my HIV status for about four years now, but I have trouble disclosing to my partners at the right time. Sometimes I feel I disclose too early, and sometimes I feel I disclose too late. This time, I did it too late: My current boyfriend and I were having anal sex when the condom broke. He thought nothing of it, but as the day went on, I became more and more terrified, and eventually brought him to the hospital for post-exposure prophylaxis. On the way there I had to tell him he's been exposed to HIV. What are his chances of contracting the virus, and how can I keep him in my life?

      Overly Concerned Parent of a Woman Dating an HIV-Positive Man
      My daughter is dating a young man who is HIV positive. No matter what I say or point out to her about the risks, it makes little difference to her. My daughter has a young son as well. How can I help her understand the risk she is taking with not only her life, but also the life of her son?


      Is AIDS a Punishment for Same-Sex Kissing?
      Does kissing a person of the same sex mean you will get AIDS? Even if you and the other person don't have HIV, will you get the virus because same-sex saliva is not supposed to mix?
      U.S. Hurricanes: HIV/AIDS Info
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      Visual AIDS
      Art From HIV-Positive Artists

      Image from the November 2005 Visual AIDS Web Gallery
      "The State Series (Minnesota),"
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      Visit the November 2005 Visual AIDS Web Gallery to view this month's collection of art by HIV-positive artists! This month's gallery is entitled "On the Road -- A Tribute to the Campaign to End AIDS."

      Want to learn more about the Campaign to End AIDS, which is staging a major four-day event in Washington, D.C., beginning Nov. 5? Click here!
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    • News at The Body
      If you have trouble reading this e-mail, you can see the online version at: www.thebody.com/topics.html November 16, 2009 Visit the Forums Hot Topics Library
      Message 139 of 139 , Nov 16, 2009

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        November 16, 2009
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         Recently Diagnosed With Osteopenia: When Should I Start Bone Meds?
        I have been on Reyataz (atazanavir), Norvir (ritonavir) and Truvada (tenofovir/FTC) for a little more than two years. I had a DEXA scan and my doctor said I have osteopenia and I should probably start Fosamax (alendronate) or Boniva (ibandronate) in about two years. I have a family history of osteoporosis. I've also had some fractures and dislocations over the years that have been causing some pain in the last few months. When I look at my DEXA scan report, what levels and terms should I look out for that would indicate a need to start Boniva or Fosamax sooner than two years from now?

        Also Worth Noting: New Blog: Back From the Brink of Death

        Thomas DeLorenzo

        People still die from AIDS-related causes in the U.S. -- and some of them die without even knowing they're HIV positive. This almost happened to TheBody.com's blogger Thomas DeLorenzo. When he found out he had HIV in 2001, he also discovered that he had two opportunistic infections. His doctor told him he missed dying by just a few days. In his latest blog entry, Thomas recounts why he buried his head in the sand.
         HIV Meds Have Made My Belly Big and My Cheeks Sunken!
        I used to have a somewhat good body and now my cheeks are sunken in and my belly is fat and hard. I look like I'm six months pregnant. My breasts are big and my legs are thin, and I'm embarrassed to go places because of the way I look. I'd been taking HIV meds for two years before these effects began. What can I do about them? My viral load is undetectable, my CD4 count is more than 1,000 and I am taking Intelence (etravirine) and Truvada (tenofovir/FTC).

         Where Can We Find an Expert in MS and HIV?
        My partner is 42 years old and has been HIV positive for 14 years. He's very healthy -- his CD4 count is nearly 1,000. His viral load has been undetectable for years. He's recently been diagnosed with relapsing and remitting multiple sclerosis (MS). I'm a physician myself, and I'm looking for someone with experience in HIV as well as treatment of MS. Can you recommend some options? None of his current docs know of anyone who has done work in this area.

         How Can I Be Cured of HCV, but Not HIV?
        Are HIV and hepatitis C (HCV) so dissimilar that I can be cured of one and not the other? I had HCV, went through interferon (Alferon N, Roferon-A or Intron A) treatment and also started HIV treatment with Atripla (efavirenz/tenofovir/FTC). I followed all the rules and never missed a single dose of any medication. The doctor says the HIV is "hiding" somewhere in my tissues (Brain? Spleen? Gallbladder? Thymus? Where is it "hiding"?). Yet, the liver doctor says I'm "cured" of HCV. Can you explain?

         Having HIV and the Flu: What Are the Risks?
        What are the risks and complications for someone with HIV if they get the seasonal flu or H1N1 flu?


         What Should I Choose for My First HIV Regimen?
        I saw my physician assistant and was informed that my CD4 count was 288 and my viral load was 104 million or thereabouts. Both of us decided that it would be wise for me to start treatment immediately. I brought up the idea of being on the combination Truvada (tenofovir/FTC) and Isentress (raltegravir), while he thought I should be on Truvada and Viramune (nevirapine), the most effective combo. What do you think?

        Also Worth Noting: U.S. HIV/AIDS Plan: Online Testimony Deadline Extended!
        The White House Office of National AIDS Policy (ONAP)'s series of HIV/AIDS community discussions is sweeping the U.S. The deadline for submitting online testimony has been extended to Monday, Nov. 23, at 6 p.m. Eastern Time! There have also been some changes to the list of upcoming meetings -- please take a look, and follow the directions to prepare for the meeting of your choice. The next discussions will take place in Jackson, Miss., on Nov. 16 (that's tonight!), and Fort Lauderdale, Fla., on Nov. 20.

         Could I Be a Long-Term Nonprogressor?
        If I contracted HIV about six years ago and have not had an AIDS-related sickness, could I be a "long-term nonprogressor" -- someone whose body controls HIV without the benefit of HIV meds?


         Marijuana and Antiretroviral Medications
        Does marijuana interact with HIV medications?

         What's the Effect of Taking Ecstasy With HIV Meds?
        What happens if you take Kaletra (lopinavir/ritonavir) and Combivir (AZT/3TC), and three hours later you pop an ecstasy pill?


         Is It Better to Get Tested for HIV or to Not Know My HIV Status?
        I am afraid of being HIV positive. I am 26 years old and was in a relationship for two years in which we left condoms out of the equation (I was the "top," or insertive partner). I haven't had an HIV test for three years. Should I start using condoms now and not bother getting tested since I'm terrified of testing positive?

         Positive, Undetectable "Bottom" in a Magnetic Couple: Is My Partner at Lower Risk?
        I'm a 54-year-old gay man from Vermont and I've been HIV positive for 22 years. My viral load finally dropped to undetectable in the past year. I also have a new man in my life for the first time in a while. He's HIV negative and after some negotiation, we decided to forego condoms (he's the "top," or insertive partner). Does the fact that I am undetectable and extremely careful mean that I'm not putting him at risk? Having him become infected would be too much to bear.

        Also Worth Noting: Connect With Others
        How Do You Overcome Rejection?
        (A recent post from the "Living With HIV" board)

        This might sound lame because I am a mature woman and not a teenager, so please don't judge. I have been positive for 10 years and trying my best to live like a normal human being. So I decided to start Internet dating on the positive dating sites. I communicated with several guys and decided to go out on a date with this one guy that I liked. The date went really well and we talked for hours and at the end he promised to call the next day. One week later, nothing. I tried calling him on the third day and left a message, but no reply came. I am not going to try him again because I have some self-respect, but the rejection is stressing me out. What I can't understand is how people can be so cruel. To make matters worse, I really, really liked him and wanted to be friends even if the dating didn't work. My question is: How do I get him out of my mind and move on? I have a life and I am a busy person so I am not sitting at home sulking, but this experience is really hard. -- AsiaHope

        Click here to join this discussion thread, or to start your own!

        To do this, you'll need to register with TheBody.com's bulletin boards if you're a new user. Registration is quick and anonymous -- click here to get started!


         Could My New Sex Toy Have HIV on It?
        I just received a new sex toy in the mail and I used it immediately without washing it. Now I'm freaking out. What if someone used the new toy before and returned it? I'm still a virgin and I'm so scared. Should I get tested for HIV?

         A Stranger Used My Bathroom: What if He Contaminated It With AIDS?
        I let a man who was hooking up my cable use my restroom. After he was done, I heard him saying that he might have AIDS. So when he left, I cleaned my bathroom thoroughly. I have been so worried ever since. Could he have contaminated something in my bathroom? I have three kids and I'm very concerned. I've been having headaches, back pain, nausea and fatigue.

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        Activist Central

         Participate in the White House's HIV/AIDS Community Discussions on the National HIV/AIDS Strategy

         Alert: Don't Let Dems Wimp Out on Opposing Abstinence-Only Funding

         U.S. Territories Separate and Unequal in Healthcare Reform; How You Can Help

         Can't Make It to a White House HIV/AIDS Community Discussion? Provide Your Testimony Online for the U.S. National HIV/AIDS Strategy!

         Urge President Obama to Lift the Ban on Federal Funding for Syringe Exchange Programs

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