Re: [GIWorld-Hepatitis] Get the Show on the Road
- Hi Lora, I can relate to your anticipation. I was diagnosed 12-99 and
decided to wait till the Pegalated TX becomes available, which I had heard
would be around 12-00. How did your biopsy come out? Was there any
fibrosis or worse? Is that why you are anxious to start the treatment? I
too am worried a bit about insurance, seems like if something can get
screwed up with the process it will. Hang in there and keep us posted, this
list has been very helpful for info and support. Take care, good luck with
your first shot. Pat P.
>Subject: [GIWorld-Hepatitis] Get the Show on the Road
>Date: Fri, 1 Sep 2000 00:10:55 EDT
>Hi to all here on the list. I am writing today out of
>frustration,nervousness, tension and fear. (have I left any emotion
>:). I was diagnosed in September of 1999 with Hepatitis C and have been
>waiting for a Pegylated trial to begin here in Chicago ever since. Delay
>after delay and still the trial is not started. I finally decided that I
>needed to take charge and so went back to my Hepatologist. He agreed that
>is time to "get the show on the road" and wrote my a perscription. I had
>already checked with my insurance company, and was assured that I would
>have to pay my $15 co-pay each month. Welllll, when I went to pick up the
>perscription from the pharmacy yesterday, the pharmacist said my insurance
>would only pay for two weeks at a time, each time for $15. I had never
>of that, but she said that that was my insurance. So, I paid for the meds,
>went home and called my insurance. They said that it should only cost
>$15/month, and that I should have received 30 days supply. Apparantly, the
>pharmacist was too lazy to make the call to insurance co to get an override
>code as the meds were over $1000. If I had not called my insurance, I
>be going every two weeks to fill my perscriptions and paying twice as much
>necessary! What a way to start out the treatment!!!!!!!!!!!!!!!!!
>Anyway, enough complaining. I have an appointment with the nurse on
>Thursday, September 7 to learn how to inject, etc, and will give myself my
>first injection there. My appointment is for 11 am and I am a bit
>about the sides hitting around mid day. I have been reading with interest
>everyone's reactions to treatment and realize that everyone is different.
>course, I am hoping to not have too many sides, but realize that I most
>likely will. I am a wreck, worrying about how I am going to react, etc. I
>will keep you all posted. I read EVERYTHING that is posted here, and it
>been a TREMENDOUS help.
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com
Share information about yourself, create your own public profile at
- --- Lorad8@... wrote:
> It seems that most everyone recommends Ibuprofin for
> the muscle aches and
> pains. I am on a blood thinner (coumadin) and
> cannot take anti-inflamatory
> drugs. Any one have a good alternative for me????
You really shouldn't take ibuprofen anyway,
especially on a regular basis since there have been
cases of it causing flare-ups of hepatitis in people
with hepatitis C.
Try Tylenol. You can safely take up to 3 grams
daily. (2 extra-strength every 8 hours.) If that
doesn't work ask your doctor for Vicodin. That seems
to work real well, especially for the headaches
associated with treatment.
Do You Yahoo!?
Yahoo! Mail - Free email you can access from anywhere!
- Pat, yes, the biopsy showed fibrosis. There was scarring and also, and the
whole biopsy showed possible cirhosis. I feel that I need to be doing
SOMETHING, especially since I am currently unemployed. Now seemed like the
perfect time--if there EVER is a perfect time:)
staying positive, lora