Be grateful you didn't go on Infergen,
it was soooo bad, 10 times worse
than combo. I'm a non-responder
to both! Now in the running for new
clinical trials on a PEG variation.
Good luck, cyn
From: Skandalyze@... <Skandalyze@...>
To: GIWorld-Hepatitis@onelist.com <GIWorld-Hepatitis@onelist.com>
Date: Wednesday, February 02, 2000 6:38 AM
Subject: [GIWorld-Hepatitis] Hope
> I'm Simone and I've probably had this bug for maybe 30 years. Who
>knows? I also found out I'd had B and A at one time, but have antibodies.in
>But my liver is in 2, 3 and 4 stage now. I've done the Intron-A. Then the
>combo. My blood and thyroid got so messed up that I had to quit after 9
>months, not that much had happened except my viral load had dropped a
>million. From 6 to 5 million, in the first 3 months. But that was it.
>(Lately I've found that the amount doesn't mean much since I was 6 million
>June, '98, 125 million in January, '99, and back to 50 million this pastmy
>November! I hear it always fluctuates.
> I had a little problem during the first month of treatment, when my GP
>gave me a sulfa drug for a urinary infection, that I had probably cured on
>own with tons of water and vitamin C! But he wanted to be sure to get itthe
>first time, and took a day to culture it and see what would work. Hedidn't
>know that sulfa is toxic to the liver. Anyway, I must have gone into nearliv
>er failure............lost 20 pounds overnight. And then had to fight myway
>back whilst on the treatment!And
> Now after 2 years of recoop after treatment, I've had another biopsy
>which shows more liver damage. I'm sure it's more from the sulfa than the
>treatment or the hep. Anyway, it took me 2 years to be able to eat and get
>back to normal. Fill in the folds and get rid of most of the brain fog.
>not see white things swimming in my vision! I could have sworn they hadjoints
> My thyroid's still whacked. Erratic. Up and down. Can't keep up with
>the dosing for it. But it's better than before. While on the treatment, I
>was growing lumps and bumps under thickening skin. Especially at the
>and on my legs. I wasn't on the Actigall then, so I was tearing my skinoff,
> I've studied much. I now get this great newletter from Hepatitis
> It tells of all hep news as it happens. Some a little not so important.even
>But alot of new and upcoming things are on the horizon! The doctors are
>saying that it won't be long. Saying to forgo the treatments and wait. I(or
>see that the Rhibozyme (the DNA snippers) is going to go into trials. It
>sounds promising. The protease inhibitor is getting closer because they've
>finally found out the shape of the virus and now can design an inhibitor to
>fit around it and stop it from replicating. And with all the researchers
>should I say pharmaceutical companies), getting together to work on thisnew
>stuff, it shouldn't be too long. There's also something coming that theycould
>think will boost the immune system to even stop cancer! All these are non
>toxic with no side effects!
> I'm so glad my blood levels wouldn't allow me to go on Infergen! I
>have. But with low platelets, low white cells and a chronically offthyroid,
>I knew there would be trouble. The doctor told me of some others on it,and
>what it could do. I didn't want to risk going downhill again, after takingsometimes
>this long to feel and look semi-human again!
> If any of you want to email me with questions, feel free. I've been
>through it all. And I've been researching for years now. I can't find the
>address for the latest Hep news ..........but I get updates daily,
>more often, and I'll post it here.
> Keep the faith..............we're gonna make it..............dammit!
>Just take care of those livers..................water, water, water, milk
>thistle, flax oil..................
>My heart goes out to all of you ....................
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