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Tatezi's Update

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  • Tatezi
    Wow, I ve been hearing some great news on the list lately but I ve been pretty incommunicado. On my 6 month PCR my viral load had dropped considerably....from
    Message 1 of 4 , Apr 3, 2001
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      Wow, I've been hearing some great news on the list lately but I've been
      pretty incommunicado.

      On my 6 month PCR my viral load had dropped considerably....from
      4.2million to 5000 something. We decided to hit this dragon a little
      more aggressively by shots every other day and a one pill increase in
      the ribavarinn each day.

      Three months ago my TSH (thyroid) counts went from normal (.5 to 5.5) to
      98....not 9.8 but 98. We starte sinthroid right away. Three weeks ago we
      again tested my thyroid and the TSH was up to 110 so we doubled the
      sinthroid. I'm awaiting my doctor'c call to get the results of the test
      we ran yesterday.

      In the last month I have gotten so emotional that after several totally
      unreasonable emotional outbursts at work last Friday I've been calling
      in sick this week. I am also recognizing depression signals for the
      first time. Are these emotional imbalances the thyroid, the rebetron or
      something else. Has anyone else ever experienced this. Another thing is
      the brain fog is increasing....I actually had to call the hospital today
      to find out the name of my liver doctor. I feel like I am losing my
      mind. And headaches....all of a sudden I'm living with headaches.

      Two weeks ago I decided that everything was so out of balance with my
      mind and body that I needed to try supplementing traditional treatment
      with non traditional treatment and started Traditional Chinese Medicine
      along with the tradition rebetron. The acupuncture worked miracles on
      the muscular/skeletal pains with just the first visit. He treated my
      various more severe pains (lower back, hips, heel....plantar fasciili)
      along with my liver and immune system and gave me a custom made chinese
      herbal blend. This week I had one of my headaches so he treated that
      also along with the extreme tension and tightness in my neck and upper
      back. Has anyone else tried traditional chinese medicine in combination
      with rebetron therapy.

      And am I losing my mind or is this tension, this lack of emotional
      control, this increased crankiness, the headaches, etc. part of the
      rebetron and/or the lack of thyroid function?

      Any one have any insight?

      Blessings
      Tatezi
    • claudine intexas
      Hi Tatezi, Some of the emotional/mental/memory problems you are having may be related to the combo, but probably the greatest portion of it is the thyroid.
      Message 2 of 4 , Apr 3, 2001
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        Hi Tatezi,
        Some of the emotional/mental/memory problems you
        are having may be related to the combo, but probably
        the greatest portion of it is the thyroid. Everything
        you are describing is VERY typical of hypothyroidism.
        When that gets straightened out you will feel MUCH
        better. Are you seeing an endocrinologist? Don't
        wait as long to get your TSH rechecked. Try to get
        the doc to recheck it 6 weeks after the dose increase
        of the synthroid. You want to get it back to normal
        levels as fast as possible. I really feel for you,
        when my thyroid quit on me during treatment it was the
        sickest I have ever felt. I couldn't walk from one
        room to the next without sitting down to rest, I'd
        stand in the shower for who knows how long, not
        remembering what I was doing - had I washed my hair or
        not? And my TSH was only up to 13 - 14! You'll be
        surprised how much better you feel when your thyroid
        hormones get straightened out. I feel lousy if my TSH
        goes over 2, and best if it is kept around 1, or even
        lower. Good luck, and I hope your next PCR is
        negative!
        Claudine



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      • Tatezi
        Oh Claundine....thank you soooo much. I really thought I was losing it because I ve had it so easy during the first 6 months of treatment. I called the liver
        Message 3 of 4 , Apr 3, 2001
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          Oh Claundine....thank you soooo much. I really thought I was losing it
          because I've had it so easy during the first 6 months of treatment.

          I called the liver specialist I've been seeing and left a message as to
          what was going on and was this the treatment or my thyroid. He had his
          nurse call me back and tell me that if I couldn't handle the side
          effects of the treatment, to stop treatment. Now I've never said he was
          the best ... but he really made me a bit cranky with that response. And
          he should have been monitoring my thyroid all through treatment....when
          3 months ago I started having problems swallowing my pcp suspected
          thyroid and ran the test and faxed the results to the liver guy. But
          that is past....and I'll move forward from here.

          My pcp called with my thyroid results tonight....we did the test after
          only 2-1/2 weeks of increasing the dosage because he is going to be on
          vacation for a couple weeks and wanted to get a clue if things were
          improving. Whew, my TSH is down to 56, my anemia is gone, my plateletes
          are normal and my white cells are normal, all barely normal but still
          within the normal range....he said it was my thyroid that did all that
          to me.

          I will have my 9 month PCR tomorrow and see what this increased dosage
          has done to my viral load...but of course I won't know for a week or so.
          If it hasn't changed or has gotten worse, I'm pretty sure I will go off
          treatment and just keep monitoring my liver function and viral load and
          go with the TCM...traditional chinese medicine. Hopefully they will come
          out with another treatment given time and I will blend the two
          philosophies again.

          With my customized chinese herbs my chinese medical practioner blends
          along with my milk thistle and vitamins, proper nutrition, stress relief
          (I am starting yoga) I can maintain things as they are until there is a
          new treatment avaialbe.

          Claudine, thank you again. I really thought I was losing my mind. And
          BTW, I refered a friend to the list and hopefully they will sign up. My
          one friend is going through everything you have to go through to get
          listed and is very sick. His wife asked if I'd ever have mouth thrush
          and I recommended she join the list and talk to folks her because I had
          no advice to give her. Sure hope she signs up....I'm sure everyone here
          would be able to make this battle a little easier for them.

          Mitakuye oyasin
          Tatezi

          claudine intexas wrote:

          > Hi Tatezi,
          > Some of the emotional/mental/memory problems you
          > are having may be related to the combo, but probably
          > the greatest portion of it is the thyroid. Everything
          > you are describing is VERY typical of hypothyroidism.
          > When that gets straightened out you will feel MUCH
          > better. Are you seeing an endocrinologist? Don't
          > wait as long to get your TSH rechecked. Try to get
          > the doc to recheck it 6 weeks after the dose increase
          > of the synthroid. You want to get it back to normal
          > levels as fast as possible. I really feel for you,
          > when my thyroid quit on me during treatment it was the
          > sickest I have ever felt. I couldn't walk from one
          > room to the next without sitting down to rest, I'd
          > stand in the shower for who knows how long, not
          > remembering what I was doing - had I washed my hair or
          > not? And my TSH was only up to 13 - 14! You'll be
          > surprised how much better you feel when your thyroid
          > hormones get straightened out. I feel lousy if my TSH
          > goes over 2, and best if it is kept around 1, or even
          > lower. Good luck, and I hope your next PCR is
          > negative!
          > Claudine
          >
          >
          >
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          [Non-text portions of this message have been removed]
        • sylvati
          Hi Tatezi sorry to hear you have been having so many problems. I would be very very careful about mixing herbs with the drugs. Have you given your hep doc a
          Message 4 of 4 , Apr 3, 2001
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            Hi Tatezi

            sorry to hear you have been having so many problems. I would be very very
            careful about mixing herbs with the drugs. Have you given your hep doc a
            complete list of herbs the chinese doc is giving you to see if they are OK?
            It would be a shame if you went through all this just to find out that the
            herbs had cancelled out any good the drugs were doing, or worse still that a
            reaction occurs between the two that causes more problems than you have
            already. please talk to your hep do!

            love Sylv
            ----- Original Message -----
            From: Tatezi <tatezi@...>
            To: Hep <GIWorld-Hepatitis@yahoogroups.com>
            Sent: Tuesday, April 03, 2001 9:13 PM
            Subject: [GIWorld-Hepatitis] Tatezi's Update


            > Wow, I've been hearing some great news on the list lately but I've been
            > pretty incommunicado.
            >
            > On my 6 month PCR my viral load had dropped considerably....from
            > 4.2million to 5000 something. We decided to hit this dragon a little
            > more aggressively by shots every other day and a one pill increase in
            > the ribavarinn each day.
            >
            > Three months ago my TSH (thyroid) counts went from normal (.5 to 5.5) to
            > 98....not 9.8 but 98. We starte sinthroid right away. Three weeks ago we
            > again tested my thyroid and the TSH was up to 110 so we doubled the
            > sinthroid. I'm awaiting my doctor'c call to get the results of the test
            > we ran yesterday.
            >
            > In the last month I have gotten so emotional that after several totally
            > unreasonable emotional outbursts at work last Friday I've been calling
            > in sick this week. I am also recognizing depression signals for the
            > first time. Are these emotional imbalances the thyroid, the rebetron or
            > something else. Has anyone else ever experienced this. Another thing is
            > the brain fog is increasing....I actually had to call the hospital today
            > to find out the name of my liver doctor. I feel like I am losing my
            > mind. And headaches....all of a sudden I'm living with headaches.
            >
            > Two weeks ago I decided that everything was so out of balance with my
            > mind and body that I needed to try supplementing traditional treatment
            > with non traditional treatment and started Traditional Chinese Medicine
            > along with the tradition rebetron. The acupuncture worked miracles on
            > the muscular/skeletal pains with just the first visit. He treated my
            > various more severe pains (lower back, hips, heel....plantar fasciili)
            > along with my liver and immune system and gave me a custom made chinese
            > herbal blend. This week I had one of my headaches so he treated that
            > also along with the extreme tension and tightness in my neck and upper
            > back. Has anyone else tried traditional chinese medicine in combination
            > with rebetron therapy.
            >
            > And am I losing my mind or is this tension, this lack of emotional
            > control, this increased crankiness, the headaches, etc. part of the
            > rebetron and/or the lack of thyroid function?
            >
            > Any one have any insight?
            >
            > Blessings
            > Tatezi
            >
            >
            >
            >
            >
            > Welcome to GIHepWorld
            >
            > Post message: GIWorld-Hepatitis@yahoogroups.com
            > Subscribe: GIWorld-Hepatitis-subscribe@yahoogroups.com
            > Unsubscribe: GIWorld-Hepatitis-unsubscribe@yahoogroups.com
            > List owner: GIWorld-Hepatitis-owner@yahoogroups.com
            > URL to this page: http://groups.yahoo.com/group/GIWorld-Hepatitis
            >
            >
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            >
            >
            >
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