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  • Photoart
    I WOULD LIKE TO KNOW WHAT KIND OF HERBS AND VITAMINS FOR HEP, THEY WANT TO DO THE 18 COMBO,THE 1ST DIDN T WORK,BUT DON WANT TO GO THREW THAT AGAIN, PLEASE
    Message 1 of 30 , Apr 26, 1999
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      I WOULD LIKE TO KNOW WHAT KIND OF HERBS AND VITAMINS FOR HEP, THEY WANT TO DO THE 18 COMBO,THE 1ST DIDN'T WORK,BUT DON WANT TO GO THREW THAT AGAIN,
      PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!! MARTINE BEVEL
      ----- Original Message -----
      From: Tatezi
      To: GIWorld-Hepatitis@egroups.com
      Sent: Monday, January 01, 2001 3:32 PM
      Subject: Re: [GIWorld-Hepatitis] I am new


      Welcome to our group Ray.

      I treated my Hep naturally for a year and a half with herbs, vitamins,
      nutrition and stress elimination. At the end of that time my counts had
      doubled and I decided to go for the treatment.

      And I've been pretty lucky with the tx. My sides have been pretty minimal.
      Now if this genotype 1b will just respond...and I'll find out at my 6month
      PCR in 2 weeks.

      So feel free to let us know what you are doing with your personal treatment
      plan. Someone might have some good tips for you...and I'd be glad to share
      everything I did (or didn't) do.

      Blessings
      Tatezi

      Ray N wrote:

      > I would like to introduce myself. My Name is Ray Norman and I have
      > hep-c I don't do traditional meds because I cant take the sides. I
      > take herbs for my hep-c and Pray that will keep me in check tell the
      > time comes that there is allot easier way to deal with the hep-c. I
      > think what ever works for who is great for them. I am just after
      > knowledge and am willing to share what I can. Also I am 51 had active
      > hep-c for up tell a year and a half ago. I still test positive and
      > pray someday to see that change. My quality of life has been better
      > in my last 1 and 1/2 years than ever before. I can honistly say I am
      > a happy hepper. Not because I have it because I hate what it has done
      > to my friends. I hope I am not rambeling on. I just want everyone to
      > know I am here and who I am.
      > Ray
      >
      >
      > Community email addresses:
      > Post message: GIWorld-Hepatitis@onelist.com
      > Subscribe: GIWorld-Hepatitis-subscribe@onelist.com
      > Unsubscribe: GIWorld-Hepatitis-unsubscribe@onelist.com
      > List owner: GIWorld-Hepatitis-owner@onelist.com
      >
      > Shortcut URL to this page:
      > http://www.onelist.com/community/GIWorld-Hepatitis


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      [Non-text portions of this message have been removed]
    • NexusTeam@xxx.xxx
      So you re close to Cedar Key? That s where the husband and I usually go for special occassions (birthdays, anniversaries). Nice area! Hollie
      Message 2 of 30 , Jan 10, 2000
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        So you're close to Cedar Key? That's where the husband and I usually go for
        special occassions (birthdays, anniversaries). Nice area! Hollie
      • AABASSO@xxx.xxx
        your chat emails are going out to thousands of people. can you guys chat privately. your loading up everyones mailbox s
        Message 3 of 30 , Jan 10, 2000
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          your chat emails are going out to thousands of people. can you guys chat
          privately. your loading up everyones mailbox's
        • sbfla@xxxxx.xxxxxxxxxxxxxxxxxxxx)
          I am sorry..I just joined and was not aware of this.Barbara [Non-text portions of this message have been removed]
          Message 4 of 30 , Jan 10, 2000
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            I am sorry..I just joined and was not aware of this.Barbara





            [Non-text portions of this message have been removed]
          • byteme
            I also live in Central Florida, and I am a provider of health care. If I can help, let me know. Marty
            Message 5 of 30 , Jan 10, 2000
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              I also live in Central Florida, and I am a provider of health care. If I
              can help, let me know. Marty
            • Doc
              For Barbara, Here is the info of your interest: Approximately 5%-10% of sustained responders will relapse with HCV infection over the next 5-10 years All HCV
              Message 6 of 30 , Jan 10, 2000
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                For Barbara,
                Here is the info of your interest:
                Approximately 5%-10% of sustained responders will relapse with HCV
                infection over the next 5-10 years
                All HCV patients who achieve a sustained response to interferon
                monotherapy have been shown to have a "durable" response. Ninety-five
                percent of such patients continue to have undetectable virus when
                followed for 3-5 years. Whether this finding holds true for patients
                receiving combination interferon/ribavirin therapy has not previously
                been addressed but results one such study are available now.
                A subset of 316 sustained responders have now been followed for more
                than 6 months to determine whether the response to treatment is durable.
                Ninety-seven percent of patients demonstrated a durable response
                (defined as the absence of detectable HCV RNA when followed a further 12
                to 36 months after cessation of therapy). Thus, the late relapse rate
                was < 3% and the durability of the response appeared to be equivalent
                for combination interferon/ribavirin and interferon monotherapy. These
                findings indicate that irrespective of treatment strategy, a sustained
                virologic response 6 months after cessation of treatment will most
                likely be maintained in the majority of patients. This study will
                continue with a total follow-up of 5 years.
                However, A subset of 316 sustained responders have now been followed for
                more than 6 months to determine whether the response to treatment is
                durable. Ninety-seven percent of patients demonstrated a durable
                response (defined as the absence of detectable HCV RNA when followed a
                further 12 to 36 months after cessation of therapy). Thus, the late
                relapse rate was < 3% and the durability of the response appeared to be
                equivalent for combination interferon/ribavirin and interferon
                monotherapy. These findings indicate that irrespective of treatment
                strategy, a sustained virologic response 6 months after cessation of
                treatment will most likely be maintained in the majority of patients.
                This study will continue with a total follow-up of 5 years.
                However results of previous studies have shown that individuals with
                hepatitis C and advanced fibrosis or cirrhosis respond less well to
                antiviral therapy.
                The viral genotype also has an effect on treatment outcome.
                70%-80% of those infected with genotypes 2 and 3 will be sustained
                responders to therapy compared with only 10%-20% of patients with
                genotype 1. He also noted that approximately 5%-10% of sustained
                responders will relapse with HCV infection over the next 5-10 years.

                Dr Sharat C Misra MD, DM
                Consultant Gastroenterologist & Hepatologist
                Each morning is the doorway to a new world,
                A beginning of infinite possibilities.


                ----- Original Message -----
                From: Sonny & Barbara
                To: GIWorld-Hepatitis@onelist.com
                Sent: Tuesday, January 11, 2000 1:41 AM
                Subject: [GIWorld-Hepatitis] QUESTION


                From: sbfla@... (Sonny & Barbara)

                MY HUSBAND HAS HEP.C..WAS ON COMBO FOR 6 MONTHS...WHAT ARE THE CHANCES
                OF HIM HAVING A RELAPSE/I AM SO WORRIED. BARBARA
                FOREMAN





                [Non-text portions of this message have been removed]
              • Brendagoez@xxx.xxx
                In a message dated 1/10/2000 1:14:50 PM Pacific Standard Time, AABASSO@aol.com writes:
                Message 7 of 30 , Jan 10, 2000
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                  In a message dated 1/10/2000 1:14:50 PM Pacific Standard Time,
                  AABASSO@... writes:

                  << rom: AABASSO@...

                  your chat emails are going out to thousands of people. can you guys chat
                  privately. your loading up everyones mailbox's

                  I fail to see where your problem is with the "chat" emails. For some, this
                  list is the only support they have. Yes, we definitely rely on
                  >>
                • Brendagoez@xxx.xxx
                  Dear Barbara, What was/is his PCR level when he ended treatment? And why was he on it for only 6 months? Love, Bren
                  Message 8 of 30 , Jan 11, 2000
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                    Dear Barbara,
                    What was/is his PCR level when he ended treatment? And why was he on it for
                    only 6 months?
                    Love,
                    Bren
                  • McCoyAngel@xxx.xxx
                    I was on interferon alone for 6 mos and couldn t take it anymore. Then went on the combo when it was approved. After the first...the response lasted only as
                    Message 9 of 30 , Jan 11, 2000
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                      I was on interferon alone for 6 mos and couldn't take it anymore. Then went
                      on the combo when it was approved. After the first...the response lasted
                      only as long as the shots. But its now been 6 mos since the combo and LFT's
                      are still normal. I will get a HEP C RNA done tomorrow and we'll see.
                      Amy
                    • Brendagoez@xxx.xxx
                      Good Luck Amy - let us know your results. Love, Bren
                      Message 10 of 30 , Jan 11, 2000
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                        Good Luck Amy - let us know your results.
                        Love,
                        Bren
                      • Papaspridg@xxx.xxx
                        Amy, Hello Sorry to sound uninformed but could you explain RNA, is that the viral load? Tom
                        Message 11 of 30 , Jan 11, 2000
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                          Amy, Hello
                          Sorry to sound uninformed but could you explain RNA, is that the viral load?
                          Tom
                        • Papaspridg@xxx.xxx
                          Hello All This will sound strange but I m still lost with all the abbreviations what do all of the RNA, MCW, RDW, VL and all the rest mean? I get a print out
                          Message 12 of 30 , Jan 11, 2000
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                            Hello All
                            This will sound strange but I'm still lost with all the abbreviations what do
                            all of the RNA, MCW, RDW, VL and all the rest mean? I get a print out and an
                            explanation of my lab results but when I get out of the office and have time
                            between work being sick and most of all the kids, I'm lost for what
                            everything means.
                            Could someone please help?
                            Tom
                          • Brendagoez@xxx.xxx
                            CBC Blood Chemistry Definitions
                            Message 13 of 30 , Jan 11, 2000
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                              <A HREF="http://www.carbonbased.com/cbcblood.htm">CBC Blood Chemistry
                              Definitions</A>
                            • Brendagoez@xxx.xxx
                              In a message dated 1/11/2000 8:55:01 PM Pacific Standard Time, Papaspridg@aol.com writes: RNA stands for Rbionuclear acid
                              Message 14 of 30 , Jan 12, 2000
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                                In a message dated 1/11/2000 8:55:01 PM Pacific Standard Time,
                                Papaspridg@... writes:

                                << RNA, is that the viral load? >>RNA stands for "Rbionuclear acid" What
                                does that mean? ha ha I'll try to explain it as best I can without further
                                confusing you. HCV is a single stranded RNA virus. And yes, you could say it
                                is your viral load although the correct term for your viral load is PCR RNA.
                              • VJannell@xxx.xxx
                                Hi-see if you can download Layman s Guide to Hep C Viral Load - part 2 in series. This was best thing I ever read explaining in dummy terms what is going on.
                                Message 15 of 30 , Jan 15, 2000
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                                  Hi-see if you can download Layman's Guide to Hep C Viral Load - part 2 in
                                  series. This was best thing I ever read explaining in "dummy" terms what is
                                  going on. Good luck. Vickie
                                • Mark Reynolds
                                  To GI-World-Hepatitis@onelist.com Please take me off this list. I m flooded with to much mail signed marey@iquest.net
                                  Message 16 of 30 , Jan 15, 2000
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                                    To GI-World-Hepatitis@onelist.com
                                    Please take me off this list. I"m flooded with to much mail signed
                                    marey@...
                                    VJannell@... wrote:

                                    > From: VJannell@...
                                    >
                                    > Hi-see if you can download Layman's Guide to Hep C Viral Load - part 2 in
                                    > series. This was best thing I ever read explaining in "dummy" terms what is
                                    > going on. Good luck. Vickie
                                    >
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                                  • kalidurga@webtv.net
                                    I am in my eight month of the combo and most of the physical side affects are gone, except being tired, and having sore arms if i sleep too long on one side at
                                    Message 17 of 30 , Apr 15, 2000
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                                      I am in my eight month of the combo and most of the physical side
                                      affects are gone, except being tired, and having sore arms if i sleep
                                      too long on one side at night. I was on Interferon alone in 1993 and i
                                      did it for six months, so i didnt know what to expect after the six
                                      month mark this time.
                                      well beside having NO interest in sex, which is fine with me, I have
                                      been getting depressed alot. I am on Wellbutrin, because of my history
                                      of depression, and now my psychiatrist just started me on a low dose of
                                      Prozac also. I havent told me specialist or primary care, because they
                                      said they would never have put me on it, unless was on meds for the
                                      depression. now that the depression seems to be hitting me stronger, i
                                      dont want them to pull me off the meds. My viral load and labs are good.
                                      Im genotype 1b and need to stay on for 48 weeks.
                                      My question;

                                      is it wise to take a week or so off to take a rest from the drugs? will
                                      that take away from the depression if i do take a week or so off? Or
                                      would that be dumb, and not be good for my liver?

                                      The depression just was starting to bother me the day after the shot, i
                                      do mine at 9 pm, so the next morning i am pretty wiped out and down. but
                                      now it seems to have a mind of its own. it just hits me. i could be
                                      laughing with a friend, or watching tv, or someone might say something
                                      and 'pow', i literally feel myself falling into a depression. i hate it,
                                      because i reminds me of when i was a child.

                                      i know a side affect is depression from the combo, but as anyone else
                                      actually stoped the combo for a short while? and if so, did it help?

                                      i am 31 years old and have not been this depressed since my teenage
                                      years. i have always worked ALOT and i am known for my energy, which
                                      bothers me now since i have none, i am a vegetarian and eat healthy,
                                      dont drink or smoke or do drugs. i am not working, which i think makes
                                      me feel isolated, but sometimes i am wiped out, i do get out and walk my
                                      dog 1 to 3 hours a day, i live near a fenced dog park in the city and i
                                      socialize alot there, that helps.
                                      but i a so sick of the ups and downs. this is how i know its the combo.

                                      i hate to vent, i dont post much. i have joined many onelist groups,
                                      ones for; hep, depression, loneliess and i was hoping that would help.

                                      the two hep support groups here in boston are once a month, and i was
                                      told they are basically medically orientated, and not like a support
                                      group to talk about emotions.

                                      if anyone has any suggestions PLEASE get back to me. i want to fight
                                      this awful disease. i just had a frend who had a kidney transplant, his
                                      sisters gave him one, WOW!!!, and it really hit home to what may lie
                                      ahead.

                                      im open for suggestions.
                                      Thanks.
                                    • mlenear@healthcite.com
                                      ... WANT TO DO THE 18 COMBO,THE 1ST DIDN T WORK,BUT DON WANT TO GO THREW THAT AGAIN, ... Hi Martine, You can find a bunch of information about Hep B at the
                                      Message 18 of 30 , Jan 31, 2001
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                                        --- In GIWorld-Hepatitis@y..., "Photoart" <photoart@v...> wrote:
                                        > I WOULD LIKE TO KNOW WHAT KIND OF HERBS AND VITAMINS FOR HEP, THEY
                                        WANT TO DO THE 18 COMBO,THE 1ST DIDN'T WORK,BUT DON WANT TO GO THREW
                                        THAT AGAIN,
                                        > PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!! MARTINE BEVEL

                                        Hi Martine,

                                        You can find a bunch of information about Hep B at the following
                                        URL:

                                        http://www.healthcite.com/HealthReview/p2215.html

                                        If you look under the Treatments section you will find stuff about
                                        conventional treatments as well as alternative/herbal therapies.

                                        Best Regards,

                                        Monica Lenear
                                        HealthCite
                                      • claudine intexas
                                        Hi Martine, I missed this message from you I guess, never saw it. When is it from? What reason did whoever give you for wanting you back on combo, when it
                                        Message 19 of 30 , Feb 2, 2001
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                                          Hi Martine,
                                          I missed this message from you I guess, never saw
                                          it. When is it from? What reason did whoever give
                                          you for wanting you back on combo, when it didn't work
                                          once already? Is it the exact same dose and
                                          everything? I will see what info I have on
                                          alternatives, but I don't think it's much. Keep in
                                          mind they may help, but none will get rid of the
                                          virus. I did find a really great place to look up
                                          info on herbs and supplements, including toxicities,
                                          side effects, and indications, also drug interactions,
                                          etc. It is: The Natural Pharmacist -
                                          http://www.tnp.com/home.asp
                                          Good luck,
                                          Claudine

                                          --- mlenear@... wrote:
                                          > --- In GIWorld-Hepatitis@y..., "Photoart"
                                          > <photoart@v...> wrote:
                                          > > I WOULD LIKE TO KNOW WHAT KIND OF HERBS AND
                                          > VITAMINS FOR HEP, THEY
                                          > WANT TO DO THE 18 COMBO,THE 1ST DIDN'T WORK,BUT DON
                                          > WANT TO GO THREW
                                          > THAT AGAIN,
                                          > > PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!! MARTINE
                                          > BEVEL


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