Loading ...
Sorry, an error occurred while loading the content.

QUESTION

Expand Messages
  • Photoart
    I WOULD LIKE TO KNOW WHAT KIND OF HERBS AND VITAMINS FOR HEP, THEY WANT TO DO THE 18 COMBO,THE 1ST DIDN T WORK,BUT DON WANT TO GO THREW THAT AGAIN, PLEASE
    Message 1 of 30 , Apr 26, 1999
    • 0 Attachment
      I WOULD LIKE TO KNOW WHAT KIND OF HERBS AND VITAMINS FOR HEP, THEY WANT TO DO THE 18 COMBO,THE 1ST DIDN'T WORK,BUT DON WANT TO GO THREW THAT AGAIN,
      PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!! MARTINE BEVEL
      ----- Original Message -----
      From: Tatezi
      To: GIWorld-Hepatitis@egroups.com
      Sent: Monday, January 01, 2001 3:32 PM
      Subject: Re: [GIWorld-Hepatitis] I am new


      Welcome to our group Ray.

      I treated my Hep naturally for a year and a half with herbs, vitamins,
      nutrition and stress elimination. At the end of that time my counts had
      doubled and I decided to go for the treatment.

      And I've been pretty lucky with the tx. My sides have been pretty minimal.
      Now if this genotype 1b will just respond...and I'll find out at my 6month
      PCR in 2 weeks.

      So feel free to let us know what you are doing with your personal treatment
      plan. Someone might have some good tips for you...and I'd be glad to share
      everything I did (or didn't) do.

      Blessings
      Tatezi

      Ray N wrote:

      > I would like to introduce myself. My Name is Ray Norman and I have
      > hep-c I don't do traditional meds because I cant take the sides. I
      > take herbs for my hep-c and Pray that will keep me in check tell the
      > time comes that there is allot easier way to deal with the hep-c. I
      > think what ever works for who is great for them. I am just after
      > knowledge and am willing to share what I can. Also I am 51 had active
      > hep-c for up tell a year and a half ago. I still test positive and
      > pray someday to see that change. My quality of life has been better
      > in my last 1 and 1/2 years than ever before. I can honistly say I am
      > a happy hepper. Not because I have it because I hate what it has done
      > to my friends. I hope I am not rambeling on. I just want everyone to
      > know I am here and who I am.
      > Ray
      >
      >
      > Community email addresses:
      > Post message: GIWorld-Hepatitis@onelist.com
      > Subscribe: GIWorld-Hepatitis-subscribe@onelist.com
      > Unsubscribe: GIWorld-Hepatitis-unsubscribe@onelist.com
      > List owner: GIWorld-Hepatitis-owner@onelist.com
      >
      > Shortcut URL to this page:
      > http://www.onelist.com/community/GIWorld-Hepatitis


      eGroups Sponsor


      Community email addresses:
      Post message: GIWorld-Hepatitis@onelist.com
      Subscribe: GIWorld-Hepatitis-subscribe@onelist.com
      Unsubscribe: GIWorld-Hepatitis-unsubscribe@onelist.com
      List owner: GIWorld-Hepatitis-owner@onelist.com

      Shortcut URL to this page:
      http://www.onelist.com/community/GIWorld-Hepatitis



      [Non-text portions of this message have been removed]
    • sbfla@xxxxx.xxxxxxxxxxxxxxxxxxxx)
      I am sorry..I just joined and was not aware of this.Barbara [Non-text portions of this message have been removed]
      Message 2 of 30 , Jan 10, 2000
      • 0 Attachment
        I am sorry..I just joined and was not aware of this.Barbara





        [Non-text portions of this message have been removed]
      • byteme
        I also live in Central Florida, and I am a provider of health care. If I can help, let me know. Marty
        Message 3 of 30 , Jan 10, 2000
        • 0 Attachment
          I also live in Central Florida, and I am a provider of health care. If I
          can help, let me know. Marty
        • Doc
          For Barbara, Here is the info of your interest: Approximately 5%-10% of sustained responders will relapse with HCV infection over the next 5-10 years All HCV
          Message 4 of 30 , Jan 10, 2000
          • 0 Attachment
            For Barbara,
            Here is the info of your interest:
            Approximately 5%-10% of sustained responders will relapse with HCV
            infection over the next 5-10 years
            All HCV patients who achieve a sustained response to interferon
            monotherapy have been shown to have a "durable" response. Ninety-five
            percent of such patients continue to have undetectable virus when
            followed for 3-5 years. Whether this finding holds true for patients
            receiving combination interferon/ribavirin therapy has not previously
            been addressed but results one such study are available now.
            A subset of 316 sustained responders have now been followed for more
            than 6 months to determine whether the response to treatment is durable.
            Ninety-seven percent of patients demonstrated a durable response
            (defined as the absence of detectable HCV RNA when followed a further 12
            to 36 months after cessation of therapy). Thus, the late relapse rate
            was < 3% and the durability of the response appeared to be equivalent
            for combination interferon/ribavirin and interferon monotherapy. These
            findings indicate that irrespective of treatment strategy, a sustained
            virologic response 6 months after cessation of treatment will most
            likely be maintained in the majority of patients. This study will
            continue with a total follow-up of 5 years.
            However, A subset of 316 sustained responders have now been followed for
            more than 6 months to determine whether the response to treatment is
            durable. Ninety-seven percent of patients demonstrated a durable
            response (defined as the absence of detectable HCV RNA when followed a
            further 12 to 36 months after cessation of therapy). Thus, the late
            relapse rate was < 3% and the durability of the response appeared to be
            equivalent for combination interferon/ribavirin and interferon
            monotherapy. These findings indicate that irrespective of treatment
            strategy, a sustained virologic response 6 months after cessation of
            treatment will most likely be maintained in the majority of patients.
            This study will continue with a total follow-up of 5 years.
            However results of previous studies have shown that individuals with
            hepatitis C and advanced fibrosis or cirrhosis respond less well to
            antiviral therapy.
            The viral genotype also has an effect on treatment outcome.
            70%-80% of those infected with genotypes 2 and 3 will be sustained
            responders to therapy compared with only 10%-20% of patients with
            genotype 1. He also noted that approximately 5%-10% of sustained
            responders will relapse with HCV infection over the next 5-10 years.

            Dr Sharat C Misra MD, DM
            Consultant Gastroenterologist & Hepatologist
            Each morning is the doorway to a new world,
            A beginning of infinite possibilities.


            ----- Original Message -----
            From: Sonny & Barbara
            To: GIWorld-Hepatitis@onelist.com
            Sent: Tuesday, January 11, 2000 1:41 AM
            Subject: [GIWorld-Hepatitis] QUESTION


            From: sbfla@... (Sonny & Barbara)

            MY HUSBAND HAS HEP.C..WAS ON COMBO FOR 6 MONTHS...WHAT ARE THE CHANCES
            OF HIM HAVING A RELAPSE/I AM SO WORRIED. BARBARA
            FOREMAN





            [Non-text portions of this message have been removed]
          • Brendagoez@xxx.xxx
            In a message dated 1/10/2000 1:14:50 PM Pacific Standard Time, AABASSO@aol.com writes:
            Message 5 of 30 , Jan 10, 2000
            • 0 Attachment
              In a message dated 1/10/2000 1:14:50 PM Pacific Standard Time,
              AABASSO@... writes:

              << rom: AABASSO@...

              your chat emails are going out to thousands of people. can you guys chat
              privately. your loading up everyones mailbox's

              I fail to see where your problem is with the "chat" emails. For some, this
              list is the only support they have. Yes, we definitely rely on
              >>
            • Brendagoez@xxx.xxx
              Dear Barbara, What was/is his PCR level when he ended treatment? And why was he on it for only 6 months? Love, Bren
              Message 6 of 30 , Jan 11, 2000
              • 0 Attachment
                Dear Barbara,
                What was/is his PCR level when he ended treatment? And why was he on it for
                only 6 months?
                Love,
                Bren
              • McCoyAngel@xxx.xxx
                I was on interferon alone for 6 mos and couldn t take it anymore. Then went on the combo when it was approved. After the first...the response lasted only as
                Message 7 of 30 , Jan 11, 2000
                • 0 Attachment
                  I was on interferon alone for 6 mos and couldn't take it anymore. Then went
                  on the combo when it was approved. After the first...the response lasted
                  only as long as the shots. But its now been 6 mos since the combo and LFT's
                  are still normal. I will get a HEP C RNA done tomorrow and we'll see.
                  Amy
                • Brendagoez@xxx.xxx
                  Good Luck Amy - let us know your results. Love, Bren
                  Message 8 of 30 , Jan 11, 2000
                  • 0 Attachment
                    Good Luck Amy - let us know your results.
                    Love,
                    Bren
                  • Papaspridg@xxx.xxx
                    Amy, Hello Sorry to sound uninformed but could you explain RNA, is that the viral load? Tom
                    Message 9 of 30 , Jan 11, 2000
                    • 0 Attachment
                      Amy, Hello
                      Sorry to sound uninformed but could you explain RNA, is that the viral load?
                      Tom
                    • Papaspridg@xxx.xxx
                      Hello All This will sound strange but I m still lost with all the abbreviations what do all of the RNA, MCW, RDW, VL and all the rest mean? I get a print out
                      Message 10 of 30 , Jan 11, 2000
                      • 0 Attachment
                        Hello All
                        This will sound strange but I'm still lost with all the abbreviations what do
                        all of the RNA, MCW, RDW, VL and all the rest mean? I get a print out and an
                        explanation of my lab results but when I get out of the office and have time
                        between work being sick and most of all the kids, I'm lost for what
                        everything means.
                        Could someone please help?
                        Tom
                      • Brendagoez@xxx.xxx
                        CBC Blood Chemistry Definitions
                        Message 11 of 30 , Jan 11, 2000
                        • 0 Attachment
                          <A HREF="http://www.carbonbased.com/cbcblood.htm">CBC Blood Chemistry
                          Definitions</A>
                        • Brendagoez@xxx.xxx
                          In a message dated 1/11/2000 8:55:01 PM Pacific Standard Time, Papaspridg@aol.com writes: RNA stands for Rbionuclear acid
                          Message 12 of 30 , Jan 12, 2000
                          • 0 Attachment
                            In a message dated 1/11/2000 8:55:01 PM Pacific Standard Time,
                            Papaspridg@... writes:

                            << RNA, is that the viral load? >>RNA stands for "Rbionuclear acid" What
                            does that mean? ha ha I'll try to explain it as best I can without further
                            confusing you. HCV is a single stranded RNA virus. And yes, you could say it
                            is your viral load although the correct term for your viral load is PCR RNA.
                          • VJannell@xxx.xxx
                            Hi-see if you can download Layman s Guide to Hep C Viral Load - part 2 in series. This was best thing I ever read explaining in dummy terms what is going on.
                            Message 13 of 30 , Jan 15, 2000
                            • 0 Attachment
                              Hi-see if you can download Layman's Guide to Hep C Viral Load - part 2 in
                              series. This was best thing I ever read explaining in "dummy" terms what is
                              going on. Good luck. Vickie
                            • Mark Reynolds
                              To GI-World-Hepatitis@onelist.com Please take me off this list. I m flooded with to much mail signed marey@iquest.net
                              Message 14 of 30 , Jan 15, 2000
                              • 0 Attachment
                                To GI-World-Hepatitis@onelist.com
                                Please take me off this list. I"m flooded with to much mail signed
                                marey@...
                                VJannell@... wrote:

                                > From: VJannell@...
                                >
                                > Hi-see if you can download Layman's Guide to Hep C Viral Load - part 2 in
                                > series. This was best thing I ever read explaining in "dummy" terms what is
                                > going on. Good luck. Vickie
                                >
                                > --------------------------- ONElist Sponsor ----------------------------
                                >
                                > WEMedia.com empowers persons with disabilities to build a strong and
                                > vibrant community.
                                > <a href=" http://clickme.onelist.com/ad/WeMedia ">Click Here</a>
                                >
                                > ------------------------------------------------------------------------
                                >
                                > Community email addresses:
                                > Post message: GIWorld-Hepatitis@onelist.com
                                > Subscribe: GIWorld-Hepatitis-subscribe@onelist.com
                                > Unsubscribe: GIWorld-Hepatitis-unsubscribe@onelist.com
                                > List owner: GIWorld-Hepatitis-owner@onelist.com
                                >
                                > Shortcut URL to this page:
                                > http://www.onelist.com/community/GIWorld-Hepatitis
                              • kalidurga@webtv.net
                                I am in my eight month of the combo and most of the physical side affects are gone, except being tired, and having sore arms if i sleep too long on one side at
                                Message 15 of 30 , Apr 15, 2000
                                • 0 Attachment
                                  I am in my eight month of the combo and most of the physical side
                                  affects are gone, except being tired, and having sore arms if i sleep
                                  too long on one side at night. I was on Interferon alone in 1993 and i
                                  did it for six months, so i didnt know what to expect after the six
                                  month mark this time.
                                  well beside having NO interest in sex, which is fine with me, I have
                                  been getting depressed alot. I am on Wellbutrin, because of my history
                                  of depression, and now my psychiatrist just started me on a low dose of
                                  Prozac also. I havent told me specialist or primary care, because they
                                  said they would never have put me on it, unless was on meds for the
                                  depression. now that the depression seems to be hitting me stronger, i
                                  dont want them to pull me off the meds. My viral load and labs are good.
                                  Im genotype 1b and need to stay on for 48 weeks.
                                  My question;

                                  is it wise to take a week or so off to take a rest from the drugs? will
                                  that take away from the depression if i do take a week or so off? Or
                                  would that be dumb, and not be good for my liver?

                                  The depression just was starting to bother me the day after the shot, i
                                  do mine at 9 pm, so the next morning i am pretty wiped out and down. but
                                  now it seems to have a mind of its own. it just hits me. i could be
                                  laughing with a friend, or watching tv, or someone might say something
                                  and 'pow', i literally feel myself falling into a depression. i hate it,
                                  because i reminds me of when i was a child.

                                  i know a side affect is depression from the combo, but as anyone else
                                  actually stoped the combo for a short while? and if so, did it help?

                                  i am 31 years old and have not been this depressed since my teenage
                                  years. i have always worked ALOT and i am known for my energy, which
                                  bothers me now since i have none, i am a vegetarian and eat healthy,
                                  dont drink or smoke or do drugs. i am not working, which i think makes
                                  me feel isolated, but sometimes i am wiped out, i do get out and walk my
                                  dog 1 to 3 hours a day, i live near a fenced dog park in the city and i
                                  socialize alot there, that helps.
                                  but i a so sick of the ups and downs. this is how i know its the combo.

                                  i hate to vent, i dont post much. i have joined many onelist groups,
                                  ones for; hep, depression, loneliess and i was hoping that would help.

                                  the two hep support groups here in boston are once a month, and i was
                                  told they are basically medically orientated, and not like a support
                                  group to talk about emotions.

                                  if anyone has any suggestions PLEASE get back to me. i want to fight
                                  this awful disease. i just had a frend who had a kidney transplant, his
                                  sisters gave him one, WOW!!!, and it really hit home to what may lie
                                  ahead.

                                  im open for suggestions.
                                  Thanks.
                                • mlenear@healthcite.com
                                  ... WANT TO DO THE 18 COMBO,THE 1ST DIDN T WORK,BUT DON WANT TO GO THREW THAT AGAIN, ... Hi Martine, You can find a bunch of information about Hep B at the
                                  Message 16 of 30 , Jan 31, 2001
                                  • 0 Attachment
                                    --- In GIWorld-Hepatitis@y..., "Photoart" <photoart@v...> wrote:
                                    > I WOULD LIKE TO KNOW WHAT KIND OF HERBS AND VITAMINS FOR HEP, THEY
                                    WANT TO DO THE 18 COMBO,THE 1ST DIDN'T WORK,BUT DON WANT TO GO THREW
                                    THAT AGAIN,
                                    > PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!! MARTINE BEVEL

                                    Hi Martine,

                                    You can find a bunch of information about Hep B at the following
                                    URL:

                                    http://www.healthcite.com/HealthReview/p2215.html

                                    If you look under the Treatments section you will find stuff about
                                    conventional treatments as well as alternative/herbal therapies.

                                    Best Regards,

                                    Monica Lenear
                                    HealthCite
                                  • claudine intexas
                                    Hi Martine, I missed this message from you I guess, never saw it. When is it from? What reason did whoever give you for wanting you back on combo, when it
                                    Message 17 of 30 , Feb 2, 2001
                                    • 0 Attachment
                                      Hi Martine,
                                      I missed this message from you I guess, never saw
                                      it. When is it from? What reason did whoever give
                                      you for wanting you back on combo, when it didn't work
                                      once already? Is it the exact same dose and
                                      everything? I will see what info I have on
                                      alternatives, but I don't think it's much. Keep in
                                      mind they may help, but none will get rid of the
                                      virus. I did find a really great place to look up
                                      info on herbs and supplements, including toxicities,
                                      side effects, and indications, also drug interactions,
                                      etc. It is: The Natural Pharmacist -
                                      http://www.tnp.com/home.asp
                                      Good luck,
                                      Claudine

                                      --- mlenear@... wrote:
                                      > --- In GIWorld-Hepatitis@y..., "Photoart"
                                      > <photoart@v...> wrote:
                                      > > I WOULD LIKE TO KNOW WHAT KIND OF HERBS AND
                                      > VITAMINS FOR HEP, THEY
                                      > WANT TO DO THE 18 COMBO,THE 1ST DIDN'T WORK,BUT DON
                                      > WANT TO GO THREW
                                      > THAT AGAIN,
                                      > > PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!! MARTINE
                                      > BEVEL


                                      __________________________________________________
                                      Get personalized email addresses from Yahoo! Mail - only $35
                                      a year! http://personal.mail.yahoo.com/
                                    Your message has been successfully submitted and would be delivered to recipients shortly.