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Group Description

HDCaregivers is designed to be a safe haven for those caring for someone with Huntington's Disease. Members are encouraged to honestly express their feelings and situations with others who have "been there and done that" as well as with those who are anticipating similar situations. The goal is to provide a POSITIVE supportive environment.

A caregiver is defined as someone who is actively caring for their loved one with Huntington's Disease at home, or in partnership with an assisted living facility, a nursing home, Hospice, or other care environment. Long distance caregivers are welcome to join as well as those who have lost their loved one to HD but were caregivers in the past. Gene positive and symptomatic persons are not eligible for membership in HDCaregivers. Those wishing to find other online support groups may visit http://www.hdac.org/chat/index.php for a list of options.

This is a group that respects the need to share both joys and frustrations in every topic related to caring for a person with HD. We have zero tolerance for individuals that cause dissension in our group. If there are comments made on the list that disturb someone, respectful private messages are urged.Members can always sign off recognizing this is not an appropriate group for their situation. Flames and disruptive messages will not be tolerated and those who engage in such behavior are subject to being banned.

Group Information

Group Settings

  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages are not moderated.
  • All members can post messages.

Message History