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Re: [GIWorld-Hepatitis] Result PCR/Lora

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  • Lorad8@aol.com
    Message 1 of 24 , Apr 24, 2003
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    • Lorad8@aol.com
      Thanks Claudine. This is really good news! Lora [Non-text portions of this message have been removed]
      Message 2 of 24 , Apr 24, 2003
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        Thanks Claudine.
        This is really good news!
        Lora


        [Non-text portions of this message have been removed]
      • w.m.landstra
        Hi.I.am happy for you too.The Doc. told me after my first PCR,after six months stopping treatment,that the virus was gone for 95%.He wanted a second one six
        Message 3 of 24 , Apr 25, 2003
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          Hi.I.am happy for you too.The Doc. told me after my first PCR,after six months stopping treatment,that the virus was gone for 95%.He wanted a second one six months later to be absolutely sure.The second one was neg. too. and he said as far as we can check the virus is gone and there is no need for further check-up.Believe me he.s one of the leading Hep.C. specialists in Holland.Also our Doc. can say something on the subject.William.
          ----- Original Message -----
          From: Lorad8@...
          To: GIWorld-Hepatitis@yahoogroups.com
          Sent: Thursday, April 24, 2003 9:11 PM
          Subject: Re: [GIWorld-Hepatitis] Result PCR


          William,
          WAY TO GO!!!!!!!! I am SOOOOO happy for you!!!! Cheers, cheers, cheers!
          I, too have just had my one year-post treatment PCR-NEgative also! However, no one told me I didn't have to come back in six months. Is one year still negative a positive indicator that the dragon is gone forever?
          William, hugs, hugs, hugs!!!!!
          lora

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        • Lorad8@aol.com
          Thank you Claudine [Non-text portions of this message have been removed]
          Message 4 of 24 , Apr 25, 2003
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            Thank you Claudine


            [Non-text portions of this message have been removed]
          • Doc
            Hi all, Congrats to Willem and Lora for SVR up to one year, you guys are are fortunate but have worked hard at taking therapy.Your HCV has perhaps gone for
            Message 5 of 24 , Apr 25, 2003
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              Hi all,
              Congrats to Willem and Lora for SVR up to one year, you guys are are fortunate but have worked hard at taking therapy.Your HCV has perhaps gone for ever.
              Over 90% of HCV mono-infected patients who have negative HCV viral load (undetectable) 6 months after stopping therapy remain undetectable. Small studies of perhaps 200 hundred patients in total have followed patients for 3-11 years and find over 90% of these patients continue to have undetectable HCV in the blood.
              When doctors refer to HCV being "curable" it is often said that this is analagous the situation with cancer. In cancer if they can't find cancer for a certain number of years after therapy has been finished they call the person cured. Does cancer ever re-emerge? We need long-term studies in HCV to evaluate the outcomes of patients who sustain undetectable HCV viral load in order to confirm this.
              If a patient can sustain an undetectable viral load for 6 months to 1 year after stopping HCV therapy this gives them the best opportunity to remain healthy. It's important to bear in mind that these study results apply to patients with HCV mono-infection.

              Best Wishes,

              Dr Sharat Misra MD,DM,FACG


              ----- Original Message -----
              From: w.m.landstra


              Hi.I.am happy for you too.The Doc. told me after my first PCR,after six months stopping treatment,that the virus was gone for 95%.He wanted a second one six months later to be absolutely sure.The second one was neg. too. and he said as far as we can check the virus is gone and there is no need for further check-up.Believe me he.s one of the leading Hep.C. specialists in Holland.Also our Doc. can say something on the subject.William.


              [Non-text portions of this message have been removed]
            • Suzy Balone
              CONGRATS Willem It has been a long haul for you but you have stuck with the treatment and I commend you for that. Now you can just sit back and respond to
              Message 6 of 24 , Apr 28, 2003
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                CONGRATS Willem
                It has been a long haul for you but you have stuck with the treatment and I
                commend you for that. Now you can just sit back and respond to the rest of
                us and give us words of encouragement. Don't know how you withstood it all
                those times, I barely made it 52 weeks. and don't really want to think of
                going through it again, but if the symptoms get worse again I suppose I
                might change my mind
                :O )
                Suzy








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              • Suzy Balone
                Lora CONGRATS to you also. must be a wonderful feeling, I am so happy for you both Take care Suzy
                Message 7 of 24 , Apr 28, 2003
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                  Lora
                  CONGRATS to you also.
                  must be a wonderful feeling, I am so happy for you both
                  Take care
                  Suzy








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                • Moderators HepatititisClear/Clearing
                  Hi! I just found out about your list and I am really glad. We are Anita and Davis and are out of Florida. Recently relocated here from California and really
                  Message 8 of 24 , Apr 29, 2003
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                    Hi!

                    I just found out about your list and I am really glad. We are Anita
                    and Davis and are out of Florida. Recently relocated here from
                    California and really love it.

                    Davis is on treatment and I am her support person. She is
                    curently on the combo pegasys and riberviron.


                    She has started getting tons of sores in her mouth and a very
                    sore throat. The sores are getting worse and the Dr says the
                    typical.. " its a side effect"

                    Duh.

                    So I wonder if anyone has experieced this and if anyone knows
                    of any relief for it.

                    We have the biotene mouth wash and toothpaste.. Gurgles with
                    warm salt water and we have cloreseptic...

                    Any othere handy hints are so welcome.

                    Thanks

                    Anita

                    Moderator of

                    http://groups.yahoo.com/group/HepatitisCLEARINGAndClear

                    Our list is also a good one too...fun, friendly and informative..
                    check it out if you want.

                    Its dedicated to provide support for folks BEFORE, DURING and
                    POST-TREATMENT. Thought we'd put out a list and make a
                    couple friends.. next thing we knew we had 130 members!

                    (PegalatedInterferon, Pegasys, Alternative treatments and all
                    future treatments)
                  • claudine intexas
                    ... You might give either of these receipes a try - I never used them myself but heard they work very well. Also you might check with a dentist. Subject: Re:
                    Message 9 of 24 , Apr 29, 2003
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                      --- Moderators HepatititisClear/Clearing <AnitaAndDavis@...>
                      > She has started getting tons of sores in her mouth and a very
                      > sore throat. The sores are getting worse and the Dr says the
                      > typical.. " its a side effect"

                      > So I wonder if anyone has experieced this and if anyone knows
                      > of any relief for it.

                      You might give either of these receipes a try - I never used them
                      myself but heard they work very well. Also you might check with a
                      dentist.


                      Subject: Re: Magic Mouthwash for mouth sores and ulcers???

                      These are the two recipes I have:

                      1/3 Maalox
                      1/3 liquid Benadryl
                      1/3 lidocain viscous 2% soloution

                      Here's the second

                      1/3 liquid Prednisone syrup 5mg/5ml
                      1/3 liquid Benadryl
                      1/3 liquid Nystatin

                      You'll need a prescription for the prednisone and nystatin in the
                      second
                      recipe.

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                    • Patricia J. Hauldren
                      I had a numbing spray for the mouth ulcers Alley alleypat@attbi.com [Non-text portions of this message have been removed]
                      Message 10 of 24 , Apr 29, 2003
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                        I had a numbing spray for the mouth ulcers

                        Alley
                        alleypat@...

                        [Non-text portions of this message have been removed]
                      • AVansi7465@aol.com
                        Congrats!!!!!!!!!to All!!!!!!!!I m about to go see a GI here and intend to ask for a lab update. Next question for me will be how to rebuild my life. Hang in
                        Message 11 of 24 , May 5 2:25 PM
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                          Congrats!!!!!!!!!to All!!!!!!!!I'm about to go see a GI here and intend to
                          ask for a lab update.

                          Next question for me will be how to rebuild my life.
                          Hang in all.

                          Anne


                          [Non-text portions of this message have been removed]
                        • Patricia J. Hauldren
                          good luck Anne! Let us know what happens :) Alley grand prairie tx alleypat@attbi.com http://home.attbi.com/~alleypat [Non-text portions of this message have
                          Message 12 of 24 , May 5 5:10 PM
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                            good luck Anne! Let us know what happens :)

                            Alley
                            grand prairie tx
                            alleypat@...
                            http://home.attbi.com/~alleypat


                            [Non-text portions of this message have been removed]
                          • Tatezi
                            Anne... Haven t heard from you in so long. Has it been a long time since you saw a GI? What do you mean about rebuilding your life? I know your husband has not
                            Message 13 of 24 , May 5 7:54 PM
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                              Anne...

                              Haven't heard from you in so long. Has it been a long time since you saw a
                              GI?

                              What do you mean about rebuilding your life? I know your husband has not
                              been well and sure hope he is doing better. You sorta had to put your life
                              on hold while he was ill.

                              Know that my thoughts are with you and I'm anxiously awaiting to hear what
                              the GI says.

                              Blessings
                              Tatezi


                              ----- Original Message -----
                              From: <AVansi7465@...>
                              To: <GIWorld-Hepatitis@yahoogroups.com>
                              Sent: Monday, May 05, 2003 4:25 PM
                              Subject: Re: [GIWorld-Hepatitis] Result PCR


                              > Congrats!!!!!!!!!to All!!!!!!!!I'm about to go see a GI here and intend to
                              > ask for a lab update.
                              >
                              > Next question for me will be how to rebuild my life.
                              > Hang in all.
                              >
                              > Anne
                              >
                              >
                              > [Non-text portions of this message have been removed]
                              >
                              >
                              >
                              > Welcome to GIHepWorld
                              >
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                              >
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