March on DC for Awareness May, 23rd
- -----Original Message-----
From: Tricia [mailto:Rockiesnext@...]
Sent: Saturday, April 26, 2003 10:32 AM
Subject: March on DC for Awareness May, 23rd
Hepatitis C's Movement for Awareness
. . . from Hepatitis C's Movement for Awareness
FOR IMMEDIATE RELEASE
FOR MORE INFORMATION:
540 248 4994
The National March on DC for Awareness
By Wendy Wright,
This years line up for speakers at Hepatitis C's Movement for
Awareness (HMA) National March on DC will be phenomenal says Tricia
Lupole, Nat'l Coordinator for the movement. Events are scheduled to
begin Thursday, May 22, 2003 with a pre-march rally at the Holiday Inn
Downtown. A silent auction will be held to benefit awareness. This will
be followed by the National March to Freedom Plaza the next day, Friday
The March begins at 10 am with a rally across from the Capitol on
the National Mall, located at 3rd street. They will arrive at Freedom
Plaza with guest speakers scheduled from 1 to 4 pm. A wide variety of
topics focused on the devastation of Hepatitis C (HCV) to families
across America will be presented. Doctors, advocates, veterans groups
and people living with this disease will discuss the huge hurdles in HCV
awareness, prevention and education. A dinner and raffle is scheduled
for that evening.
The activities continue Saturday, May 24th with participation in
veterans ceremonies honoring our military. Things will wind down with a
candle light vigil that night, taking place at Thomas Circle National
Park, located at Massachusetts and Vermont Ave. Participants will light
candles and read names in remembrance of all those that passed from this
devastating disease. The International Quilts will be on display all
Lupole says "We are pleased to announce that Ms. Debbie
Delgado-Vega, CEO and Founder of the Latino Organization for Liver
Awareness (LOLA) will speak May 23rd at Freedom Plaza." For several
years L.O.L.A. has led a major HCV grassroots public education campaign
targeting Latinos through HCV bilingual/bicultural educational programs
and materials, support groups, referral services and a toll free number.
L.O.L.A. is the first national voluntary organization dedicated to
the Latino community and other underserved populations suffering from
liver disease and/or need a liver transplant in the United States. They
have successfully reached out to a total of 13 million people with
intensive radio and television media coverage. Ms. Vega truly
understands the needs of the HCV community and it is an honor to have
We are also thrilled to have Alexander Aitken, Chairman of the
Canadian Hepatitis C Network. He will discuss the tainted blood
history... the story the US never hears. Mr. Aitken and The Canadian
Network have worked hard for many years, protecting victims rights that
were violated as a result of the blood scandal that has rocked every
country in the world, except the USA. The illegal sale of prison blood
from USA to Canada is responsible for millions of infections in the USA,
Canada and the world.
Through the Canadian Network and other advocates efforts, the
government established a look-back program to identify victims of bad
blood products. Although there is still much disagreement over the
actual scope of time the blood was contaminated, the country has made
progress identifying infected people. The USA look-back program for
patients infected with HCV was established in 1996. No patients have
been identified and the program has virtually come to a complete halt.
At the Eighteenth Meeting of the Department of Health and Human
Services Advisory Committee on Blood Safety and Availability for
Transfusion Transmissible Diseases, held January 23, 2003 in Washington,
DC, the theme was "Prioritizing Decisions in Transfusion Medicine." The
conclusion was, again, to remove financial barriers to testing
individuals identified by current government standards for being at
The Canadian Network was also instrumental in the recent Mounted
Police charges laid against high ranking Canadian government officials
and a USA pharmaceutical company executive for neglect and failure to
protect the blood supply. The Mounted Police say more charges are
pending. Lupole says "We are certain to learn a great deal from our
Canadian brothers and sisters."
Other guest speakers include Ed Wendt, the editor of Hep C
Intelligence Report and Houston Metro News Bureau. He is also the Award
Winner of the Houston Press Club Print Journalist of the Year 1998 and a
His early investigative work on the connection between Hepatitis C
and the military opened the doors and gave courage to thousands of
Veterans. Mr. Wendt continues HCV awareness through state activism and
will speak for Houston Texans stricken with HCV and the failure of
legislators to effectively deal with the epidemic. His message will be
powerful for all advocates battling for fundamental right.
Miles Keaton Andrew, Vice President of the Hepatitis C Association,
will encourage patients to educate themselves so that they may, along
with their physicians, make the best decisions regarding their treatment
of the hepatitis C virus. Education is the key to empowerment. He will
also discuss some of the possible future treatments that researchers are
The Hepatitis C Association goals include keeping the importance of
organ donation to the forefront of the public's mind. They offer
emotional support to patients living with this insidious disease by
making information available on-line, in brochures, and on a toll-free
support line. Another important goal is to help de-stigmatize the
disease for all people living with HCV.
Don Doty is president of The Georgia Doty Health Education Fund
(GDHEF), a nonprofit health organization formulated to inspire, support
and enhance community efforts toward hepatitis C issues present in
Chicago's underserved communities. He will speak on cultural exposure to
As an African American and former Marine, Mr. Doty relates to this
population. He will speak of problems dealing with denial he and others
face. Issues like admitting to HCV, to concerns over rejection from
society once they learn of the infection. Mr. Doty states "The real
killer is the lack of knowledge and discipline to change one's way of
life and the way they think."
Ray Hill is the producer/host of "The Prison Show" KPFT-FM in
Houston Texas. He will talk about the critical role prisons play in the
spread of HCV. Mr. Hill will explain why these systems have been in
epidemic status for over 30 years. He states the epidemic exists because
of the poor choice in priorities made by the prison systems. These poor
choices allow infected inmates to be released, untreated, and in some
cases, unaware they have HCV. These inmates are taking the risk of
infection home when they're released. The burden for treatment is then
placed on the public health care systems.
Prisons, jails, juvenal detention homes and mental hospitals are
the Dragon's Den, with astounding rates of infection. As high as 50% in
some institutions. Mr. Hill's message has a critical role if we intend
on stopping the spread of this disease.
Richard F. Weidman is the Director of Government Relations for the
Vietnam Veterans of America (VVA). The VVA is a congressionally
appointed service organization designated to help military veterans. Mr.
Weidman and the VVA have assisted HCV veterans by winning the first
claim granted by the Veterans Administration (VA) that includes the
pneumatic air guns used on soldiers for inoculations with vaccines.
Veterans have given statements time and time again to the
conditions these guns were used under. Reports are ramped of unsanitary
conditions during immunizations combined with bleeding wounds caused by
flinching from high impact air used to deliver the vaccine. Despite
recent studies showing contamination of the jet guns is possible, the VA
has moved slowly to help the 2+ million veterans infected. The VVA is
the first service organization to pursue HCV transmission by jet gun
injection, helping veterans prove the connection.
Mr. Weidman's deep concern of the treatment HCV veterans receive
led to testimony before the Government Accounting Office this past
January, forcing the VA to account for hundreds of thousands of dollars
in misappropriated funds for their care. Although Congress allocated
$40,000.00 per infected veteran for treatment, they were given older
medicines that offer half the chance for success. Prescriptions for
treatment were placed in pharmaceutical drawers awaiting money to fill
Mr. Weidman will address the VA's need for more extensive
education, awareness, and testing campaigns.
We have many more outstanding speakers coming to DC to gather for
awareness. This years march will help all of us understand the needs of
each other in order to stop the spread of this disease.
Lupole and members of HMA believe, through unity, they can change
the prediction that 1 in 5 will have this disease in the near future.
"So come on out," she says, and help us wake up this nation and the
world to the devastation of HCV, May 23rd.
For more information about the National March for Awareness, visit their
website at http://hcvets.com/forum_public/hma/disc.htm or
Phone 540 248 4994
New York/New Jersey/Connecticut
We are in the process of reserving Coach Buses for those in the New
York/New Jersey/Connecticut area to transport participants to DC from
NYC with a same day return. The cost of the bus will be $50 round trip,
and $30 for those who are disabled or whose financial situation is
limited. (We will try not to turn anybody anyway.)
If you have any questions please email Shari Newman-Foster
Join us on May 23rd for our Second Annual HCV March on DC for Awareness.
Bring your friends and family. It's time for our voices to be heard, we
will not be ignored any longer.
MAY 23 - National Hepatitis-C Awareness Day Washington DC or BUST!
The Central Jersey Hep-C support Group that meets at Robert Wood Johnson
in Hamilton is making plans for 1 to N (whatever persons registering
with us, seem to warrant) 15 Passenger Vans. Email and local Web Page
provided below. Cost for each person will be based on total cost (full
van will be less than $30 total) and ability to pay. Those in financial
straits will ride for less.
Our object is to have the fellowship and support of each other on our
trip there and back and get as many there as we can. We look to share
the expenses not a penny more. Open to the victims, their family and
friends. Like the Dragon we will not discriminate.
Will leave from the Park and Ride on Route US 130 in Brunswick area
(Junction with Route 32). That way those that can drive can park their
Please sign up by email to
matta00@... or Mgoo500300@...
or get more information and sign up at the web site
Why We're Marching on DC for Awareness
5,126,344+ Americans with HCV
40% Have no clue how they were infected
75% of all people & 91% African American
HCV+ are genotype 1's
33% chance to clear with Peg or Pegasus
Riverside County Ca.
133 people test positive each Month
http://www.dhs.ca.gov/ps/dcdc/pdf/Hepatitis C Strategic Plan - 2001.pdf
CA- African American women
222% higher infection rate than Nation
NY 20% Higher rate than Nation
Studies determines Hepatitis C
Risk Not Limited to Injection Drug Users
Boston- HCV soars 300% in the last four years
FDA Cannot Guarantee Reused/Reprocessed
"Single Use" Medical Devices
Ear/Nose/Throat scope transmit HCV
Surgeons transmit HCV
Surgeons Refuse to take HCV test
after patients test positive
The CDC states "no association with military service or exposures
resulting from medical, surgical, or dental procedures, tattooing,
acupuncture, ear piercing, or foreign travel. If transmission from
such exposures does occur, the frequency might be too low to detect."
Most Americans with HCV
HCV by Ticks and Mosquitoes
HCV DNA found on toothbrushes
HCV by Viral Proxy
One in ten parents cannot
donate blood to their children
Medicaid pays for Viagra and
not Peg Interferon
Most people do not think they
need to be tested.
Record numbers of people will die because of little funding and failure
to research this disease as a whole!
PLEASE HELP US CHANGE THIS!
YOU CAN MAKE A DIFFERENCE IN OUR FUTURE
Click here to
Join our Campaigns NOW!!
We are the Hepatitis C's
Movement for Awareness
Contact: Tricia HMAwareness@...
Phone: 540 248 4994
Visit Our Forum
Tell a Friend!
March on Dc May 23,2003
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