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Re: low platelets

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  • Susan Jackson
    Hi, I also have low platelets and have posted to a few lists about this. The doctor I have now will not treat me, so I have asked my GP for a referal to a
    Message 1 of 3 , Jun 29, 2000
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      Hi,
      I also have low platelets and have posted to a few lists about this.
      The doctor I have now will not treat me, so I have asked my GP for a referal
      to a specialist in one of the bigger cities.
      I have recieved e-mails from people who have reieved treatment even with low
      platelets.

      Doc, what is your opinion on this subject?

      Sue
    • Mark Middle Mountain
      ... From: To: Sent: Friday, August 13, 2004 3:24 PM Subject: @WL [GIWorld-Hepatitis]
      Message 2 of 3 , Aug 16, 2004
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        ----- Original Message -----
        From: <GIWorld-Hepatitis@yahoogroups.com>
        To: <GIWorld-Hepatitis@yahoogroups.com>
        Sent: Friday, August 13, 2004 3:24 PM
        Subject: @WL [GIWorld-Hepatitis] Digest Number 1585


        >
        > There are 8 messages in this issue.
        >
        > Topics in this digest:
        >
        > 1. low platelets, appointment with specialist to start treatment
        > From: "Mark Middle Mountain" <gourdmad@...>
        > 2. My latest results
        > From: "Micky Woolf" <micky@...>
        > 3. Re: low platelets, appointment with specialist to start t...
        > From: Arkhepcgal@...
        > 4. Re: My latest results
        > From: "tammster62" <t1d1r1d1@...>
        > 5. Re: My latest results
        > From: Carol <csean@...>
        > 6. Re: My latest results
        > From: "w.m.landstra" <lands142@...>
        > 7. Re: My latest results
        > From: AVansi7465@...
        > 8. Re: low platelets, appointment with specialist to start t...
        > From: AVansi7465@...
        >
        >
        > ________________________________________________________________________
        > ________________________________________________________________________
        >
        > Message: 1
        > Date: Thu, 12 Aug 2004 16:21:54 -0400
        > From: "Mark Middle Mountain" <gourdmad@...>
        > Subject: low platelets, appointment with specialist to start treatment
        >
        > I went for my appointment with the specialist today in order to start
        > treatment. Got all the stuff for applying for financial assistance so that
        > hurdle to clear yet.
        >
        > He does do the thing where if you haven't cleared the virus or at least 2
        > log reduction by the end of 12 weeks he will discontinue treatment, so
        that
        > makes me more likely to actually start it.
        >
        > Due to wife's craft show schedule, looking for a mid October start, if it
        > happens.
        >
        > One thing - in some recent blood work(hadn't had any done for 2 years) ,
        my
        > platelets are already low, even before treatment. Any way to pump them up?
        I
        > seem to remember what has been said but want to verify my memory.
        >
        > Liver enzymes were up as they always have been, maybe even worse than
        usual.
        >
        >
        >
        > ________________________________________________________________________
        > ________________________________________________________________________
        >
        > Message: 2
        > Date: Thu, 12 Aug 2004 19:15:15 -0300
        > From: "Micky Woolf" <micky@...>
        > Subject: My latest results
        >
        >
        > Dear all,
        >
        > I want to share with you all the joy and happiness that I am feeling right
        now: six months post tx - NEGATIVE FOR HEP C!!!!
        >
        > This means that since week 12 of tx I have been negative, which means 18
        months, which in my mind means I am cured!!!
        > never mind that we don't have a test that detects zero virus, I feel cured
        so I am!!
        >
        > For you who are in tx, don't give up - it's a longroad but at the end it
        is worth the suffering.
        > Believe, trust and have faith - all this together with the juice , will do
        the trick!!
        >
        > Love you all
        > Micky
        >
        >
        > ---
        > Outgoing mail is certified Virus Free.
        > Checked by AVG anti-virus system (http://www.grisoft.com).
        > Version: 6.0.735 / Virus Database: 489 - Release Date: 06/08/04
        >
        > [Non-text portions of this message have been removed]
        >
        >
        >
        > ________________________________________________________________________
        > ________________________________________________________________________
        >
        > Message: 3
        > Date: Thu, 12 Aug 2004 19:04:51 EDT
        > From: Arkhepcgal@...
        > Subject: Re: low platelets, appointment with specialist to start t...
        >
        > I can't think of anything that will help with the platelets.
        >
        > When I recently did the Pegasys/Copegus treatment, my white blood count
        was
        > critically low and I had to have Neupogen injections that helped it.
        There is
        > an injection med that helps with the red blood count, but unfortuntely,
        with
        > so many people that have low platelets, the only thing I can think of is a
        > blood transfusion (or some of the components of it) that can help with the
        > platelets. Hopefully, your doc will have some idea what you can do.
        >
        > Betty in Arkansas
        >
        >
        > [Non-text portions of this message have been removed]
        >
        >
        >
        > ________________________________________________________________________
        > ________________________________________________________________________
        >
        > Message: 4
        > Date: Fri, 13 Aug 2004 03:10:02 -0000
        > From: "tammster62" <t1d1r1d1@...>
        > Subject: Re: My latest results
        >
        > Oh, that is wonderful news!!!!!!!!!!! I am so very proud for
        > you!!!!!! You give me hope.
        > <><TammieD><>
        >
        >
        >
        > ________________________________________________________________________
        > ________________________________________________________________________
        >
        > Message: 5
        > Date: Thu, 12 Aug 2004 20:12:01 -0700
        > From: Carol <csean@...>
        > Subject: Re: My latest results
        >
        > CONGRATS Micky....I'm so happy to read a success story....good for you for
        hanging in there....I'm betting you kept a positive attitude as much as
        possible throughout tx....I really think that makes a difference.
        > Carol in Canada
        > ----- Original Message -----
        > From: Micky Woolf
        > To: PATH-HEPC@yahoogroups.com ; Jovo ; GIWorld ;
        HepatitisCLEARINGAndClear@yahoogroups.com
        > Sent: Thursday, August 12, 2004 3:15 PM
        > Subject: [GIWorld-Hepatitis] My latest results
        >
        >
        >
        > Dear all,
        >
        > I want to share with you all the joy and happiness that I am feeling
        right now: six months post tx - NEGATIVE FOR HEP C!!!!
        >
        > This means that since week 12 of tx I have been negative, which means 18
        months, which in my mind means I am cured!!!
        > never mind that we don't have a test that detects zero virus, I feel
        cured so I am!!
        >
        > For you who are in tx, don't give up - it's a longroad but at the end it
        is worth the suffering.
        > Believe, trust and have faith - all this together with the juice , will
        do the trick!!
        >
        > Love you all
        > Micky
        >
        >
        > ---
        > Outgoing mail is certified Virus Free.
        > Checked by AVG anti-virus system (http://www.grisoft.com).
        > Version: 6.0.735 / Virus Database: 489 - Release Date: 06/08/04
        >
        > [Non-text portions of this message have been removed]
        >
        >
        >
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        > ________________________________________________________________________
        > ________________________________________________________________________
        >
        > Message: 6
        > Date: Fri, 13 Aug 2004 15:31:10 +0200
        > From: "w.m.landstra" <lands142@...>
        > Subject: Re: My latest results
        >
        > Hurrah another oner cured! I know how you feel!Celebrate.Tat yre
        next.Willem.
        >
        >
        > [Non-text portions of this message have been removed]
        >
        >
        >
        > ________________________________________________________________________
        > ________________________________________________________________________
        >
        > Message: 7
        > Date: Fri, 13 Aug 2004 10:24:25 EDT
        > From: AVansi7465@...
        > Subject: Re: My latest results
        >
        > In a message dated 8/12/2004 6:18:56 PM Eastern Daylight Time,
        > micky@... writes:
        > I want to share with you all the joy and happiness that I am feeling right
        > now: six months post tx - NEGATIVE FOR HEP C!!!!
        >
        > This means that since week 12 of tx I have been negative, which means 18
        > months, which in my mind means I am cured!!!
        > never mind that we don't have a test that detects zero virus, I feel cured
        so
        > I am!!
        > Dear Mickey,
        >
        > God bless you, and a heartfelt congratulations!!!!!!!!!!!!!!!
        >
        > Anne
        >
        >
        > [Non-text portions of this message have been removed]
        >
        >
        >
        > ________________________________________________________________________
        > ________________________________________________________________________
        >
        > Message: 8
        > Date: Fri, 13 Aug 2004 10:25:58 EDT
        > From: AVansi7465@...
        > Subject: Re: low platelets, appointment with specialist to start t...
        >
        > In a message dated 8/12/2004 7:11:33 PM Eastern Daylight Time,
        > Arkhepcgal@... writes:
        > I can't think of anything that will help with the platelets.
        > I can.........Procrit. It is what I am going to try this fall. You might
        > want to suggest it to your doctor.
        > Anne
        >
        >
        > [Non-text portions of this message have been removed]
        >
        >
        >
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      • Mark Middle Mountain
        Here is some checking I did on platelets for Procrit. I already take a calcium supplement, maybe will try the vit K, tho the specialist was assertively, tho
        Message 3 of 3 , Aug 16, 2004
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          Here is some checking I did on platelets for Procrit. I already take a
          calcium supplement, maybe will try the vit K, tho the specialist was
          assertively, tho vaguely, negative about "taking a lot of stuff".

          My liver enzymes are now at 4 times normal, hadn't had them checked for a
          couple of years, before that for years they were only 2 times normal, so
          that is bumping me towards taking the treatment.





          >>My wife is being treated for Hepatitis-C with Peg-Intron and Ribovarin.
          Her Platelete count is low, do You think Procrit will help, and if it will
          be any interaction with the treatment?


          Hello,

          Are you sure your wife's platelet count, rather than her red blood cell
          count, is low? Low platelets are referred to as thrombocytopenia. Low red
          blood cells or hemoglobin is called anemia. The reason I ask for
          clarification is that combination therapy (interferon plus ribavirin) for
          the treatment of chronic hepatitis C is frequently associated with anemia.
          This is primarily due to ribavirin-induced hemolytic anemia.

          Combination therapy for chronic hepatitis C has shown considerable promise.
          The results with the new pegylated interferons (PEG-Intron) plus ribavirin
          are demonstrating even better results. The biggest drawback is the
          considerable side effects associated with these drugs, including psychiatric
          problems (insomnia, depression, irritability) and anemia. Medication-induced
          decreases in the other blood cell lines - white blood cells (neutropenia)
          and platelets (thrombocytopenia) - can occur, but are usually much more mild
          than what is seen with red blood cells (anemia).

          If your wife is co-infected with HIV and hepatitis C, she may well be prone
          to anemia, owing to numerous factors related to HIV infection, such as
          chronic disease, nutritional deficiencies, opportunistic infections, and HIV
          treatments (AZT, etc.). Drug-induced toxicity, such as anemia, can be
          treated by reducing the dose of the drug and/or using Procrit. Recent
          studies have shown dramatic results for Procrit's ability to significantly
          increase hemoglobin levels in patients with Interferon-Ribavirin-related
          anemia.

          Will Procrit help low platelets? No, it won't There are other medications,
          such as intravenous gamma globulin or steroids, which can increase
          platelets, if needed. Check again to see what type of blood problem your
          wife is experiencing. If she's anemic, definitely talk with her doctor about
          Procrit. To answer your other question, no, Procrit will not interact or
          interfere with any medications for hepatitis C or HIV. In fact, it does not
          interact with any medication for any condition!

          Good luck!

          Dr. Bob <<
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