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Group Description

ERYTHROMELALGIA (EM) Group/Online Support Group - Welcome to The Erythromelalgia Group (The EM Group).

The Original Online Erythromelalgia (EM) Support Forum, dedicated to educating and supporting sufferers of this painful disorder. We are also the ONLY PRIVATE EM SUPPORT GROUP. This means that no one outside of our group can see members’ names, information or posts - thus creating a safer environment to discuss any EM issues. Other EM groups publicly reveal their members’ names, posts and photos.

We will NEVER ask you for a financial contribution.

The EM Group was founded in 1999 by EM sufferer, the late Jim Read, to address the growing need for people with EM to have a place online where they could communicate, sharing their ideas, information and experiences with EM.

Uniquely, many of our members have been part of the EM community since its inception. No other group offers the same level of support, along with practical experience and expertise. We encourage all members to find a doctor who can help sort through the numerous options in the search for the best treatment for relief. This process is individual and can take time; to date, there is no single treatment for EM, and so far, no cure. It’s a process of trial and error, so having the support of a knowledgeable group of sufferers is what makes this the best EM Group on the Internet.

The EM Group also offers the most extensive and accurate EM Doctor List, which includes contact information for over 515 doctors in 27 countries and 45 US states, all of whom have seen patients with Erythromelalgia.

Join our group by clicking the purple JOIN GROUP button at the top right of this page.

Then INTRODUCE YOURSELF and let us know how we can help! You can do this either by clicking on the purple NEW TOPIC button or by EMAILING EM@Yahoogroups.com.

Be nice! Remember humor is vital! And may cool winds blow on your afflicted parts!

Group Information

Group Settings

  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages are not moderated.
  • All members can post messages.

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