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Nice to be remembered!

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  • C.J.
    Thanks for responding, I know it had been quite some time. Claudine I rem how much help you were to me, and I also rem the rest who responded. Thanks. You
    Message 1 of 6 , Apr 26, 2003
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      Thanks for responding, I know it had been quite some time. Claudine I
      rem how much help you were to me, and I also rem the rest who
      responded. Thanks. You asked if I take vitamins--yes, I take vit E
      Vit C, selenium, calcium, milk thistle, alpha lipoic acid COQ10, and
      multivitamin without iron. I know it sounds like a lot! Will ANY of
      the liver damage end or regenerate itself if I can stay negative?? It
      will be time next month to take the test again for the 6 months post
      tx. Each time I have to go thru one of these, I get so anxious, and I
      know it does no good as it's going to be what it's going to be
      without my worrying and anxiety. I tried to stop the paxils 3 months
      after tx, but realized I did that too soon and am now back on them--
      trying to stay @ 20mg, because I went through so much with the
      withdrawal and actually thought I felt better without them for some
      time and then the depression hit again so I got back on them. Also,
      take xanax at night to sleep (have terrible insomia) As for the joint
      pain, I just don't know what is safe to take over the counter and was
      afraid to take anything so I haven't. I would really like to get some
      tests done to "see" if they can find out what this is. It is so bad
      at times, it really scares me. HOw do I know if it's really arthritis
      and would a gastro do a test for that or would I have to go somewhere
      else. Would a test for the cryo be worth trying and if the results
      were positive, is there medications for that?? AND I know I must have
      chronic fatique sydrome too, as I am always tired. Is this is as good
      as it's going to get?? Rem me, I was always full of questions. Also,
      it was mentioned about the study results were ONLY for the mono-
      hepatitis. What does that mean??? If I can make it negative on the 6
      months post tx, even as bad as my liver was--cirrochiss complete,
      won't my percentage be higher not to relapse also. Will my liver do
      ANY healing?? Any input, feel free. Sorry so many questions. Cher
    • claudine intexas
      ... I posted a couple of articles on this. I would say the answer is a good maybe . ... You should be able to safely take Tylenol, but don t overdo it. You
      Message 2 of 6 , Apr 27, 2003
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        --- "C.J." <runabout104@...> wrote:
        >Will ANY of
        > the liver damage end or regenerate itself if I can stay
        >negative??... Will my liver do ANY healing??....

        I posted a couple of articles on this. I would say the answer is a
        good 'maybe'.

        > As for the joint pain, I just don't know what is safe to take over
        >the counter and was afraid to take anything so I haven't. I would
        >really like to get some tests done to "see" if they can find out
        >what this is. It is so bad at times, it really scares me. HOw do I
        >know if it's really arthritis and would a gastro do a test for that
        >or would I have to go somewhere else. Would a test for the cryo be
        >worth trying and if the results were positive, is there medications
        >for that?? AND I know I must have chronic fatique sydrome too, as I
        >am always tired.

        You should be able to safely take Tylenol, but don't overdo it. You
        can take 2 extra strength (1000mg) every 8 - 12 hours, but I wouldn't
        take it all the time - just as needed. The type of doctor you need to
        see is a rheumatologist. A rheumatologist can tell if you have
        arthritis and if so, what type, and can prescribe treatment as
        needed. He would also be the one to test for cryo and fibromyalgia.
        Amitriptyline is often prescribed for fibro, and it also works very
        well for insomnia and chronic pain.

        WARNING!!!! If/when you decide to get off the Xanax do it very
        slowly! I took it the whole time I was on treatment and got addicted.
        I tried to quit cold turkey and it was a nightmare - mostly for my
        husband. Luckily he was patient with me during those two weeks when I
        was bouncing between crying and biting his head off. Then my doctor
        realized I'd stopped taking it and put me back on. When I finally
        quit I tapered of VERY slowly and then it was real easy.

        Is this is as
        > good
        > as it's going to get??

        Be patient! Hopefully things will improve!

        Claudine


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      • Mscue40@aol.com
        Hi, I thought I had arthritis as well. There is a blood test for that. If it is less expensive you could have your family Dr. test your blood. Mine was
        Message 3 of 6 , Apr 28, 2003
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          Hi, I thought I had arthritis as well. There is a blood test for that. If it
          is less expensive you could have your family Dr. test your blood. Mine was
          negative and it was good to rule that out.
          Your hepper friend Donna who is almost finished with treatment. My whole
          attitude is much happier knowing the end of treatment is so near. I feel I
          have been so brave to get through this past year. Now I am nearing the end I
          have begun to see and think about my wonderful future ahead:)
          I thank you all for your support,
          I did go to Norway and had a most wonderful time visiting the outskirts of
          the world. I learned so much about their history and heritage. We are such a
          young nation and I kissed the good earth of the USA when I returned.
          Love to you all,
          Donna


          [Non-text portions of this message have been removed]
        • claudine intexas
          ... There are probably a hundred different kinds of arthritis and most cannot be diagnosed with a blood test. Also, because of how HCV affects the immune
          Message 4 of 6 , Apr 28, 2003
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            --- Mscue40@... wrote:
            > Hi, I thought I had arthritis as well. There is a blood test for
            > that. If it
            > is less expensive you could have your family Dr. test your blood.
            > Mine was
            > negative and it was good to rule that out.

            There are probably a hundred different kinds of arthritis and most
            cannot be diagnosed with a blood test. Also, because of how HCV
            affects the immune system, some tests, like the one for rheumatoid
            arthritis, may not be accurate. This is one instance when a
            specialist is really worth the time and money.


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          • Mscue40@aol.com
            I stand corrected thank you! Your friend, Donna [Non-text portions of this message have been removed]
            Message 5 of 6 , Apr 29, 2003
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              I stand corrected thank you!
              Your friend,
              Donna


              [Non-text portions of this message have been removed]
            • Gail Samples
              Am I remembering right that you had a negative 4 month test? You ll be negative again at six then! You don t take all that many supplements-to me your
              Message 6 of 6 , Apr 29, 2003
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                Am I remembering right that you had a negative 4 month test? You'll be
                negative again at six then! You don't take all that many supplements-to me
                your regimen is conservative. You should see my parents' stash of
                supplements!!! WOW!! You might want to try adding lecithin flakes/granules
                and flax seed oil. The lecithin for the liver (and to help you digest
                fats/oils) and flax seed oil for pain. Yes, it can get better-it takes time
                and experimentation. Our bodies have a great healing capacity-especially
                the liver. There is not much out there in the traditional medical world
                for cryoglobulemia-the test for it is iffy at best. If a lab doesn't run it
                exactly right (the temperatures are critical for cryoglobulems-it cannot be
                off at all) the result will be a false negative. Some people have good luck
                with Neurontin-some don't. It was not for me-and it is extremely expensive!
                I have had the most luck with a hodge-podge of supplements (Malic acid, Flax
                seed oil, magnesium, Co-Q10, ginger-for cryo pain + Alleve) and some
                prescriptions (Ultram and FLexeril), exercise, and I sleep with a heating
                pad under my legs. I have begun taking MSM and have found it to be very
                helpful with the stiffness that develops in my leg joints after staying in
                one position for too long. Hope this gives you some ideas that help you.

                gail




                -----Original Message-----
                From: C.J. [mailto:runabout104@...]
                Sent: Saturday, April 26, 2003 10:01 AM
                To: GIWorld-Hepatitis@yahoogroups.com
                Subject: [GIWorld-Hepatitis] Nice to be remembered!


                Thanks for responding, I know it had been quite some time. Claudine I
                rem how much help you were to me, and I also rem the rest who
                responded. Thanks. You asked if I take vitamins--yes, I take vit E
                Vit C, selenium, calcium, milk thistle, alpha lipoic acid COQ10, and
                multivitamin without iron. I know it sounds like a lot! Will ANY of
                the liver damage end or regenerate itself if I can stay negative?? It
                will be time next month to take the test again for the 6 months post
                tx. Each time I have to go thru one of these, I get so anxious, and I
                know it does no good as it's going to be what it's going to be
                without my worrying and anxiety. I tried to stop the paxils 3 months
                after tx, but realized I did that too soon and am now back on them--
                trying to stay @ 20mg, because I went through so much with the
                withdrawal and actually thought I felt better without them for some
                time and then the depression hit again so I got back on them. Also,
                take xanax at night to sleep (have terrible insomia) As for the joint
                pain, I just don't know what is safe to take over the counter and was
                afraid to take anything so I haven't. I would really like to get some
                tests done to "see" if they can find out what this is. It is so bad
                at times, it really scares me. HOw do I know if it's really arthritis
                and would a gastro do a test for that or would I have to go somewhere
                else. Would a test for the cryo be worth trying and if the results
                were positive, is there medications for that?? AND I know I must have
                chronic fatique sydrome too, as I am always tired. Is this is as good
                as it's going to get?? Rem me, I was always full of questions. Also,
                it was mentioned about the study results were ONLY for the mono-
                hepatitis. What does that mean??? If I can make it negative on the 6
                months post tx, even as bad as my liver was--cirrochiss complete,
                won't my percentage be higher not to relapse also. Will my liver do
                ANY healing?? Any input, feel free. Sorry so many questions. Cher



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