- Thanks for everyones input.
I would also like to ask how many people were treated with low platelets?
I am really hoping to be treated, and waiting between appointments drives me
crazy. No patience, and my family would tell you, It has nothing to do with
hep, just my personality.
Thanks for your support.
depending on your doctor there is a level where they will neeed to transfuse
to help with your platelet count, when my son was down to 13,000 they
transfused him a few units. WHat is your level NOw? Are you bruising easy
or do you have petechia? THats those little red blotchy rash on your skin?
YOur platelet count may be low , but your doctor wont step in , until its
HAng in there, its not really that serious...JUst one more thing for you to
- Hi Linda,
I am no where near your sons level, my platelets this month are 56, but they
do fluctuate. My concern was for being treated for hep. The hemotologist
thought I should be treated, because unless we improve the liver and spleen,
things would only get worse. I am hoping my hepotologist agrees. He told
me previously that his cut off point was 70,000. Was your son treated for
hep? If he was did he improve?
Thanks for your concern.
so far as a family we have chosent not to treat at this point. I truthfully
feel the options just arent there to warrant putting my son through therapy ,
knowing chances are it will not work.
Hes 18 disabled, he had a massive stroke at age 7,. he suffered from
HEmolytic Uremic Syndrome. Its a blood and kideny disease. He required
deveral weeks of transfusions of packed red blood cells, and platelets. THat
is how he contracted hep c, some 11 yrs ago.
Hes very frail, and I dont think he could handle the regimen of therapy
availabel today. SO we hope and pray something new will become available in
the years. He is seen by a heptologist and we agreee. Hes had a liver
biopsy and is stage 2. HIs viral load is about 1 million, his LFT's are
within the mornal range. SO for now we wait.....
LInda best of luck