Re: [GIWorld-Hepatitis] Digest Number 236
- --- Suzy Balone <suzybalone@...> wrote:
> I am 1 b will send you the results of the lab workDear Suzy,
> later, may have to
> convince my GI doc of going 48 weeks however.
Are you PCR undetectable? If so, I can't believe
any doctor would want to stop you, a 1b, at 24 weeks!
That would only lead to relapse. If this is the
situation, there is a lot of literature that clearly
states that genotype 1b's should do 48 weeks. If you
are NOT undetectable, then it is pointless to continue
treatment unless your only goal is to improve the
condition of your liver. If that is your goal you
might want to talk to your doctor about that, and
discontinue the ribavirin, since it is the interferon
helping the liver. There is also literature supporting
If you are not undetectable by now, the chance of
becoming undetectable following the same treatment
protocol you are on now is very, very slim. I hate
saying that, but it is the truth. I know, I've been
there myself, and being a 'non-responder' myself, I
read everything I can get my hands on that even
remotely pertains to non-responders, and genotype 1b.
A more aggressive approach and a change to another
interferon MIGHT help, such as daily high dosing with
Infergen. Or, what I plan on, waiting for the Roche
version of pegylated interferon.
I sure hope that I wrote all that for nothing and
you are really undetectable!!!
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- Hi Marty and All,
Staying positive and putting the past into the past isn't easy when the
first question that comes out of people's mouths when you disclose you have
hcv is "How did you get it?" I share in Scott Foxes anger and frustration
on this whole thing. I appreciate your comments and all the advise I've
>Subject: Re: [GIWorld-Hepatitis] Digest Number 236
>Date: Sun, 30 Jul 2000 00:55:50 -0400
>Dear Dee Dee:
> The past is the past, and no one knew. The sex, drugs and rock and
>roll age was fun, but, that was then, and you have to deal with now. If
>you gave tainted blood, you are probably one of the thousands that did,
>and you did not know. Maybe the blood was used, or maybe not, you'll
>never know, and can not do anything about it now. So don't beat yourself
>up about it, it doesn't help you, or anyone else. Besides, maybe your
>blood was what saved someone's life, and they either never got the
>virus, or were placed into full remission. Think positive.
> As I say to many of my patients, if I could go into the future by 5
>years, then return, I could then tell them what they should do. But, we
>can not, and all anyone can do is work with the best information
>available today, and not play the "what if" game. It won't change
>anything except give you more stress, without any changes-so don't beat
>yourself up over something you never knew about, nor intended any
>problems with. That's the past, and can not be changed, so live for the
>present and future. Marty
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- Dee Dee
My husband shares your frustration about the same question how did you get
it? He also donated blood not knowing if he had the Hep C at the time. He
and his dad donated blood every month from the age of 16 years old until he
was 28 and he is 41 now. He has found a way to live with it now but felt
really guilty about maybe passing it on that way not knowing he had it since
we do not know how long he has had it. He hadn't given blood since they
started the testing they do on the blood when in 89 or 92 I can't remember
the year now. Who cares how you got it - the main issue is to take care of
it now the best you can. I know it is easy for me to say but you are under
enough stress to add that one to it and stress is one of the worse things for
this disease. Stay potitive!!