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Re: [GIWorld-Hepatitis] question: stadol etc

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  • Alley/Pat
    Tatazi thank you for your reply :) As for liver problems, I ve no liver damage, just inflamation so altho I do what what I take, I can be more flexible than
    Message 1 of 18 , May 9, 2001
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      Tatazi thank you for your reply :)

      As for liver problems, I've no liver damage, just inflamation so altho I do
      what what I take, I can be more flexible than someone with liver damage.

      Yeah, I can tell the difference between a sinus induced migraine and a reg
      migraine. Other migraine begins in my neck and shoulders. If I get that
      relaxed long enough, I'll kick it. But you're right, once it's there it's a
      bugger to get rid of. The sinus migraines also hurt in my face and ears type
      area. If I can get rid of the pressure, I can usually get the worst part of
      the migraine down to a dull throb and eventually gone.

      I talked to my gastro nurse today, you know the one been giving me the brush
      off the past 3 weeks I've been asking for help. She said sometimes stadol
      doesn't work. OK fine, so I'm living proof. I don't care what they give me,
      hell, a tootsie roll pop, long as it works.

      Also, she insisted the symptoms I'm having is not treatment related and that
      the tsh normal range is 0.5 to 6 and i was 5.75 or something. I asked her to
      fax my labs to my primary care physician. I don't know what is wrong but
      this certainly isn't right :)

      My main problem is I have NO money! I will call primary in the morning and
      see if he'll take a postdated check, usually he does. I'll have to postpone
      the gastro, he's even more expensive. He should have my pcr results but
      nurse wasn't telling me. She did say all my labs are in normal.

      I don't feel normal :)

      I'd see a shrink if I had the bucks, and plan on it when we get insurance. I
      need an objective person to assess whether to continue anti d's and which
      ones are best for me without making me groggy and dull minded.

      Are there any generic antidepressants?

      Yes, I have a high tolerance to drugs too. It's like my body say ok fine and
      goes on about its business without acknowledging it. I think it's really an
      alien invasion that has my body hoodwinked into doing what IT wants and not
      what I do lol. Just call me hepper host.

      Well I've used drugs in my youth, but didn't consider it a "problem" as I
      sort of grew out of it I guess you'd say. Drugs aren't a problem till they
      make them chocolate and sweet :)

      I know I look a fright when I go in to doc with a migraine. Purple bags
      under my eyes, pale face, hair sticking out everywhere, in my micky mouse
      house shoes, baggy sweats, old holy t shirt and no bra. If I were 20 years
      younger I'd join a Goth group lol.

      You may be speaking of Inderal. I've taken that many years ago and it didn't
      do anything. It is a beta blocker. I also have Imitrex, Zomig and Maxalt,
      but if it is sinus in origin, those don't do much.

      Normally I do Tai Chi and meditate for stress but I've been so wiped with no
      energy, I do good to walk from room to room. The aristacort shot I had for
      the sinus is helping me feel better a little till I do too much and I'm just
      as sick as usual.

      Thanks tat

      Patricia / alley
      Grand Prairie, Tx, USA, Earth

      "To endure is greater than to dare; to tire out hostile fortune;
      to be daunted by no difficulty; to keep heart when all have lost it -- who
      can say this is not greatness? "
      ~ William Makepeace Thackeray ~ (1811 - 1863)

      http://communities.msn.com/TheMagog
      http://clubs.yahoo.com/clubs/writingandpublishing
      http://www.alleypat.com
      http://community.dallasnews.com/dmn/dfwliver
      http://alleypat.livejournal.com
    • Alley/Pat
      I thot cold was hypER and hot was hypO Yes, over the years I ve gotten to where I hate winters, but this winter never bothered me, didn t even wear my coat.
      Message 2 of 18 , May 9, 2001
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        I thot cold was hypER and hot was hypO

        Yes, over the years I've gotten to where I hate winters, but this winter
        never bothered me, didn't even wear my coat.

        Patricia
        Grand Prairie, Tx, USA, Earth

        "To endure is greater than to dare; to tire out hostile fortune;
        to be daunted by no difficulty; to keep heart when all have lost it -- who
        can say this is not greatness? "
        ~ William Makepeace Thackeray ~ (1811 - 1863)

        http://communities.msn.com/TheMagog
        http://clubs.yahoo.com/clubs/writingandpublishing
        http://www.alleypat.com
        http://community.dallasnews.com/dmn/dfwliver
        http://alleypat.livejournal.com
      • claudine intexas
        ... No, I think it s the other way around. Although I don t believe it. I m hypo, and I m hot, although like I said, right now with my TSH down to .55 I feel
        Message 3 of 18 , May 9, 2001
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          --- Alley/Pat <alleypat@...> wrote:
          > I thot cold was hypER and hot was hypO
          >
          > Yes, over the years I've gotten to where I hate
          > winters, but this winter
          > never bothered me, didn't even wear my coat.

          No, I think it's the other way around. Although I
          don't believe it. I'm hypo, and I'm hot, although like
          I said, right now with my TSH down to .55 I feel much
          better. Of course, we live in Texas, and it's HOT
          here most of the time. I run my air conditioner in my
          bedroom almost all year round. Just can't sleep if
          I'm hot! My husband freezes, climbs into bed with
          sweats and piles on extra blankets.

          So much of what you say sounds like two things -
          hypothyroidism, and maybe cryoglobulinemia since so
          many of your pretreatment symptoms are back since you
          stopped, but were gone during. I don't care what your
          gastro nurse says, to me 5+ anything is HIGH. It's
          their normal range that is screwed up. And if your
          pretreatment TSH was much lower, that right there says
          that it's not normal for you. I don't know what they
          have in Dallas but in San Antonio (actually Bexar
          County) they have something called 'CareLink' for
          people who don't qualify for Medicaid. I think you
          have a PCP, and get referrals to specialists. And
          there is always the ER. That is where my neighbor was
          diagnosed with hypothyroidism. When I read those
          articles on subclinical and undertreated
          hypothyroidism I got out all my lab tests from before
          I was on treatment, when I first saw an
          endocrinologist, and all after, and it showed that
          from my last visit to an endocrinologist my TSH had
          done a steady climb from about 1 in 8/98 (?) to 3.36
          in January of this year. I had gained about 12 pounds
          during 2000 no matter what I did, getting more and
          more fatigued, memory problems, hair dry, brittle,
          mood swings - just about everything on that check
          list! I took copies of all those lab tests to the
          doctor, and he IMMEDIATELY saw the pattern of my TSH
          climbing, said most women felt best with a TSH of 2 or
          less. He said that probably what is happening is that
          my thyroid is continuing to fail, thus the need for a
          medication adjustment. He put me on a T-3 supplement,
          which is 'fast acting' thyroid hormone, and I feel so
          much better now. I've also lost that 12 pounds too! I
          do think it will be tough to convince a non-specialist
          that you are really subclinically hypothyroid, but you
          could try giving your PCP all your lab copies, and a
          copy of those articles and see what happens. T-4
          supplements are cheap, and he could always try you on
          a real low dose and see what happens.
          Good luck!
          Claudine


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        • Alley/Pat
          Claudine, Thanks :)) Yes, tonight my muscle burning and toe cramps are back in full swing. ick I wasn t sure if ER could or would see me. I would assume I d
          Message 4 of 18 , May 9, 2001
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            Claudine,

            Thanks :))

            Yes, tonight my muscle burning and toe cramps are back in full swing. ick

            I wasn't sure if ER could or would see me. I would assume I'd have to go to
            the county hospital? I like Parkland in Dallas, but don't have much respect
            for John Peter Smith in Ft. Worth.

            If I could get in there and not have to pay or pay little or pay it out that
            would help.

            Patricia
            Grand Prairie, Tx, USA, Earth

            "To endure is greater than to dare; to tire out hostile fortune;
            to be daunted by no difficulty; to keep heart when all have lost it -- who
            can say this is not greatness? "
            ~ William Makepeace Thackeray ~ (1811 - 1863)

            http://communities.msn.com/TheMagog
            http://clubs.yahoo.com/clubs/writingandpublishing
            http://www.alleypat.com
            http://community.dallasnews.com/dmn/dfwliver
            http://alleypat.livejournal.com
          • jessiefromchino@webtv.net
            Hi All, I to am a little behind in my e-mail. But hear goes. Alley-Pat you have such a way with words and putting them down on paper. I totally know what you
            Message 5 of 18 , May 10, 2001
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              Hi All,
              I to am a little behind in my e-mail. But hear goes. Alley-Pat you have
              such a way with words and putting them down on paper. I totally know
              what you are going thru because everything you say I have been feeling,
              the migraines head ache the sweats and All. My sinus have been going
              Crazy I thought it might be the birds I have so I have been butting them
              out every day and giving them a bath all the time. (poor birds) I am so
              tired of going to the doctor all the time with this and that she must
              think I am crazy. But you but it all down on paper just the way I have
              felt. Thank you so much. You have been such a part of my life this last
              year and a half. Reading your e-mails has got me thru so much.
              Claudine thank you so much for all your info. It is helping me so
              much and I am able to tell my doctors how I feel and get across to them
              what I mean. I hope I make scenic.
              It is so hard for me to write down how I feel or want to say I
              only have a 9th grade education(think god for spell check)
              But today I just feel the need to tell you all how I feel and thank you
              so much.
              This has been a long journey and not over yet. I am off treatment 4
              moths know. I went to the liver doctor last week and had a thing done
              where he goes down your throat with a scope. For got what it is called I
              go back to the doctors on mon. to find out the results, will let you
              know more then. I picked up a viruses last week and it kicked my butt.
              But am feeling good know. I am going to make a apt. with a health and
              wellness doctor next week. I am going to try herbs and vitamins know
              that I am feeling better and off treatment. Thank You All So
              Much
              LUV,
              Jessie







              E-Z DOES IT
            • Alley/Pat
              Jessie, Your email made me feel good :) I m glad you could identify with my symptoms and sorry to hear you have them too! I didn t go to doc today at all. The
              Message 6 of 18 , May 10, 2001
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                Jessie,

                Your email made me feel good :) I'm glad you could identify with my symptoms
                and sorry to hear you have them too!

                I didn't go to doc today at all. The gastro faxed my lab results to my
                primary, but we are so short on money it's go to doc or eat. And I certainly
                can't afford the gastro yet. The pcr hasn't come in yet either :((

                I've returned to the max effexor (150 twice a day) but my brain feel so
                dull. All the art projects I've begun while free of the effexor (one week
                completely without haha) are now just of no interest. I am hoping with a
                little more time, I can wean back off them and even if I have to take them
                continuously, I can find something that doesn't affect my creativeness. I
                haven't written very much at all in the way of my fiction since starting the
                antidepressants. So it's kinda like do I want to end up in a padded cell and
                be creative haha or be dull and "normal". I think with time, as the
                treatment meds flush out of my system, things will calm down. If not,
                hopefully I'll have the funds to go to doc.

                My grandson, Chris, is 9 and I watch him after school. He brings home all
                kinds of viruses and luckily, while on the combo I didn't get sick with any.
                I mean for someone who's never had the flu or measles or chicken pox (or at
                least I never knew it) i hate getting sick. I'm a terrible patient haha. An
                impatient patient. I think we should be called "impatients" cuz that's
                exactly what we are. Anyway, his doc said he had some kind of bug and a low
                grade fever. I'm popping some vitamin C haha.

                Good luck. Let us know what happens.
                alley

                Patricia
                Grand Prairie, Tx, USA, Earth

                "To endure is greater than to dare; to tire out hostile fortune;
                to be daunted by no difficulty; to keep heart when all have lost it -- who
                can say this is not greatness? "
                ~ William Makepeace Thackeray ~ (1811 - 1863)

                http://communities.msn.com/TheMagog
                http://clubs.yahoo.com/clubs/writingandpublishing
                http://www.alleypat.com
                http://community.dallasnews.com/dmn/dfwliver
                http://alleypat.livejournal.com
              • claudine intexas
                ... You know, shortly after my gout attack that turned out not to be gout, back at the beginning of January, I started getting cramps, mostly at night, in my
                Message 7 of 18 , May 10, 2001
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                  --- Alley/Pat <alleypat@...> wrote:

                  > Yes, tonight my muscle burning and toe cramps are
                  > back in full swing. ick


                  You know, shortly after my gout attack that turned out
                  not to be gout, back at the beginning of January, I
                  started getting cramps, mostly at night, in my feet,
                  and then my calves. I told my doctor about it and he
                  was puzzled, recent blood tests showed my potassium
                  levels were fine. He said to try an extra blanket
                  over my legs to see if cold could be the cause (hah!),
                  but that didn't help. Now he is sending me for an xray
                  of my lower back, although I don't think anything
                  serious could be wrong there, all MY problems are in
                  my neck and upper back. I haven't had any real problem
                  with them the past month or so though - they just seem
                  to have stopped. Of course, the last time I said that
                  they started up again. I wonder if vasculitis would
                  cause something like these feet and leg cramps?
                  Claudine


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                • Tatezi
                  I m so glad you don t have any liver damage....you are truly blessed. ... You are lucky there too...I miscalled many a headache over the years and by the time
                  Message 8 of 18 , May 10, 2001
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                    I'm so glad you don't have any liver damage....you are truly blessed.


                    > Yeah, I can tell the difference between a sinus induced migraine and a
                    > reg migraine.

                    You are lucky there too...I miscalled many a headache over the years and
                    by the time I realized it was a migraine and not sinus, it was too late.
                    Tension in my neck and shoulders wasn't a clue for me....there was
                    always tension and knotted muscles in that area.

                    > I talked to my gastro nurse today, you know the one been giving me the
                    > brush off the past 3 weeks I've been asking for help. She said
                    > sometimes stadol doesn't work.

                    Sometimes I would think that death would be preferable to the pain that
                    was going on in my head. Many times you can disassociate yourself from
                    pain in the limbs, etc....but there is no way to disassociate from pain
                    in your head.

                    > I don't know what is wrong but this certainly isn't right :)

                    I agree and my thoughts are with you that someone will get to the bottom
                    of what is going on. Western medical professionals are just infuriating
                    when they don't listen to us....like we don't know when something is
                    wrong in our body.

                    > I will call primary in the morning and see if he'll take a postdated
                    > check, usually he does.

                    I'll be sending positive thoughts your way...if you have a good
                    relationship with your MD and he is a caring person, he should be
                    willing to work with you.

                    > I need an objective person to assess whether to continue anti d's and
                    > which ones are best for me without making me groggy and dull minded.

                    Have you ever thought about or tried the herb St Johns Wort? I've heard
                    nothing but good things about it from people who do take it but have no
                    personal experience. Although my chinese medical practitioner
                    recommended I try it, I haven't been able to afford to add it to my
                    regime....hopefully my payday on the 15th will allow me to start on it.
                    I've had a tough couple weeks due to one of my cats having to get a
                    triple mastectomy.

                    > Are there any generic antidepressants?

                    Depends on what country you live in. Canada has generic antidepressents
                    but our american pharmaceutical companies hate to give up those big
                    bucks. Again, if you've never tried St. Johns Wort it might help you.


                    > Well I've used drugs in my youth, but didn't consider it a "problem"
                    > as I sort of grew out of it I guess you'd say.

                    The same with me but when doctors know that you did any drugs at all in
                    the past they tend to judge you based on that. They sure are a narrow
                    minded group of people...as a rule since not all are like that.

                    > Drugs aren't a problem till they make them chocolate and sweet :)

                    When I was doing all those headache clinics and things, I learned that
                    two of the worst food allergy causes of migraines were chocolate and
                    pork. Just thought I'd pass that along.

                    > You may be speaking of Inderal. I also have Imitrex, Zomig and Maxalt,
                    > but if it is sinus in origin, those don't do much.

                    It was Imitrex that I was thinking of....but don't know anything except
                    what the commercials on tv say about it.

                    > Normally I do Tai Chi and meditate for stress but I've been so wiped
                    > with no energy, I do good to walk from room to room.

                    Both of those are excellent for stress, but when fighting a migraine it
                    is next to impossible to relax enough to do either of them. I bought a
                    relaxation tape that uses deep breathing and progressive relaxation
                    techniques and found it helped me alot...I needed that guidance.
                    Progressive relaxation is tensing various muscles starting with your
                    feet and then relaxing them, sinking into whatever you are lying on. You
                    work your way up from your feet to even your tongue. One nice thing is
                    it teaches you to recognize when your muscles are relaxed.

                    Sure hope I was able to help you in any little way. My heart goes out to
                    you with what you are going through right now and I'd really like to be
                    able to do something that would help.

                    Blesings
                    Tatezi


                    [Non-text portions of this message have been removed]
                  • claudine intexas
                    Hi Jessie, Thank you for the nice words. Let us know what the results of your endoscopy are - was that the correct test you had? I hope you get to feeling
                    Message 9 of 18 , May 10, 2001
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                      Hi Jessie,
                      Thank you for the nice words. Let us know what
                      the results of your endoscopy are - was that the
                      correct test you had? I hope you get to feeling
                      better! Maybe it IS allergies, this is a bad time of
                      the year for those. Good luck!
                      Claudine


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                    • Alley/Pat
                      might... A few years ago my doc said to take quinine for the muscle cramps. I did once, felt like I was having a heart attack. bad reaction. but I didn t have
                      Message 10 of 18 , May 11, 2001
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                        might...

                        A few years ago my doc said to take quinine for the muscle cramps. I did
                        once, felt like I was having a heart attack. bad reaction. but I didn't have
                        any muscle cramps lol

                        if you have an electric blanket, put that on your feet. It helps me. But I
                        have a warm waterbed and it's summertime so another blanket isn't an option
                        lol

                        I am feeling better. I just wonder if it'll wear off the cortisone or
                        continue.

                        Patricia
                        Grand Prairie, Tx, USA, Earth

                        "To endure is greater than to dare; to tire out hostile fortune;
                        to be daunted by no difficulty; to keep heart when all have lost it -- who
                        can say this is not greatness? "
                        ~ William Makepeace Thackeray ~ (1811 - 1863)

                        http://communities.msn.com/TheMagog
                        http://clubs.yahoo.com/clubs/writingandpublishing
                        http://www.alleypat.com
                        http://community.dallasnews.com/dmn/dfwliver
                        http://alleypat.livejournal.com
                      • Alley/Pat
                        Tatezi.. Thanks for your reply :)) Yes I originally started on St.John s Wort and after a month, couldn t tell anything so stopped. Yep my grandmother is very
                        Message 11 of 18 , May 11, 2001
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                          Tatezi..

                          Thanks for your reply :))

                          Yes I originally started on St.John's Wort and after a month, couldn't tell
                          anything so stopped.

                          Yep my grandmother is very sensitive to chocolate, but it doesn't seem to
                          bother me. MSG and red koolaid bother me a lot. Instant unbearable headache.


                          Patricia
                          Grand Prairie, Tx, USA, Earth

                          "To endure is greater than to dare; to tire out hostile fortune;
                          to be daunted by no difficulty; to keep heart when all have lost it -- who
                          can say this is not greatness? "
                          ~ William Makepeace Thackeray ~ (1811 - 1863)

                          http://communities.msn.com/TheMagog
                          http://clubs.yahoo.com/clubs/writingandpublishing
                          http://www.alleypat.com
                          http://community.dallasnews.com/dmn/dfwliver
                          http://alleypat.livejournal.com
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