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Group Description

Chiari Connection International (CCI) was created for those who suffer from Arnold Chiari Malformation and related disorders. Related disorders can include: syringomyelia (SM); basilar invagination (BI); cranio-spinal instability (CSI); intracranial and intraspinal cysts; tumors of the cerebellum, brain stem and spinal cord; spina bifida (SB); hydrocephalus; pseudotumor cerebri (PTC); Ehlers Danlos Syndrome (EDS); and various connective tissue disorders. And possibly some not yet even discovered!

Chiari Malformation treatment has come a long way in the past 15 years thanks to surgeons and researchers who have dedicated their time to discovering why symptoms can continue to be bothersome, even after an apparently successful decompression surgery. This new understanding has led to a better quality of life for thousands who suffer from Chiari Malformation.

This group exists to offer support and to help you more fully understand the various aspects of Chiari Malformation, its related disorders and the treatment options available. Experts will post on the board often,
answering questions and explaining new connections.

Click Here for CCI's Website

We also have a related group that is called:

CCI Parents

Group Information

Group Settings

  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages require approval.
  • All members can post messages.

Message History