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Re: Doctors need to be more educated on HEP C

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  • Claudine Crews
    I have no problems with my GI doc, Hep C is his specialty. He will give what I need and stress only when I really need it. Of course, he also knows that I am
    Message 1 of 5 , Jan 10, 2000
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      I have no problems with my GI doc, Hep C is his specialty. He will give
      what I need and stress only when I really need it. Of course, he also knows
      that I am careful about meds and will not abuse them. My PCP doc, the one
      who diagnosed my HepC 3 years ago is a whole different story. She would
      probably prescribe anything without thinking. She was not even going to
      refer to a specialist because my LFT's were "only slightly elevated" and
      "not too bad". All info she gave on the disease was incorrect. Through
      reading I knew only a biopsy could determine amount of liver damage, and
      sure enough I had
      chronic inflammation and early fibrosis. The medical community needs to do
      something to educate the PCP's about this disease. Ignoring it is the worst
      thing you can do! It does not go away on it's own! (She also almost caused
      problems in my marriage by INSISTING I must have got it sexually, even
      though my husband of 10 years does not have it. She completely ignored the
      fact I had worked in a medical field for over 10 years with high exposure to
      blood!) Claudine



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    • RLWINNE@xx.xxx
      Understand what you have gone through - my husband had this for years with a skin disease that the doctor misdiagnosed 4 years saying it was all kinds of
      Message 2 of 5 , Jan 10, 2000
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        Understand what you have gone through - my husband had this for years with a
        skin disease that the doctor misdiagnosed 4 years saying it was all kinds of
        things but what it was - we finally went to a dermatologist who said he had
        porphyria on his hands and arms which was a classic sign of Hepatitis C we
        had the tests done and went onto the GI doctor and on to the Rebetron
        treatment which took a few months to go through with the Ultra sound they do
        and liver biopsy - so far so good the treatment is working - yes doctors
        should be more educated or care more about their patients when they can't
        come up with the right answer - all the medicine he had him on hurt his liver
        more the last 4 years - thank God we finally got the help we needed and
        steered in the right direction. My husband had fibrosis one step from
        cirrhosis by the time we got the help we needed.

        Winne
      • g.e. evans
        Yes, initially No one believed there was pain involved with HCV. It literally took me 3 years to have a doc (whoo is my internist) say, I believe your pain!
        Message 3 of 5 , Jan 10, 2000
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          Yes, initially No one believed there was pain involved with HCV. It
          literally took me 3 years to have a doc (whoo is my internist) say,"I
          believe your pain!" and treat it. Thank God! I also have fibromyalgia and
          cryo...so it's a good thing SOMEONE started believing me!!!! Take care, gail


          >From: edferrell@... (Morris Ferrell)
          >Reply-To: GIWorld-Hepatitis@onelist.com
          >To: GIWorld-Hepatitis@onelist.com
          >Subject: [GIWorld-Hepatitis] Doctors need to be more educated on HEP C
          >Date: Mon, 10 Jan 2000 15:00:55 -0600 (CST)
          >
          >From: edferrell@... (Morris Ferrell)
          >
          >I have been suffering from HEP C for over 7 years now. My experience
          >with almost all Doctors is that they do not recognize the fact that you
          >CAN have severe pain from the symptoms of HEP C .Thank God ,I found a
          >Doctor that recognizes this fact and is treating me accordingly .Has
          >anyone else had this experience with Doctors ignoring your pleas for
          >pain medication? I think that Doctors need to be more informed on the
          >needs of the HEP C patient!!!!!!!
          >
          >
          >
          >
          >
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        • kalidurga@xxxxx.xxx
          The pegasys? is that the one you take once a week and it keeps the inteferon level up in you?
          Message 4 of 5 , Jan 10, 2000
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            The pegasys? is that the one you take once a week and it keeps the
            inteferon level up in you?
          • Brendagoez@xxx.xxx
            In a message dated 1/10/2000 7:01:52 PM Pacific Standard Time, kalidurga@webtv.net writes: Yes, it s the Pegasys interferon. Bren
            Message 5 of 5 , Jan 11, 2000
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              In a message dated 1/10/2000 7:01:52 PM Pacific Standard Time,
              kalidurga@... writes:

              << The pegasys? >> Yes, it's the Pegasys interferon.
              Bren
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