- Thanks for clearing the terminology up for me. I get so confused with
it sometimes, but I hv to realize I am a newbie @ this. Anyway, what
u r saying about telling them i hv decided to wait for the pegatron,
I hv already done that.Also, what u r saying is EXACTLY what hep
neighborhood told my husband the other dy when they got my insurance
info. They said no matter what, DO NOT take the interferon/rebetol if
i wanted the peg because then the ins company will say u r already
being treated for that and balk for paying for something else and
plus they want people who hv never had any sort of treatment b4 for
the peg. So u r exactly right in what u r saying and what hep
neighborhood is saying. She told my husband 3-5 weeks, but that ws b4
all this other stuff went down. I think we r all looking @ some
really hard times ahead of us in ways we hvn't even thought of yet.
Oh, by the wy, the issue of me working is no longer an issue anymore
as i got laid off AGAIN today. Only got to work 2 weeks. We r hving
lay off all over the area and the 5 states surrounding us. Things r
going to get really bad, I am afraid.
- Thanks for clearing that whole mess up with the ones that are
espeiclly "new" to this whole thing, but even a new person can smell
a rat! If u know what I mean. U know as well as I, that what it all
comes down to is MONEY and greed!!!!. Not the people with the hep C
and thier lives--u know that as well as others.
Even though I know all this to be true, I am still pryaine that this
will be out in 2 weeeks so i may get on the treament. They know they
hv us over a bareell and there is nothing we can do about it.
thank for a telling it like it is pot with no holds back.
- Well, I wish I could take credit, but I can't. I
didn't write the article, only posted it! But your
welcome anyway! (And I agree - money and greed. Makes
me wonder if the excuse about the manufacturing site
failing inspection by the FDA is the real reason for
the delay in the release of ribavirin solo. Maybe they
have delayed it to allow time for the 'prepack' of
Peg-Intron and Rebetol to be ready to ship.)
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- I hv already been doing most of what u said and I already knew about
coming off the xanax slowly--just wondered if that ws something I
needed to do b4 i went on treatment. Wht about pain-if u hv any-what
do they recommend for that?? Hv u ever seen anybody more excited
about feeling like crap in their life! hahaha I know It's going to
get me, but the only way I am coming off this is if they make me for
some reason or another and then I am putting uup a fight!! Yea, I am
getting my mind set for that too. Thanks Claudine and u all will be
hearing from me, If everythihg goes right with the ins then I should
be on withing a weeks' time and hep neighborhood will be shipping my
meds to me. So far they hv been great to me. Drinking lots of
distilled water as much as i can stand. Wish me well as I do all of
Good luck and maybe you won't feel so bad one never knows, but the reality
is some side effect will probably come your way. Hang in there and good
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- Thanks Claudine--I will no longer any more suggest that my ? are
dumb. It's just u all know so much @ this and I am trying to learn so
much in such a short period of time. I am actually going to be part
of a short informal class of hep C for the next 2 weeks @ my clinic
so I am tryng t soak up all i can and then some. My emphasis will
mainly be on treatment and how to go about getting it from some of
these programs if a person hs no insurane and no money. That's y all
the ?'s about the PCR, biopsy b4 treatment, and so forth. What would
be the main thing u or anyone else would u tell someone to do who
came to you and said hey I got this hep C--now what. What would be
the first thing u or anyone else would tell them. My answer would be
to try and do all u can to eduacate yourself and get involved in your
treatment. A couple who were told @ the clinic I go to were told
their enzymes were high and they thought nohting of it and then the
counselor told them--don't u know tht it is possible that u cd
someday die from this. They had absolutely no idea. The group that I
ride with every morn did not even know there were any treatments
available until they started riding with me and I started talking
about it to them. Also, I do know that by tryng to educate these
people in some of these classes I run the risk of stigmation as we
all know that goes with the territory, but i feel education,
awareness, and getting the word out there about early treatment is
more important than my risk of being stigmatized. In case u are
wondering this is a methadone setting I am going to be talking to so
it is not like they hvn't at one time put themselves @ risk at one
time or another or if they hvn't then they certainly hv forgotten
where once they come from. If it wsn't me, it cd hv been them just as
easily and I hope they realize it. We hv had several patients come in
in over the year that I hv been in the clinic so a lot of them hv not
taken a hepatitis class and some of the young ones who cd and can
really be saved with this treatment because they r not old enough yet
for it to hv turned to cirochiss so they really need to wake up when
they r told their enzymes r elevated. If anyone knows of a site
regarding methadone and hep C I wuld appreciated the pass along.
- --- cher_002@... wrote:
> be the main thing u or anyone else would u tellSee, you do know! That is exactly the right anwser.
> someone to do who
> came to you and said hey I got this hep C--now what.
> What would be
> the first thing u or anyone else would tell them. My
> answer would be
> to try and do all u can to eduacate yourself and get
> involved in your
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- Thank you for easing my mind. I hv never knowingly missed a dose and
it really did hv me concerned. I didn't know about the half life of
the rebetol so I am not as worried as b4. Believe me, I will be @
that drug store 1st thing in the morn. Thanks for the relief.