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question 4 alley??

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  • cher_002@yahoo.com
    I am doing this in a hurry so I hope I hv gotten these names right. Anyway, u mentioned u were under the older treatment and took the shots every other dy
    Message 1 of 8 , Aug 30, 2001
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      I am doing this in a hurry so I hope I hv gotten these names right.
      Anyway, u mentioned u were under the "older" treatment and took the
      shots every other dy instead of 3 times a week. How did u manage to
      get to do that when I hv always heard that is what the dosage is.
      Just wondering about that. It sounds like u caught yours very early.
      My primary dr. treated me for arthritis (joint pain) for four years
      because I didn't hv any insurance so of course there ws no blood work
      done. If there had of been, I would hv prob caught this much earlier,
      but u can bet that as soon as I did get insurance thru the company I
      work for that it ws the first thing he did ws do blood work and that
      is how i found out I had it. If it ws done 4 years ago when I first
      went to him with my symptons I might hv been in better shape. Here in
      the last year the symptons just got a little worse right about the
      time I did get the insurance then the blood work then the news of hep
      C and at that time (March) enzymes were high but nothing else but
      positive for hep C. His take on it ws, well we'll just keep an eye on
      them and the next time u come over we'll do more blood work to see if
      they r staying the same going up or down, but everything else ws
      normal. He ws just too vague and i knew he had done jerked me around
      enough in the last 4 years. All he knew ws to write the prescriptions
      out 4 pain pills (of course with lots of tylenol) that I am sure
      wreaked havoc on my liver. I had already went to see a G.I. by the
      time of my next appoint with the dr that diagnosed me after I got the
      insurance and of course when I went to his office I had to see
      another dr and they did not even order more tests. Glad I had already
      used my head and went and sought out a speacilist on my own and wd be
      still be waiting on that if it weren't for this other dr who called
      in a favor and got me into see the specialist or I wd still be
      sitting here waiting with no biopsy done-nothing. It hs never been a
      question of not getting treatment if I had too. Just lucky in this
      time of my life that I do hv a little insurance and I am keeping my
      fingers crossed that they will pay for the prescriptions. I am not
      sure with the newer pegulated treatments if the insurance would pay
      since it is so new. I wonder about that. I hv already stressed to
      this dr that I would prefer the newer versions of treatment
      pegintron, but he acts like it hs not been approved and he knows
      nothing about it. I am stuck between a rock and hard place because
      there is just not that many of these types of drs where I live and if
      I were to travel there would still be a long long wait just to get in-
      so i really feel like I hv to take whatever treatment they want to
      dish out even though I don't think that is very fair. U can bet if it
      ws the dr's sister mother or any other relative they wd be getting
      the newest and best treatments available. Wonder when dr's get so
      insistive that they just don't seem to care. Well, sorry, just wanted
      to vent a little I guess as this hs been so frustrating as I am sure
      u all hv been thru it. Everyone seems to be so educated in this and
      know the answers and here I feel so stupid half the time and as soon
      as i get something figured out something else comes along to
      contradict that so who knows. Anyway sorry for venting.
      cheri
    • AndromedaGurl
      I told my doc I wanted non-stop interferon and so he wrote the
      Message 2 of 8 , Aug 30, 2001
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        <<How did u manage to get to do that when I hv always heard that is what the
        dosage is. >>

        I told my doc I wanted non-stop interferon and so he wrote the script for
        more interferon.

        He was the only doc in Dallas I found who'd even let me do treatment (no
        liver damage, normal liver enzymes etc). He was the head of liver services
        at a local hospital (Baylor) who does a lot of liver transplants. I found
        him by going to local support groups, listened to him speak at one, and knew
        that moment he had to be my gastro! I think I shocked them when I made an
        appt with no referral. His office said I simply "must" have a referral I
        said I am referring myself and 25 other hep patients referred me to him, and
        my money is a green as anybody elses, she laughed and voila! he was my doc.
      • AndromedaGurl
        sheri, no problem on the venting! I vent all the time. It s one of the reasons we join these lists! A lot depends on who your insurance is I guess. I had
        Message 3 of 8 , Aug 30, 2001
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          sheri,

          no problem on the venting! I vent all the time. It's one of the reasons we
          join these lists!

          A lot depends on who your insurance is I guess. I had Caremark at the time
          and they had a whole website and service set up for Hep C so they were no
          problem. I paid $15 for 3 months of combo, shipped it fed ex.

          In fact I have leftover combo in my fridge I need to get off my ass and get
          rid of. Once I'm home from work, I'm a zombie and don't get much else done
          but laundry.

          alley
        • Carol
          Hi Cher I empathize with how you re feeling about Docs. My last Dr. who retired left a lump in my Moms breast go for 9 months before he sent her to a
          Message 4 of 8 , Aug 30, 2001
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            Hi Cher

            I empathize with how you're feeling about Docs. My last Dr. who retired left
            a lump in my Moms breast go for 9 months before he sent her to a specialist.
            She immediately then had a mastectomy. You gotta wonder about certain Docs
            and one of them is mine. But I live in a big city and can change. But I
            can't see a specialist without a Drs refferal.

            You also mentioned your urine? Can you expand on that? I'm new to this
            group too, and have noticed changes in my urine color. When I take vit. B my
            urine is yellow, that is normal, but lately it's streaky. When I don't take
            vit. B it's getting sorta brownish which I know is a bad sign. I picked up
            some milk thistle today, will start on that tonight. Expensive little
            devils, ain't they? LOL.

            Thanks
            Carol

            cher_002@... wrote:

            > I am doing this in a hurry so I hope I hv gotten these names right.
            > Anyway, u mentioned u were under the "older" treatment and took the
            > shots every other dy instead of 3 times a week. How did u manage to
            > get to do that when I hv always heard that is what the dosage is.
            > Just wondering about that. It sounds like u caught yours very early.
            > My primary dr. treated me for arthritis (joint pain) for four years
            > because I didn't hv any insurance so of course there ws no blood work
            > done. If there had of been, I would hv prob caught this much earlier,
            > but u can bet that as soon as I did get insurance thru the company I
            > work for that it ws the first thing he did ws do blood work and that
            > is how i found out I had it. If it ws done 4 years ago when I first
            > went to him with my symptons I might hv been in better shape. Here in
            > the last year the symptons just got a little worse right about the
            > time I did get the insurance then the blood work then the news of hep
            > C and at that time (March) enzymes were high but nothing else but
            > positive for hep C. His take on it ws, well we'll just keep an eye on
            > them and the next time u come over we'll do more blood work to see if
            > they r staying the same going up or down, but everything else ws
            > normal. He ws just too vague and i knew he had done jerked me around
            > enough in the last 4 years. All he knew ws to write the prescriptions
            > out 4 pain pills (of course with lots of tylenol) that I am sure
            > wreaked havoc on my liver. I had already went to see a G.I. by the
            > time of my next appoint with the dr that diagnosed me after I got the
            > insurance and of course when I went to his office I had to see
            > another dr and they did not even order more tests. Glad I had already
            > used my head and went and sought out a speacilist on my own and wd be
            > still be waiting on that if it weren't for this other dr who called
            > in a favor and got me into see the specialist or I wd still be
            > sitting here waiting with no biopsy done-nothing. It hs never been a
            > question of not getting treatment if I had too. Just lucky in this
            > time of my life that I do hv a little insurance and I am keeping my
            > fingers crossed that they will pay for the prescriptions. I am not
            > sure with the newer pegulated treatments if the insurance would pay
            > since it is so new. I wonder about that. I hv already stressed to
            > this dr that I would prefer the newer versions of treatment
            > pegintron, but he acts like it hs not been approved and he knows
            > nothing about it. I am stuck between a rock and hard place because
            > there is just not that many of these types of drs where I live and if
            > I were to travel there would still be a long long wait just to get in-
            > so i really feel like I hv to take whatever treatment they want to
            > dish out even though I don't think that is very fair. U can bet if it
            > ws the dr's sister mother or any other relative they wd be getting
            > the newest and best treatments available. Wonder when dr's get so
            > insistive that they just don't seem to care. Well, sorry, just wanted
            > to vent a little I guess as this hs been so frustrating as I am sure
            > u all hv been thru it. Everyone seems to be so educated in this and
            > know the answers and here I feel so stupid half the time and as soon
            > as i get something figured out something else comes along to
            > contradict that so who knows. Anyway sorry for venting.
            > cheri
            >
            >
            > Welcome to GIHepWorld
            >
            > Post message: GIWorld-Hepatitis@yahoogroups.com
            > Subscribe: GIWorld-Hepatitis-subscribe@yahoogroups.com
            > Unsubscribe: GIWorld-Hepatitis-unsubscribe@yahoogroups.com
            > List owner: GIWorld-Hepatitis-owner@yahoogroups.com
            > URL to this page: http://groups.yahoo.com/group/GIWorld-Hepatitis
            >
            >
            > Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
          • rep@pacinter.net
            Carol I just read part of your post about vitamin B. I hope you are not taking a lot of Niacin. Bob ... From: Carol To:
            Message 5 of 8 , Aug 31, 2001
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              Carol I just read part of your post about vitamin B. I hope you are not
              taking a lot of Niacin.
              Bob

              ----- Original Message -----
              From: "Carol" <csean@...>
              To: <GIWorld-Hepatitis@yahoogroups.com>
              Sent: Thursday, August 30, 2001 8:58 PM
              Subject: Re: [GIWorld-Hepatitis] question 4 alley??


              > Hi Cher
              >
              > I empathize with how you're feeling about Docs. My last Dr. who retired
              left
              > a lump in my Moms breast go for 9 months before he sent her to a
              specialist.
              > She immediately then had a mastectomy. You gotta wonder about certain
              Docs
              > and one of them is mine. But I live in a big city and can change. But I
              > can't see a specialist without a Drs refferal.
              >
              > You also mentioned your urine? Can you expand on that? I'm new to this
              > group too, and have noticed changes in my urine color. When I take vit. B
              my
              > urine is yellow, that is normal, but lately it's streaky. When I don't
              take
              > vit. B it's getting sorta brownish which I know is a bad sign. I picked
              up
              > some milk thistle today, will start on that tonight. Expensive little
              > devils, ain't they? LOL.
              >
              > Thanks
              > Carol
              >
              > cher_002@... wrote:
              >
              > > I am doing this in a hurry so I hope I hv gotten these names right.
              > > Anyway, u mentioned u were under the "older" treatment and took the
              > > shots every other dy instead of 3 times a week. How did u manage to
              > > get to do that when I hv always heard that is what the dosage is.
              > > Just wondering about that. It sounds like u caught yours very early.
              > > My primary dr. treated me for arthritis (joint pain) for four years
              > > because I didn't hv any insurance so of course there ws no blood work
              > > done. If there had of been, I would hv prob caught this much earlier,
              > > but u can bet that as soon as I did get insurance thru the company I
              > > work for that it ws the first thing he did ws do blood work and that
              > > is how i found out I had it. If it ws done 4 years ago when I first
              > > went to him with my symptons I might hv been in better shape. Here in
              > > the last year the symptons just got a little worse right about the
              > > time I did get the insurance then the blood work then the news of hep
              > > C and at that time (March) enzymes were high but nothing else but
              > > positive for hep C. His take on it ws, well we'll just keep an eye on
              > > them and the next time u come over we'll do more blood work to see if
              > > they r staying the same going up or down, but everything else ws
              > > normal. He ws just too vague and i knew he had done jerked me around
              > > enough in the last 4 years. All he knew ws to write the prescriptions
              > > out 4 pain pills (of course with lots of tylenol) that I am sure
              > > wreaked havoc on my liver. I had already went to see a G.I. by the
              > > time of my next appoint with the dr that diagnosed me after I got the
              > > insurance and of course when I went to his office I had to see
              > > another dr and they did not even order more tests. Glad I had already
              > > used my head and went and sought out a speacilist on my own and wd be
              > > still be waiting on that if it weren't for this other dr who called
              > > in a favor and got me into see the specialist or I wd still be
              > > sitting here waiting with no biopsy done-nothing. It hs never been a
              > > question of not getting treatment if I had too. Just lucky in this
              > > time of my life that I do hv a little insurance and I am keeping my
              > > fingers crossed that they will pay for the prescriptions. I am not
              > > sure with the newer pegulated treatments if the insurance would pay
              > > since it is so new. I wonder about that. I hv already stressed to
              > > this dr that I would prefer the newer versions of treatment
              > > pegintron, but he acts like it hs not been approved and he knows
              > > nothing about it. I am stuck between a rock and hard place because
              > > there is just not that many of these types of drs where I live and if
              > > I were to travel there would still be a long long wait just to get in-
              > > so i really feel like I hv to take whatever treatment they want to
              > > dish out even though I don't think that is very fair. U can bet if it
              > > ws the dr's sister mother or any other relative they wd be getting
              > > the newest and best treatments available. Wonder when dr's get so
              > > insistive that they just don't seem to care. Well, sorry, just wanted
              > > to vent a little I guess as this hs been so frustrating as I am sure
              > > u all hv been thru it. Everyone seems to be so educated in this and
              > > know the answers and here I feel so stupid half the time and as soon
              > > as i get something figured out something else comes along to
              > > contradict that so who knows. Anyway sorry for venting.
              > > cheri
              > >
              > >
              > > Welcome to GIHepWorld
              > >
              > > Post message: GIWorld-Hepatitis@yahoogroups.com
              > > Subscribe: GIWorld-Hepatitis-subscribe@yahoogroups.com
              > > Unsubscribe: GIWorld-Hepatitis-unsubscribe@yahoogroups.com
              > > List owner: GIWorld-Hepatitis-owner@yahoogroups.com
              > > URL to this page: http://groups.yahoo.com/group/GIWorld-Hepatitis
              > >
              > >
              > > Your use of Yahoo! Groups is subject to
              http://docs.yahoo.com/info/terms/
              >
              >
              >
              > Welcome to GIHepWorld
              >
              > Post message: GIWorld-Hepatitis@yahoogroups.com
              > Subscribe: GIWorld-Hepatitis-subscribe@yahoogroups.com
              > Unsubscribe: GIWorld-Hepatitis-unsubscribe@yahoogroups.com
              > List owner: GIWorld-Hepatitis-owner@yahoogroups.com
              > URL to this page: http://groups.yahoo.com/group/GIWorld-Hepatitis
              >
              >
              > Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
              >
              >
              >
            • Pat
              I take a lot of vitamins, esp the B s, and it makes my urine yellow too. Sometimes vitamins have additives in them that may change the color of your urine.
              Message 6 of 8 , Aug 31, 2001
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                I take a lot of vitamins, esp the B's, and it makes my urine yellow too. Sometimes vitamins have additives in them that may change the color of your urine.

                About the darker urine, tell your doc. Darker urine may mean some liver problems. I know that 10 years ago, when my liver enzymes were high, my urine was darker. When I have over done things, and my body is hurting, my urine darkens but not much, just something I've noticed over the years. My doc keeps checking my blood sugar for diabetes cuz I have frequent urination, kidney/bladder infections, yeast problems, etc etc. However, I've found that if I don't get too tired, drink lots of water and stay away from cokes and tea, I don't have any problems with those things. My blood sugar always turns out normal.

                Now I'm no doc, but I think maybe the hep has made my kidneys and bladder more sensitive. <shrug> I've been to urologists who can't find anything wrong. So I do what I can for myself and keep my doc informed. Maybe in my autopsy, they'll figure it out! hahaha

                I am concerned about my kidneys tho cuz my mom had kidney problems. At 35 she found out she had only one kidney. She found out when she went in for a checkup for a surprise pregnancy haha, my little sister. They ran a bunch of tests and couldn't find what caused it. Her other kidney, they said, was fine.

                Then at about 55, the one kidney she had was barely working, just enough she didn't need dialysis. A little later, she had a small stroke and the dye they used caused her one "good" kidney to fail. They said her body was full of blood clots and that this perhaps caused her kidneys to fail, not getting a good supply of blood, in and out.

                I wish I knew then what I knew now about Hep. I knew then I had hep c but wasn't concerned about it cuz the doc I had at the time said I was "cured" after my liver enzymes had returned to normal. I would have asked my mom to get tested for hep, knowing she's been jaundiced a few times when she was younger, and once when I was about 2.

                Sorry, I'm rambling.. I'm at work and things are a little slow, almost everyone has taken off for the holiday!

                So I and my doc are keeping an eye on my kidneys, that's my point hahaha.

                happy friday!

                alley



                Pat

                mailto:alleypat@... andromedagurl@...

                note: alleypat@... will be disconnected at the end of August



                ---------------------------------
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              • Carol
                Hi Bob Thanks, I didn t know Niacin isn t good for us. I checked the label, no niacin in it, I take B50. Before I started taking that my hair was falling
                Message 7 of 8 , Aug 31, 2001
                • 0 Attachment
                  Hi Bob

                  Thanks, I didn't know Niacin isn't good for us. I checked the label, no niacin
                  in it, I take B50. Before I started taking that my hair was falling out. I
                  don't eat very healthy except for a salad everynight. I will have to work on
                  that. Anyone know if too much dairy products are super bad for us....I know too
                  much anything isn't good, but I like ice-cream lol.

                  Carol

                  rep@... wrote:

                  > Carol I just read part of your post about vitamin B. I hope you are not
                  > taking a lot of Niacin.
                  > Bob
                  >
                  > ----- Original Message -----
                  > From: "Carol" <csean@...>
                  > To: <GIWorld-Hepatitis@yahoogroups.com>
                  > Sent: Thursday, August 30, 2001 8:58 PM
                  > Subject: Re: [GIWorld-Hepatitis] question 4 alley??
                  >
                  > > Hi Cher
                  > >
                  > > I empathize with how you're feeling about Docs. My last Dr. who retired
                  > left
                  > > a lump in my Moms breast go for 9 months before he sent her to a
                  > specialist.
                  > > She immediately then had a mastectomy. You gotta wonder about certain
                  > Docs
                  > > and one of them is mine. But I live in a big city and can change. But I
                  > > can't see a specialist without a Drs refferal.
                  > >
                  > > You also mentioned your urine? Can you expand on that? I'm new to this
                  > > group too, and have noticed changes in my urine color. When I take vit. B
                  > my
                  > > urine is yellow, that is normal, but lately it's streaky. When I don't
                  > take
                  > > vit. B it's getting sorta brownish which I know is a bad sign. I picked
                  > up
                  > > some milk thistle today, will start on that tonight. Expensive little
                  > > devils, ain't they? LOL.
                  > >
                  > > Thanks
                  > > Carol
                  > >
                  > > cher_002@... wrote:
                  > >
                  > > > I am doing this in a hurry so I hope I hv gotten these names right.
                  > > > Anyway, u mentioned u were under the "older" treatment and took the
                  > > > shots every other dy instead of 3 times a week. How did u manage to
                  > > > get to do that when I hv always heard that is what the dosage is.
                  > > > Just wondering about that. It sounds like u caught yours very early.
                  > > > My primary dr. treated me for arthritis (joint pain) for four years
                  > > > because I didn't hv any insurance so of course there ws no blood work
                  > > > done. If there had of been, I would hv prob caught this much earlier,
                  > > > but u can bet that as soon as I did get insurance thru the company I
                  > > > work for that it ws the first thing he did ws do blood work and that
                  > > > is how i found out I had it. If it ws done 4 years ago when I first
                  > > > went to him with my symptons I might hv been in better shape. Here in
                  > > > the last year the symptons just got a little worse right about the
                  > > > time I did get the insurance then the blood work then the news of hep
                  > > > C and at that time (March) enzymes were high but nothing else but
                  > > > positive for hep C. His take on it ws, well we'll just keep an eye on
                  > > > them and the next time u come over we'll do more blood work to see if
                  > > > they r staying the same going up or down, but everything else ws
                  > > > normal. He ws just too vague and i knew he had done jerked me around
                  > > > enough in the last 4 years. All he knew ws to write the prescriptions
                  > > > out 4 pain pills (of course with lots of tylenol) that I am sure
                  > > > wreaked havoc on my liver. I had already went to see a G.I. by the
                  > > > time of my next appoint with the dr that diagnosed me after I got the
                  > > > insurance and of course when I went to his office I had to see
                  > > > another dr and they did not even order more tests. Glad I had already
                  > > > used my head and went and sought out a speacilist on my own and wd be
                  > > > still be waiting on that if it weren't for this other dr who called
                  > > > in a favor and got me into see the specialist or I wd still be
                  > > > sitting here waiting with no biopsy done-nothing. It hs never been a
                  > > > question of not getting treatment if I had too. Just lucky in this
                  > > > time of my life that I do hv a little insurance and I am keeping my
                  > > > fingers crossed that they will pay for the prescriptions. I am not
                  > > > sure with the newer pegulated treatments if the insurance would pay
                  > > > since it is so new. I wonder about that. I hv already stressed to
                  > > > this dr that I would prefer the newer versions of treatment
                  > > > pegintron, but he acts like it hs not been approved and he knows
                  > > > nothing about it. I am stuck between a rock and hard place because
                  > > > there is just not that many of these types of drs where I live and if
                  > > > I were to travel there would still be a long long wait just to get in-
                  > > > so i really feel like I hv to take whatever treatment they want to
                  > > > dish out even though I don't think that is very fair. U can bet if it
                  > > > ws the dr's sister mother or any other relative they wd be getting
                  > > > the newest and best treatments available. Wonder when dr's get so
                  > > > insistive that they just don't seem to care. Well, sorry, just wanted
                  > > > to vent a little I guess as this hs been so frustrating as I am sure
                  > > > u all hv been thru it. Everyone seems to be so educated in this and
                  > > > know the answers and here I feel so stupid half the time and as soon
                  > > > as i get something figured out something else comes along to
                  > > > contradict that so who knows. Anyway sorry for venting.
                  > > > cheri
                  > > >
                  > > >
                  > > > Welcome to GIHepWorld
                  > > >
                  > > > Post message: GIWorld-Hepatitis@yahoogroups.com
                  > > > Subscribe: GIWorld-Hepatitis-subscribe@yahoogroups.com
                  > > > Unsubscribe: GIWorld-Hepatitis-unsubscribe@yahoogroups.com
                  > > > List owner: GIWorld-Hepatitis-owner@yahoogroups.com
                  > > > URL to this page: http://groups.yahoo.com/group/GIWorld-Hepatitis
                  > > >
                  > > >
                  > > > Your use of Yahoo! Groups is subject to
                  > http://docs.yahoo.com/info/terms/
                  > >
                  > >
                  > >
                  > > Welcome to GIHepWorld
                  > >
                  > > Post message: GIWorld-Hepatitis@yahoogroups.com
                  > > Subscribe: GIWorld-Hepatitis-subscribe@yahoogroups.com
                  > > Unsubscribe: GIWorld-Hepatitis-unsubscribe@yahoogroups.com
                  > > List owner: GIWorld-Hepatitis-owner@yahoogroups.com
                  > > URL to this page: http://groups.yahoo.com/group/GIWorld-Hepatitis
                  > >
                  > >
                  > > Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
                  > >
                  > >
                  > >
                  >
                  >
                  > Welcome to GIHepWorld
                  >
                  > Post message: GIWorld-Hepatitis@yahoogroups.com
                  > Subscribe: GIWorld-Hepatitis-subscribe@yahoogroups.com
                  > Unsubscribe: GIWorld-Hepatitis-unsubscribe@yahoogroups.com
                  > List owner: GIWorld-Hepatitis-owner@yahoogroups.com
                  > URL to this page: http://groups.yahoo.com/group/GIWorld-Hepatitis
                  >
                  >
                  > Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
                • Tatezi
                  Carol, Anything containing fat is difficult for our livers to deal with. But I believe that most things on occasion can t cause too much damage. After all, we
                  Message 8 of 8 , Sep 1, 2001
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                    Carol,

                    Anything containing fat is difficult for our livers to deal with. But I
                    believe that most things on occasion can't cause too much damage. After
                    all, we do need to have some enjoyment in our lives.

                    Ice cream, butter, cheese, red meats, etc. all contain excessive amounts
                    of fat. Doing chinese medicine, those foods are taboo to me. But, I do
                    cheat on occasion. Veges, grains, fruit, fish and water get real boring
                    (at least to me) after a while. But I do notice that when I cheat, I am
                    sluggish for a few days while my liver deals with those fats.

                    I've sorta set up a bonus day for myself...and it's always a Saturday
                    because then I have Sunday to recover before returning to work. If there
                    is something I've been craving and I've been eating healthy all week, on
                    Saturday I'll fulfill that craving. It's been hard learning to
                    discipline myself, but it's a matter of my life and that puts it in a
                    different perspective.

                    Tatezi

                    Carol wrote:

                    > Hi Bob
                    >
                    > Thanks, I didn't know Niacin isn't good for us. I checked the label,
                    > no niacin
                    > in it, I take B50. Before I started taking that my hair was falling
                    > out. I
                    > don't eat very healthy except for a salad everynight. I will have to
                    > work on
                    > that. Anyone know if too much dairy products are super bad for
                    > us....I know too
                    > much anything isn't good, but I like ice-cream lol.
                    >
                    > Carol
                    >
                    > rep@... wrote:
                    >
                    > > Carol I just read part of your post about vitamin B. I hope you are
                    > not
                    > > taking a lot of Niacin.
                    > > Bob
                    > >
                    > > ----- Original Message -----
                    > > From: "Carol" <csean@...>
                    > > To: <GIWorld-Hepatitis@yahoogroups.com>
                    > > Sent: Thursday, August 30, 2001 8:58 PM
                    > > Subject: Re: [GIWorld-Hepatitis] question 4 alley??
                    > >
                    > > > Hi Cher
                    > > >
                    > > > I empathize with how you're feeling about Docs. My last Dr. who
                    > retired
                    > > left
                    > > > a lump in my Moms breast go for 9 months before he sent her to a
                    > > specialist.
                    > > > She immediately then had a mastectomy. You gotta wonder about
                    > certain
                    > > Docs
                    > > > and one of them is mine. But I live in a big city and can
                    > change. But I
                    > > > can't see a specialist without a Drs refferal.
                    > > >
                    > > > You also mentioned your urine? Can you expand on that? I'm new
                    > to this
                    > > > group too, and have noticed changes in my urine color. When I
                    > take vit. B
                    > > my
                    > > > urine is yellow, that is normal, but lately it's streaky. When I
                    > don't
                    > > take
                    > > > vit. B it's getting sorta brownish which I know is a bad sign. I
                    > picked
                    > > up
                    > > > some milk thistle today, will start on that tonight. Expensive
                    > little
                    > > > devils, ain't they? LOL.
                    > > >
                    > > > Thanks
                    > > > Carol
                    > > >
                    > > > cher_002@... wrote:
                    > > >
                    > > > > I am doing this in a hurry so I hope I hv gotten these names
                    > right.
                    > > > > Anyway, u mentioned u were under the "older" treatment and took
                    > the
                    > > > > shots every other dy instead of 3 times a week. How did u manage
                    > to
                    > > > > get to do that when I hv always heard that is what the dosage
                    > is.
                    > > > > Just wondering about that. It sounds like u caught yours very
                    > early.
                    > > > > My primary dr. treated me for arthritis (joint pain) for four
                    > years
                    > > > > because I didn't hv any insurance so of course there ws no blood
                    > work
                    > > > > done. If there had of been, I would hv prob caught this much
                    > earlier,
                    > > > > but u can bet that as soon as I did get insurance thru the
                    > company I
                    > > > > work for that it ws the first thing he did ws do blood work and
                    > that
                    > > > > is how i found out I had it. If it ws done 4 years ago when I
                    > first
                    > > > > went to him with my symptons I might hv been in better shape.
                    > Here in
                    > > > > the last year the symptons just got a little worse right about
                    > the
                    > > > > time I did get the insurance then the blood work then the news
                    > of hep
                    > > > > C and at that time (March) enzymes were high but nothing else
                    > but
                    > > > > positive for hep C. His take on it ws, well we'll just keep an
                    > eye on
                    > > > > them and the next time u come over we'll do more blood work to
                    > see if
                    > > > > they r staying the same going up or down, but everything else ws
                    >
                    > > > > normal. He ws just too vague and i knew he had done jerked me
                    > around
                    > > > > enough in the last 4 years. All he knew ws to write the
                    > prescriptions
                    > > > > out 4 pain pills (of course with lots of tylenol) that I am sure
                    >
                    > > > > wreaked havoc on my liver. I had already went to see a G.I. by
                    > the
                    > > > > time of my next appoint with the dr that diagnosed me after I
                    > got the
                    > > > > insurance and of course when I went to his office I had to see
                    > > > > another dr and they did not even order more tests. Glad I had
                    > already
                    > > > > used my head and went and sought out a speacilist on my own and
                    > wd be
                    > > > > still be waiting on that if it weren't for this other dr who
                    > called
                    > > > > in a favor and got me into see the specialist or I wd still be
                    > > > > sitting here waiting with no biopsy done-nothing. It hs never
                    > been a
                    > > > > question of not getting treatment if I had too. Just lucky in
                    > this
                    > > > > time of my life that I do hv a little insurance and I am keeping
                    > my
                    > > > > fingers crossed that they will pay for the prescriptions. I am
                    > not
                    > > > > sure with the newer pegulated treatments if the insurance would
                    > pay
                    > > > > since it is so new. I wonder about that. I hv already stressed
                    > to
                    > > > > this dr that I would prefer the newer versions of treatment
                    > > > > pegintron, but he acts like it hs not been approved and he knows
                    >
                    > > > > nothing about it. I am stuck between a rock and hard place
                    > because
                    > > > > there is just not that many of these types of drs where I live
                    > and if
                    > > > > I were to travel there would still be a long long wait just to
                    > get in-
                    > > > > so i really feel like I hv to take whatever treatment they want
                    > to
                    > > > > dish out even though I don't think that is very fair. U can bet
                    > if it
                    > > > > ws the dr's sister mother or any other relative they wd be
                    > getting
                    > > > > the newest and best treatments available. Wonder when dr's get
                    > so
                    > > > > insistive that they just don't seem to care. Well, sorry, just
                    > wanted
                    > > > > to vent a little I guess as this hs been so frustrating as I am
                    > sure
                    > > > > u all hv been thru it. Everyone seems to be so educated in this
                    > and
                    > > > > know the answers and here I feel so stupid half the time and as
                    > soon
                    > > > > as i get something figured out something else comes along to
                    > > > > contradict that so who knows. Anyway sorry for venting.
                    > > > > cheri
                    > > > >
                    > > > >
                    > > > > Welcome to GIHepWorld
                    > > > >
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