965Re: A Thought?
- Mar 5, 2000I was wondering if anyone would be interested in developing an open chat
forum? This could be one day a week, and the difference would be that
many of the same concerns could be addressed at one time. List members
may chose to participate or not, and may just sign on to see what
It might serve for those newly diagnosed HCV patients, a way to gain
information from others experiences, but, since they have not started
yet, they have no idea what to expect. It could be informative, as well
as adding support to anyone who wants to participate. This is not
instead fo what is already inplace, but, a way to have a "live" chat, as
well as get some concensus on the troubles people have or , are going
through, so they may minimize, as well as take charge of their care.
The worst thing is the unknown and we have all heard horror stories,
many of which could be avoided. If nothing else, it could be a wider
variety of experiences, as well as reassure those that are experiencing
certain symptoms, or, can not get an understandable answer from the
provider, another way to share. Just dealing with depression, the
unknown, and the fear of the disease, might help to share, and plant
some questions, before there are problems.
This would not be any formal chat, but, would allow somone to ask a
question, and remain unknown, as well as immediately address the
person's concerns. This is also not instead of what your provider is
doing, but as an adjunct to issues as they come up.
What does anyone else think about something along these lines? Marty