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Scared !!!

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  • shopsafe@yahoo.com
    Hello - I am brand new to this list and am also very scared. I went to my general doctor last week with some stiffness in the left shoulder area and generally
    Message 1 of 4 , Apr 30, 2001
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      Hello -

      I am brand new to this list and am also very scared. I went to my
      general doctor last week with some stiffness in the left shoulder
      area and generally feeling poor. We had just gotten back from a 2500
      mile drive through Florida so I thought that it may be related to
      sitting in the drivers seat so long.

      My sister-in-law is a dr in California and she suggested that I get
      blood work in addition to an EKG and chest x-ray.

      Everything looked good, but the blood work showed elavated levels of
      Total Bili - 1.4 (normal .1 - 1.2), Unconj Bili - 1.3 (normal 0 -
      1.1) and ALT - 78 (normal 0 - 50). All other readings were in the
      normal ranges.

      I became very scared and have spent the past few days on the internet
      looking for information. I did set up an appt with a
      gastroenterologist for next Monday and expect to get the Hepatitis
      screenings then.

      I started to look through some medical paperwork that I had in the
      files and saw that my Total Bili in September 99 was 1.7. I forget
      why I had bloodowork done at the time, but it was unrelated. I am
      shocked that the Dr. never alerted me to this information.

      I am still having some left shoulder pain and am so damn nervous and
      scared I can't believe. I am 35 and got the series of Hepatitis B
      vaccines around 1981 since I was part of an emergency response team
      at work.

      So if anyone has any advice, it would be appreciated. My general
      doctor and the lab told me not to worry about things since the
      numbers were not very high, BUT they were not aware that my Total
      Bili was high from 1999 either.

      Thanks,
      Rick
    • claudine intexas
      Hi Rick, Well, your doctor is right that you should try not to worry, all that stress is not good for you. But, I know that is a LOT easier to say than to do!
      Message 2 of 4 , Apr 30, 2001
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        Hi Rick,
        Well, your doctor is right that you should try
        not to worry, all that stress is not good for you.
        But, I know that is a LOT easier to say than to do!
        There are so many things that can cause these
        elevations in your blood tests I couldn't begin to say
        what it might be. My son has had elevations in his
        various liver function tests before, and yet tests
        negative for HCV, twice now. No one but me seems to
        be too concerned either! You've already made an
        appointment with a GI so there is not much you can do
        now but wait, and hopefully further testing will
        reveal what is wrong. Hopefully it will NOT be
        anything serious!
        Here are some good places you can be looking up
        information from, although most of these are
        specifically about HCV, which is only ONE thing that
        can cause hepatitis. There are a couple of places
        that help you understand the results of some of your
        blood tests.

        http://www.geocities.com/TheTropics/Shores/4259
        LeighAnn's Hepatitis C Home

        http://www.hepcprimer.com/ #1 Hepatitis C
        Primer -
        Information about the Hepatitis C Virus

        http://hepatitis-central.com (Hepatitis-Central)

        http://hepcnet.net HepCnet - a very upbeat, positive
        site, lots of info, and a very active bulletin board.
        At HepCnet there are no 'heppers' - only 'heppos'.
        Find out for yourself, they are adorable!

        http://www.zebra.net/~elcazador/continue.htm (various)


        http://www.hepatitisneighborhood.com/ Hepatitis
        Neighborhood (This is a Priority Health Care site,
        fairly new and still under construction, but they have
        some very good moderated chats with various hepatitis
        specialists.)

        http://www.hcvadvocate.org/ (An 'on-line' monthly HCV
        magazine. Great articles every month.)

        http://www.carbonbased.com/cbcblood.htm (Basic info on
        basic blood test results, normal and abnormal.)

        http://www.springnet.com/ce/liver.htm (liver function
        tests, more)

        http://www.hepatitisdoctor.com/ Hepatitis Doctor

        http://liverdisease.com/diet.html (Dr. Melissa
        Palmer's site.)

        http://www.rxlist.com/ RX Drug info (a very good site
        to look up information on any prescription or
        non-prescription drug. Even some info on herbs can be
        found.)

        http://www.tnp.com/ The Natural Pharmacist (One of
        the best sites I've found for looking up herbs and
        their uses, side effects, and possible drug
        interactions.)
        If it does turn out that you have HCV, be sure to
        find a doctor who really knows about this disease -
        many don't, even gastroenterologists, and some just
        plain don't LIKE treating people with HCV. Find
        someone who does! And if anyone tells you your
        'numbers' aren't that high, to not worry, run the
        other direction. In hepatitis, those numbers don't
        have to be high for there to be damage, and you really
        need to know for sure what is going on.
        This is a great group of people here, and we'll
        be there for you if you need us, but hopefully when
        all is said and done you won't need us after all! Be
        sure and let us know how things work out though.
        Good luck!
        Claudine






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      • Alley/Pat
        Rick, I can understand how it might be a shock :) but please don t be too scared. Your alt isn t that high and they fluctuate all the time, even for little
        Message 3 of 4 , Apr 30, 2001
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          Rick,

          I can understand how it might be a shock :) but please don't be too scared.
          Your alt isn't that high and they fluctuate all the time, even for little
          things like what you ate.

          I don't know about the bili and too tired right now to research it.

          A few years ago, I woke up with my whole left side feeling as if hubby beat
          me to death - shoulder, neck, side sore as hell.

          I went to doctor thot I was dying!

          We finally narrowed it down to me falling almost two months before on that
          side and had such a deep bruise, it took a long while for it to "emerge".
          Anti-inflammatories helped and it slowly went away.

          I reeeeeeeeelly thot I was dying. Today, I think I already died, but that's
          another thing haha.

          Please try not to worry too much. I understand your concerns. Getting all
          your hep tests will be good regardless. Always good to check things out
          anyway :)

          Let us know what happens ok? :) We do care and we'll help all we can

          Patricia
          (aka alleypat &/or AndromedaGurl)
          Grand Prairie, Tx, USA, Earth
          "Dreams are like fish, you got to keep reeling"
          http://communities.msn.com/TheMagog
          http://clubs.yahoo.com/clubs/writingandpublishing
          http://www.alleypat.com
          http://community.dallasnews.com/dmn/dfwliver
          http://alleypat.livejournal.com
        • ld1961@aol.com
          Rick, Dont panic until you get a definate diagnosis. ... Linda [Non-text portions of this message have been removed]
          Message 4 of 4 , May 1, 2001
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            Rick,
            Dont panic until you get a definate diagnosis.

            :) Hang in there

            Linda


            [Non-text portions of this message have been removed]
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