questions on Peg Intron or Pegasys
I don't write a lot, in fact I don't remember the last time i wrote,
but since I went to the doctor this afternoon and he told me I should
really start treatment, I'd like to know who is on Peg and who has
done the treatment and what results you got from it.
I have known about my hep C since 1995 and have been looking after my
immune system so far taking anti oxidants,sylimarin and following a
pretty strict diet.
In the meantime I had a brain tumour (meningioma - benign) removed
last year (August 2000) and a second one was growing. Yesterday I
learnt that the second tumour has shrunk to nearly invisible and I
was very happy, but today came the bad news about my liver!!
It's one thing after the other! My enzymes have always been on the
100/150 range, I have grade 2 fibrosis, I am genotype 1B and have a
medium high viral load (around 3 million).
I am 48 years old.
Today the doctor told me that my liver is enlarged (more than last
year) and also my spleen is big and that i should treat it now and
not wait any longer.
Any input would be great!
Thanks for your help
Micky in Brazil
- Hi Micky,
I remember when you had the one tumor removed, but didn't know
you had another one. I'm sure glad it went away! The Peg-Intron with
Rebetol combination is still pretty new here, most people are just
starting it, or only into a couple of months on it. So we still don't
have a whole lot of experience. I'm a genotype 1b also, and the
'odds' are still not the greatest for us, but it is a huge
improvement over the old stuff. The really good news that's been
coming out lately is that in so many people, even in those who don't
have a viral response, the treatment is helping their livers, often
reversing fibrosis, and also the treatment seems to slow or even stop
progression in many - and I'm talking about non-responders. These
results in the condition of the liver are even better in those who do
respond by clearing the virus. I probably have some information I can
post on this. Good luck!
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- Hi Micky in Brazil!
If doc says to treat, and it won't affect your tumor, then it might be a
good idea to.
I had a viral load of 1.3 million, inflamation in my liver, normal liver
enzymes and I had a hard time getting someone to let me do treatment (mostly
due to the normal liver enzymes and state of the liver). I'm 46.
I have read tho, and I can't find the article now, tho I did post it here
about a year ago, that altho they don't know how ribavirin works, the
scientists THINK it works by making fast growing cells divide and grow even
faster so they don't have time to mutate. This gives the body time to
identify the virus and kill it, instead of losing track of it when the virus
mutates. Sneaky virus huh?
However a POSSIBLE down side to riba (besides the sides that is haha), it
also caused other cells to grow, and in mice (dunno how much riba the mice
got at one time), they grew tumors.
I am particularly interested in this cuz I was diagnosed with metastatic
melanoma in Oct last yr. So the question is - did the riba make the melanoma
mole grow faster or did the interferon keep it from spreading any further
than it did?
I have no answers and docs don't know either. I recommend you ask your brain
tumor doc about the riba tho ok?