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Question re Stroke & Rebetron

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  • Tatezi
    Just curious....I have an online aquaintance with hep c who said that even though the rebetron put the hep c in remission it (the rebetron) caused a stroke.
    Message 1 of 25 , Feb 28, 2001
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      Just curious....I have an online aquaintance with hep c who said that
      even though the rebetron put the hep c in remission it (the rebetron)
      caused a stroke.

      I've never heard this discussed on the list and since I sometimes get
      some tall tales from this person I wanted to find out if this is a
      potential side effect of rebetron.

      I have friends who also know this person who are now on my case to get
      off treatment before the same happens to me. I've never heard of
      this...nor am I going to stop treatment because one person "claims" this
      side effect. But before I respond to my friends I would like to know if
      this is a known side effect or if it is possible that rebetron can cause
      strokes.

      BTW, would someone explain platelettes to me. What they do, why we can't
      allow them to get too low, etc. My platelettes are dropping and I would
      like to understand what that means.


      Thanks everyone
      Tatezi
    • Alley/Pat
      People with heart conditions are NOT allowed to do combo. I have known 3 people just this past year who had strokes and/or heart attacks while on combo and
      Message 2 of 25 , Feb 28, 2001
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        People with heart conditions are NOT allowed to do combo.

        I have known 3 people just this past year who had strokes and/or heart
        attacks while on combo and were combo induced.

        It isn't common, and is the reason your doc checks you out before treatment.
        At least, I should hope he/she does lol

        I just returned from seeing my primary for a sinus infection. I hate these
        things. ug ug Hope you are all well!

        Patricia / Alley
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      • Tatezi
        Thanks for getting back to me so quickly. Sure hope your sinus infection goes away quickly too...they are miserable, aren t they. I haven t had one in
        Message 3 of 25 , Feb 28, 2001
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          Thanks for getting back to me so quickly. Sure hope your sinus infection
          goes away quickly too...they are miserable, aren't they. I haven't had
          one in years....not since a homeopathic doctor recommended using warm
          humidity in my house when the heat is on. Said it's much healthier than
          the dryness and cold mist humidifiers. Since I haven't had a cold or
          sinus infection since I started using warm mist humidity in my home, I
          won't argue with the point..........

          Alley/Pat wrote:

          > People with heart conditions are NOT allowed to do combo.
          >
          > I have known 3 people just this past year who had strokes and/or heart
          >
          > attacks while on combo and were combo induced.
          >
          > It isn't common, and is the reason your doc checks you out before
          > treatment.
          > At least, I should hope he/she does lol
          >
          > I just returned from seeing my primary for a sinus infection. I hate
          > these
          > things. ug ug Hope you are all well!
          >
          > Patricia / Alley
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        • ld1961@aol.com
          IM no MD but platelets are cells that help you clot. Low platelets are dangerous. YOu can bleed excessively. MY son suffers from low platelets and has
          Message 4 of 25 , Feb 28, 2001
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            IM no MD but platelets are cells that help you clot. Low platelets are
            dangerous. YOu can bleed excessively. MY son suffers from low platelets and
            has needed transfusions for it. THats how he got hep C. WHat is yout
            platelet count? IF they get low, sometimes you can get a blotchy rash called
            petechia .. IF you dont know your count , get copies of your blood work or
            ask your doc..I always get copies of his bloodwork so I dont have to bother
            the doc.

            LInda :)


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          • Alley/Pat
            this is from the rebetron.com site: http://www.rebetron.com/treat/rebetron/yes/effects.htm IMPORTANT SAFETY INFORMATION Anemia associated with therapy may
            Message 5 of 25 , Feb 28, 2001
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              this is from the rebetron.com site:

              http://www.rebetron.com/treat/rebetron/yes/effects.htm

              IMPORTANT SAFETY INFORMATION
              Anemia associated with therapy may exacerbate symptoms of coronary disease
              or deteriorate cardiac function. It is advised that complete blood counts
              (CBC) be obtained at baseline and at weeks 2 and 4 of therapy or more
              frequently if clinically indicated.

              Patricia / Alley
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            • Alley/Pat
              Aw thanks :) yep, I keep a humidifyer running in winter, and I boil water on the stove. Went to primary care doc, got my aristacort shot and decadron shot I
              Message 6 of 25 , Feb 28, 2001
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                Aw thanks :) yep, I keep a humidifyer running in winter, and I boil water on
                the stove.

                Went to primary care doc, got my aristacort shot and decadron shot I shoulda
                got two weeks ago but my head hurt too much to go lol. I had to feel better
                to drive to doc to get shot to help me feel better.... Does that sound like
                a catch 22 if you ever heard one? lol

                I already feel better, thanks :) my headache is gone and sinuses are
                draining, however, my neck and shoulders are so tense and hurt. I have some
                skelaxin (sp) but I'm so tired of swallowing pills. I'm using hot moist
                towels on my shoulders and avoiding the noisy grandkids :)

                Patricia / Alley
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              • Alley/Pat
                If you get low platelets, wouldn t that be a sort of good thing against a stroke? I don t mean anemia is good, just that if you aren t clotting, how can you
                Message 7 of 25 , Feb 28, 2001
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                  If you get low platelets, wouldn't that be a sort of good thing against a
                  stroke? I don't mean anemia is good, just that if you aren't clotting, how
                  can you have a stroke? Maybe I'm confused lol

                  I'm a blonde texas hepper after all

                  Patricia / Alley
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                • Tatezi
                  I might be able to help you if you have access to an H2O store or an Origins store....and would even send you some if you don t. I m into aromatherapy and
                  Message 8 of 25 , Feb 28, 2001
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                    I might be able to help you if you have access to an H2O store or an
                    Origins store....and would even send you some if you don't.

                    I'm into aromatherapy and someone told me of a stress cream they used
                    from H2O for headaches when they were pregnant. I get a lot of stress
                    headaches where my neck and should get so knotted they are painful. So I
                    thought I'd give it a try. It is so good that I keep a vial
                    everywhere....in my purse, by my bed, in the office. It's called
                    Aromaplus Stress Relief Formula. I rub it into my shoulders and neck at
                    the base of my skull and usually within 20 minutes the knots of tension
                    are starting to disolve. I can't read the rpinting on the container to
                    tell you what is in it....my eyes are getting old, not to mention the
                    rebetron messing with my vision....but it is wonderful stuff. I prefer
                    H2Os brand but Origins carries a similar product. I'd be glad to pop one
                    in the mail to you ... I always have a spare around the house.

                    > however, my neck and shoulders are so tense and hurt. I have some
                    > skelaxin (sp) but I'm so tired of swallowing pills. I'm using hot
                    > moist
                    > towels on my shoulders and avoiding the noisy grandkids :)
                    >
                    > Patricia / Alley
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                  • Tatezi
                    My regular doctor finally called (can you imagine, at 9pm he is just finishing up calls) and he said my platelets aren t low but I m starting to get real
                    Message 9 of 25 , Feb 28, 2001
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                      My regular doctor finally called (can you imagine, at 9pm he is just
                      finishing up calls) and he said my platelets aren't low but I'm starting
                      to get real anemic...but not dangerously anemic yet. He suggested I add
                      a little meat to my diet.

                      I don't have the counts...my regular doctor has started doing the blood
                      work and faxing the results to the liver guy. And I haven't walked down
                      to his office to pick up this last test results yet. It's a system we've
                      worked out because the liver guy's plebologist (or however it's spelled)
                      is so bad and rude I won't allow him to pull my blood. I've even issued
                      a complaint about him and the way he treats patients.

                      The liver guy and I went to every other day shots about a month ago
                      after my 6 month pcr. He wasn't happy with the drop in my viral load so
                      we decided to be real aggressive for a couple months. So my doc will
                      now start doing CBCs weekly until we see what happens when I add some
                      meat to my diet (yuck, I hate the thought of eating the flesh of an
                      animal I consider to be my relative).

                      But you know, I was thrilled with my viral load. I went from 4.2million
                      to 5000. Okay, so it's not undetectable but I thought that was a real
                      good drop. And all my liver function tests (alts, ast, etc) were normal
                      for the first time in years. And as long as my liver functions stay
                      normal...if it takes another 20 years for the virus to cause additional
                      liver damage, I'm in good shape. Or at least I think I am.

                      I'm off to bed. Nice to know that this horrible fatigue I've been
                      experiencing lately is nothing more than anemia. Thanks for the link.

                      Good night all.....

                      Alley/Pat wrote:

                      > If you get low platelets, wouldn't that be a sort of good thing
                      > against a
                      > stroke? I don't mean anemia is good, just that if you aren't clotting,
                      > how
                      > can you have a stroke? Maybe I'm confused lol
                      >
                      > I'm a blonde texas hepper after all
                      >
                      > Patricia / Alley
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                    • claudine intexas
                      Tatezi, The anemia that is caused by the Rebetron (the ribavirin part of it) will not respond to eating meat. You don t have IRON DEFICIENCY anemia, you have
                      Message 10 of 25 , Feb 28, 2001
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                        Tatezi,
                        The anemia that is caused by the Rebetron (the
                        ribavirin part of it) will not respond to eating meat.
                        You don't have IRON DEFICIENCY anemia, you have
                        hemolytic anemia. All the meat in the world, or all
                        the iron supplements, won't help at all, and in fact,
                        the high iron content provides a great environment for
                        the virus to multiply in. Not to mention it's hard on
                        your liver. The ribavirin causes the destruction of
                        red blood cells. The ONLY solution to this problem is
                        a reduction in the amount of ribavirin. However,
                        since your regular doctor doesn't seem to be familiar
                        with the anemia caused by the ribavirin he may also
                        not know how low the hemoglobin can drop to before
                        your dose should be reduced, or how low it can drop
                        before the ribavirin should be discontinued. This is
                        one reason why specialists need to be determining your
                        treatment and following you. Your regular doctor may
                        be doing your blood work but your GI needs to be
                        reading them and interpreting them for you. As for
                        the low platelets, the interferon causes them to drop,
                        but you'd be surprised how low they can go before it
                        becomes a major concern. On your stroke question,
                        people with heart conditions should not take ribavirin
                        in most cases. But in people who don't have heart
                        problems this is a very uncommon side effect. You can
                        read about all these things in the prescribing
                        information that lists all side effects, warnings, and
                        dosing instructions (including when doses should be
                        reduced) at http://www.rxlist.com Type in Inton-A in
                        the search box, then scroll down to where you see
                        (highlighted) Intron-A/Rebetron (I think, if I'm
                        remembering right! I know if you type in Rebetron you
                        only get the patient info, not the prescribing info).
                        It sounds like your viral load has dropped quite a
                        bit, have you thought about doing DAILY dosing of the
                        interferon? If you do get to undetectable you really
                        might want to talk to your doctor about staying on the
                        treatment for a longer time. (Not fun to think about,
                        I know.) There has been some indication that the
                        length of treatment should be determined by WHEN you
                        go undetectable. It makes sense if you think about
                        it. Someone who doesn't go undetectable until week 40
                        obviously has a more resistant strain of virus than
                        someone who is undetectable by week 4.
                        Good luck!
                        Claudine
                        >


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                      • Tatezi
                        Thanks, Claudine.... My doctor does fax the labs to the liver guy and it was the liver guy that alerted me there was something going on with my blood because
                        Message 11 of 25 , Mar 1, 2001
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                          Thanks, Claudine....

                          My doctor does fax the labs to the liver guy and it was the liver guy
                          that alerted me there was something going on with my blood because he
                          asked me to get another test done in 2 weeks instead of 4 weeks. The
                          liver guy seemed unconcerned other than wanting to keep a closer watch
                          on the counts. But he didn't explain why...I like all the information
                          not just some of it. Which is why I called my regular doc.

                          And you are right, my regular doc has very little knowledge of our
                          treatment or disease and I am aware of that. That is why I depend so
                          much on everyone here...and as always you folks have come through for
                          me.

                          I didn't know that the ribavirin was what caused the anemia. I'm glad to
                          know that. Is it also the ribavirin that causes the thyroid issue, the
                          crankiness and the memory loss?

                          And thanks for suggesting going to just the interferon for maintenance.
                          I hadn't even thought about that even though I've read articles about
                          it....course any more nothing stays in my memory. I don't mind staying
                          on the treatment....I know how sick many of you are but in comparison
                          I've really had it pretty darn easy. I'm cranky, my thyroid is blown,
                          I'm tired...but I'm not sick like so many of you describe.

                          And I'm so relieved to know that eating the flesh of animals won't make
                          a difference. I knew not to take iron supplements but was really a tad
                          distressed about having to eat meat.

                          Everyone here is so wonderful....how fortunate that we all have each
                          other to reach out to.

                          Gotta get ready for work....today is my day for volunteering with
                          battered wimmins shelter children while moms are working so I need to be
                          on time to the office since I'm only there half a day today.

                          Thank you everyone......<<<hugs>>>>
                          Mitakuye oyasin
                          Tatezi

                          claudine intexas wrote:

                          > Tatezi,
                          > The anemia that is caused by the Rebetron (the
                          > ribavirin part of it) will not respond to eating meat.
                          > You don't have IRON DEFICIENCY anemia, you have
                          > hemolytic anemia. All the meat in the world, or all
                          > the iron supplements, won't help at all, and in fact,
                          > the high iron content provides a great environment for
                          > the virus to multiply in. Not to mention it's hard on
                          > your liver. The ribavirin causes the destruction of
                          > red blood cells. The ONLY solution to this problem is
                          > a reduction in the amount of ribavirin. However,
                          > since your regular doctor doesn't seem to be familiar
                          > with the anemia caused by the ribavirin he may also
                          > not know how low the hemoglobin can drop to before
                          > your dose should be reduced, or how low it can drop
                          > before the ribavirin should be discontinued. This is
                          > one reason why specialists need to be determining your
                          > treatment and following you. Your regular doctor may
                          > be doing your blood work but your GI needs to be
                          > reading them and interpreting them for you. As for
                          > the low platelets, the interferon causes them to drop,
                          > but you'd be surprised how low they can go before it
                          > becomes a major concern. On your stroke question,
                          > people with heart conditions should not take ribavirin
                          > in most cases. But in people who don't have heart
                          > problems this is a very uncommon side effect. You can
                          > read about all these things in the prescribing
                          > information that lists all side effects, warnings, and
                          > dosing instructions (including when doses should be
                          > reduced) at http://www.rxlist.com Type in Inton-A in
                          > the search box, then scroll down to where you see
                          > (highlighted) Intron-A/Rebetron (I think, if I'm
                          > remembering right! I know if you type in Rebetron you
                          > only get the patient info, not the prescribing info).
                          > It sounds like your viral load has dropped quite a
                          > bit, have you thought about doing DAILY dosing of the
                          > interferon? If you do get to undetectable you really
                          > might want to talk to your doctor about staying on the
                          > treatment for a longer time. (Not fun to think about,
                          > I know.) There has been some indication that the
                          > length of treatment should be determined by WHEN you
                          > go undetectable. It makes sense if you think about
                          > it. Someone who doesn't go undetectable until week 40
                          > obviously has a more resistant strain of virus than
                          > someone who is undetectable by week 4.
                          > Good luck!
                          > Claudine
                          > >
                          >
                          >
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                        • AVansi7465@aol.com
                          ... Hi! You, obviously, haven t heard of what we call Interferon Fog . Yes, it does cause memory loss, crackiness and I am, for the first time in my life,
                          Message 12 of 25 , Mar 1, 2001
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                            In a message dated 3/1/01 1:09:17 PM !!!First Boot!!!, tatezi@... writes:


                            > I didn't know that the ribavirin was what caused the anemia. I'm glad to
                            > know that. Is it also the ribavirin that causes the thyroid issue, the
                            > crankiness and the memory loss?
                            >

                            Hi! You, obviously, haven't heard of what we call "Interferon Fog". Yes, it
                            does cause memory loss, crackiness and I am, for the first time in my life,
                            hypothyrodic. I spent the first 35 years of my life on diets trying to lose
                            weight. Guess I spend the rest of it trying to gain weight. Anemia is the
                            most common reason the docs take people off of Rebetron. It is the reason my
                            doc took me off. When my RBC hit the cellar, we both said: " Enough,
                            already." That count made me inelligable for any trials on the new drugs. I
                            finally made it to 4.0, but that still isn't within normal values.
                            For all you people who are fighting with your disability companies.......I
                            finally won.....without a lawyer. Advise: Go see a psychologist for a
                            couple of sessions and explain what this disease is like. Then have him/her
                            write a letter. I started seeing mine two weeks before I started with the
                            first round of treatment, which was Interferon, alone. She has been seeing
                            me off an on now , for three years. The Navy demands that you see, either a
                            psychiatrist or a psychologist if you have a terminal illness or are
                            undergoing chemo. Speak with your primary care physician. None of them
                            wants to be responsible for a suicide. Good luck and good. Anne


                            [Non-text portions of this message have been removed]
                          • claudine intexas
                            Hi Tatizi, It is the interferon that causes the thyroid problems and crankiness, but it could be both the interferon and your thyroid problem causing the
                            Message 13 of 25 , Mar 1, 2001
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                              Hi Tatizi,
                              It is the interferon that causes the thyroid
                              problems and crankiness, but it could be both the
                              interferon and your thyroid problem causing the memory
                              problem. I was told by one of the Be-In-Charge nurses
                              that both interferon and ribavirin can cause
                              depression and that depression is more of a problem in
                              those on combo, as opposed to mono therapy, but I
                              really haven't seen any info confirming that. As for
                              interferon alone as maintainence, that really wasn't
                              what I was saying. I think you should keep doing the
                              ribavirin as long as possible (well, at least a year -
                              I don't think it's been tested for safety when taken
                              longer than that) even if you need a reduced dose,
                              since it improves your chances of sustaining a
                              response. However, interferon used alone is being
                              studied now as a maintainence therapy for
                              nonresponders to help keep fibrosis or cirrhosis from
                              getting worse, and maybe even improving the condition
                              of the liver. Good luck!
                              Claudine


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                            • Alley/Pat
                              Tatezi, Claudine is right. This isn t the same kind of anemia. Sorry thot you knew that but I get confused lol. Try upping some vitamins too, esp the B
                              Message 14 of 25 , Mar 1, 2001
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                                Tatezi,
                                Claudine is right. This isn't the same kind of anemia. Sorry thot you
                                knew that but I get confused lol. Try upping some vitamins too, esp the B
                                vitamins, folic acid, if you can take those. I don't remember the state of
                                your liver so I don't want to give wrong suggestions for you k.


                                Patricia / Alley
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                              • Alley/Pat
                                tatezi said
                                Message 15 of 25 , Mar 1, 2001
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                                  tatezi said <<I didn't know that the ribavirin was what caused the anemia.
                                  I'm glad to
                                  know that. Is it also the ribavirin that causes the thyroid issue, the
                                  crankiness and the memory loss?>>

                                  I forgot, what anti depressant are you on? I found a good anti d helped me a
                                  lot with the irritabileness and I slept better. My doc adjusts the anti d
                                  dosage depending on my reaction to the combo. About the 4th month I had to
                                  increase a while. Now I'm back down to the original dose.


                                  Patricia / Alley
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                                • Tatezi
                                  Been taking prozac and haven t had any problems with depression.....just every now and then get overwhelmed with crankiness. The liver guy gave me xanax and it
                                  Message 16 of 25 , Mar 3, 2001
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                                    Been taking prozac and haven't had any problems with depression.....just
                                    every now and then get overwhelmed with crankiness. The liver guy gave
                                    me xanax and it has helped considerably with the crankiness so maybe
                                    it's anxiety related. Don't know how that can be, but my body and mind
                                    seem to be strangers to me any more.

                                    Don't really want to switch antidepressants if at all possible. My
                                    doctor prescribes a double dose for me which keeps me and my mother
                                    supplied. Since my dad's death, prozac turned my mom's life around. But
                                    with medicare not covering it and at $200 a month for the prescription,
                                    she really can't afford it.

                                    And sleeping....I started having a problem sleeping even before starting
                                    tx. Blamed it on my bed being old and bought a new bed. Blamed it on my
                                    cats....seemed I couldn't stand to have them in bed with me any more.
                                    Finally it reached the point where I wasn't sleeping at all (like for 3
                                    weeks)....just kept getting up and walking around the house. Also had a
                                    problem holding my legs still.....couldn't sit and watch tv or read or
                                    anything. I don't know if this is related to the hep or tx or not, but I
                                    was diagnosed with restless leg syndrome. Since then they've had me
                                    taking Klonpin at night and once again sleep is not a problem. Since
                                    this was starting before I started treatment I doubt it is treatment
                                    related but maybe tx exacerbated it? I have no clue, just glad to be
                                    sleeping again.

                                    The worst thing is the blasted brain fog. I can't remember anything any
                                    more. And I'm so spacey all the time....can't concentrate on anything.
                                    Watch TV and 5 minutes later can't remember what I watched. Can't focus
                                    on reading....can't concentrate. Can't wait for this to end...sure hope
                                    it does end.

                                    >
                                    > I forgot, what anti depressant are you on? I found a good anti d
                                    > helped me a lot with the irritabileness and I slept better.
                                    >
                                    >
                                    > Patricia / Alley
                                    > alleypat@...
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                                  • jessiefromchino@webtv.net
                                    Hi All, Well I have been off tx for 2 months know. I feel great not much brain fog any more I still forget sometimes what I am talking about. But I can watch
                                    Message 17 of 25 , Mar 3, 2001
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                                      Hi All,
                                      Well I have been off tx for 2 months know. I feel great not much
                                      brain fog any more I still forget sometimes what I am talking about. But
                                      I can watch tv and remember what I am watching. Oh I remember what
                                      people tell me that is so nice. My sinuses are back to normal YEA!!
                                      I still have joint and muscles pain but I can live with it not like it
                                      was on tx. My skin is not dry or itchy any more. No more red spots on my
                                      chest. One thing I have noticed when I am tired I have got to lay down I
                                      have no choice I get just beat. I think this whole thing has taught me
                                      to slow down I use to be a go, go and go some more person. (not any
                                      more) I am know a slow go person.
                                      I go for a 3 month blood test at the end of March. Just wanted to let
                                      you all know what was going on with me. I still read my e-mail every
                                      day.
                                      Take Care, Jessie







                                      E-Z DOES IT
                                    • Suzy Balone
                                      Jessie and ALL, All right , two months off treatment , I myself have finished tx as of yesterday, so am still waiting to feel good, hopefully I will! Does
                                      Message 18 of 25 , Mar 3, 2001
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                                        Jessie and ALL,
                                        All right , two months off treatment , I myself have finished tx as of
                                        yesterday, so am still waiting to feel good, hopefully I will!
                                        Does anyone know how long it might take for your eyes to return to
                                        their previous state? Was wondering how long I should go after tx to get
                                        an eye exam. I am so excited and wasn to thank each and everyone of you for
                                        the support, prayers, and generosity of your time and knowledge shared on
                                        this site as well as other sites.
                                        Brain fog was getting pretty bad at the end, hopefully that will clear also.
                                        If my sinuses would clear, it would be great!! I will go in Monday for my
                                        final blood work, to see if I am still undectable, then will let you all
                                        know

                                        THANK YOU ALL FROM THE BOTTOM OF MY HEART : )

                                        Suzy
                                        PS
                                        Good luck on your three month test Jessie


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                                      • Alley/Pat
                                        Jesse way to go! Glad things are easing up for you some. Keep us informed on your tests :) You give us hope Patricia / Alley alleypat@flash.net ... My
                                        Message 19 of 25 , Mar 4, 2001
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                                          Jesse way to go! Glad things are easing up for you some. Keep us informed on
                                          your tests :)
                                          You give us hope

                                          Patricia / Alley
                                          alleypat@...
                                          -----------------------------
                                          My ICQ#:12631861<br>
                                          http://members.icq.com/12631861
                                          12631861@...
                                          -------------------------------------------------------
                                        • claudine intexas
                                          I am so glad to hear that you have finally finished! I don t know anything about the eyes, mine didn t get real bad on treatment, but it never got better
                                          Message 20 of 25 , Mar 4, 2001
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                                            I am so glad to hear that you have finally finished! I
                                            don't know anything about the eyes, mine didn't get
                                            real bad on treatment, but it never got better either.
                                            The eye doctor said it was just normal aging, so who
                                            knows. The rest of me felt pretty good within 4
                                            weeks. Be sure and keep us posted on your lab tests.
                                            Good luck!
                                            Claudine

                                            --- Suzy Balone <suzybalone@...> wrote:
                                            > Jessie and ALL,
                                            > All right , two months off treatment , I myself
                                            > have finished tx as of
                                            > yesterday, so am still waiting to feel good,
                                            > hopefully I will!
                                            > Does anyone know how long it might take for your
                                            > eyes to return to
                                            > their previous state? Was wondering how long I
                                            > should go after tx to get
                                            > an eye exam. I am so excited and wasn to thank each
                                            > and everyone of you for
                                            > the support, prayers, and generosity of your time
                                            > and knowledge shared on
                                            > this site as well as other sites.
                                            > Brain fog was getting pretty bad at the end,
                                            > hopefully that will clear also.
                                            > If my sinuses would clear, it would be great!! I
                                            > will go in Monday for my
                                            > final blood work, to see if I am still undectable,
                                            > then will let you all
                                            > know
                                            >
                                            > THANK YOU ALL FROM THE BOTTOM OF MY HEART : )
                                            >
                                            > Suzy
                                            > PS
                                            > Good luck on your three month test Jessie
                                            >
                                            >
                                            >
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                                            > http://explorer.msn.com
                                            >
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                                          • Constance Dickson
                                            Suzy, mine got better after I was daignosed with Diabetes and went on meds for it. I don t know if this helps you at all, but that is what happened to me.
                                            Message 21 of 25 , Mar 4, 2001
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                                              Suzy, mine got better after I was daignosed with
                                              Diabetes and went on meds for it. I don't know if
                                              this helps you at all, but that is what happened to
                                              me. Good Luck, Connie


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                                            • Suzy Balone
                                              Claudine, Bottomed out again on my WBC s 2.1. RBC s 2.7, no wonder I have felt so crummy, just got the results today from yesterday so hope to be feeling
                                              Message 22 of 25 , Mar 6, 2001
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                                                Claudine,
                                                Bottomed out again on my WBC's 2.1.
                                                RBC's 2.7, no wonder I have felt so crummy, just got the results today from
                                                yesterday so hope to be feeling better soon since I don't have to take the
                                                tx. can't keep much down either, Things should start looking up though and
                                                any way I MADE IT! Whew what a long haul, will keep ou posted on my pcr's
                                                Thanks for your support
                                                Suzy


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                                              • Suzy Balone
                                                Thanks Connie, Hope things are going well this time around, good work with the interview, wish I could have seen it Suzy
                                                Message 23 of 25 , Mar 6, 2001
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                                                  Thanks Connie,
                                                  Hope things are going well this time around, good work with the interview,
                                                  wish I could have seen it
                                                  Suzy




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                                                • Suzy Balone
                                                  Thanks Claudine you are an abundant wealth of information, I did quit taking it, it was wonderful to have regular bowel movements again but was gettign
                                                  Message 24 of 25 , Dec 21, 2001
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                                                    Thanks Claudine
                                                    you are an abundant wealth of information, I did quit taking it, it was
                                                    wonderful to have regular bowel movements again but was gettign tired of
                                                    taking all those pills,
                                                    Dr said just take some colace, tried that a long ti,e ago but will give it
                                                    another whirl,, have tried tat's flax, sunflower seeds and almond mixture
                                                    as well as having hot cereal every morning ( or most) and adding bran to it,
                                                    have been exercising, just must have a sluggish bowel, I can understand
                                                    about putting too many things in your body which i s why I wasn't doing it
                                                    all the time. well once agin thanks
                                                    Suzy



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                                                  • Carol
                                                    Sorry Suzy, I didn t read your message very good the first time. Tatezi quit the group but I keep in contact with her and she s doing ok. Carol ... From: Suzy
                                                    Message 25 of 25 , Oct 1, 2003
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                                                      Sorry Suzy, I didn't read your message very good the first time. Tatezi quit the group but I keep in contact with her and she's doing ok.

                                                      Carol
                                                      ----- Original Message -----
                                                      From: Suzy Balone
                                                      To: GIWorld-Hepatitis@yahoogroups.com
                                                      Sent: Wednesday, October 01, 2003 12:20 PM
                                                      Subject: Re: [GIWorld-Hepatitis] RE: I'm giving up too / Carol


                                                      what level does msm raise? and guess i will have to keep reading to find ot
                                                      what happened to tat


                                                      I told my doc that I was going to take MSM to raise my level,

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