- Hello -
I am brand new to this list and am also very scared. I went to my
general doctor last week with some stiffness in the left shoulder
area and generally feeling poor. We had just gotten back from a 2500
mile drive through Florida so I thought that it may be related to
sitting in the drivers seat so long.
My sister-in-law is a dr in California and she suggested that I get
blood work in addition to an EKG and chest x-ray.
Everything looked good, but the blood work showed elavated levels of
Total Bili - 1.4 (normal .1 - 1.2), Unconj Bili - 1.3 (normal 0 -
1.1) and ALT - 78 (normal 0 - 50). All other readings were in the
I became very scared and have spent the past few days on the internet
looking for information. I did set up an appt with a
gastroenterologist for next Monday and expect to get the Hepatitis
I started to look through some medical paperwork that I had in the
files and saw that my Total Bili in September 99 was 1.7. I forget
why I had bloodowork done at the time, but it was unrelated. I am
shocked that the Dr. never alerted me to this information.
I am still having some left shoulder pain and am so damn nervous and
scared I can't believe. I am 35 and got the series of Hepatitis B
vaccines around 1981 since I was part of an emergency response team
So if anyone has any advice, it would be appreciated. My general
doctor and the lab told me not to worry about things since the
numbers were not very high, BUT they were not aware that my Total
Bili was high from 1999 either.
- Hi Rick,
Well, your doctor is right that you should try
not to worry, all that stress is not good for you.
But, I know that is a LOT easier to say than to do!
There are so many things that can cause these
elevations in your blood tests I couldn't begin to say
what it might be. My son has had elevations in his
various liver function tests before, and yet tests
negative for HCV, twice now. No one but me seems to
be too concerned either! You've already made an
appointment with a GI so there is not much you can do
now but wait, and hopefully further testing will
reveal what is wrong. Hopefully it will NOT be
Here are some good places you can be looking up
information from, although most of these are
specifically about HCV, which is only ONE thing that
can cause hepatitis. There are a couple of places
that help you understand the results of some of your
LeighAnn's Hepatitis C Home
http://www.hepcprimer.com/ #1 Hepatitis C
Information about the Hepatitis C Virus
http://hepcnet.net HepCnet - a very upbeat, positive
site, lots of info, and a very active bulletin board.
At HepCnet there are no 'heppers' - only 'heppos'.
Find out for yourself, they are adorable!
Neighborhood (This is a Priority Health Care site,
fairly new and still under construction, but they have
some very good moderated chats with various hepatitis
http://www.hcvadvocate.org/ (An 'on-line' monthly HCV
magazine. Great articles every month.)
http://www.carbonbased.com/cbcblood.htm (Basic info on
basic blood test results, normal and abnormal.)
http://www.springnet.com/ce/liver.htm (liver function
http://www.hepatitisdoctor.com/ Hepatitis Doctor
http://liverdisease.com/diet.html (Dr. Melissa
http://www.rxlist.com/ RX Drug info (a very good site
to look up information on any prescription or
non-prescription drug. Even some info on herbs can be
http://www.tnp.com/ The Natural Pharmacist (One of
the best sites I've found for looking up herbs and
their uses, side effects, and possible drug
If it does turn out that you have HCV, be sure to
find a doctor who really knows about this disease -
many don't, even gastroenterologists, and some just
plain don't LIKE treating people with HCV. Find
someone who does! And if anyone tells you your
'numbers' aren't that high, to not worry, run the
other direction. In hepatitis, those numbers don't
have to be high for there to be damage, and you really
need to know for sure what is going on.
This is a great group of people here, and we'll
be there for you if you need us, but hopefully when
all is said and done you won't need us after all! Be
sure and let us know how things work out though.
Do You Yahoo!?
Yahoo! Auctions - buy the things you want at great prices
I can understand how it might be a shock :) but please don't be too scared.
Your alt isn't that high and they fluctuate all the time, even for little
things like what you ate.
I don't know about the bili and too tired right now to research it.
A few years ago, I woke up with my whole left side feeling as if hubby beat
me to death - shoulder, neck, side sore as hell.
I went to doctor thot I was dying!
We finally narrowed it down to me falling almost two months before on that
side and had such a deep bruise, it took a long while for it to "emerge".
Anti-inflammatories helped and it slowly went away.
I reeeeeeeeelly thot I was dying. Today, I think I already died, but that's
another thing haha.
Please try not to worry too much. I understand your concerns. Getting all
your hep tests will be good regardless. Always good to check things out
Let us know what happens ok? :) We do care and we'll help all we can
(aka alleypat &/or AndromedaGurl)
Grand Prairie, Tx, USA, Earth
"Dreams are like fish, you got to keep reeling"